Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tell All


SaraM-07

Recommended Posts

SaraM-07 Newbie

I am 19 years old, and in college in a small town in south central nebraska. Right before thanksgiving, I starting connecting some weird symptoms I was getting to wheat products. I mentioned it to my doctor, and they did a blood test and found nothing. I still stuck to a gluten free diet until Christmas, when I did my best to cut back, but showed symptoms again after eating it. I then continued to do a gluten free diet for 3 straight weeks before giving into a subway sandwich... and ever sense then, I have not been able to "Stay on the wagon" for more that a few days at a time.

To me this is gross and embarrassing, but when I eat something with gluten, i get horrible gas. I become bloated, and Fart uncontrollably all day! It doesn't smell too great either. I also get rashes around my eyes, they start off red, then become flakey, but last for a while. I haven't yet fully connected headaches to this, but it is something I will look out for when i get tested.

MY QUESTION:

Do my symptoms match anyone else? I cant get diagnosed till this summer being as im attending school in another state. What are some other symptoms people have? What do you eat when you can't resist the cravings? how have you stayed on the wagon?

Anythings will help! cant wait to keep up with everyones blogs!

-thanks

--"unsure" Sara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ninja Contributor

The other day I had to take home 2 boxes of caramel delight girl scout cookies. OMG, how I wanted even just one of those cookies so badly. I didn't and I guess that's because I was afraid of how my body would react after being (vigilantly) gluten free for 5 weeks. I definitely don't want to start over! My understanding is that your symptoms may subside within the first few weeks of going gluten-free, but that some of the nagging ones may take much longer to go away. They say a strict 3 month trial is necessary to begin feeling some of the more lasting effects.

Strangely, going gluten-free eliminated my cravings. I used to crave lots of chocolate, crackers, bread and desserts.

Symptoms vary widely

mushroom Proficient

Just a word of caution, Sara. You are unlikely to get accurate testing if you are not eating a full gluten diet. The recommendation is the equivallent of 3-4 slices of bread for two to three months prior to testing. With no (or little) gluten intake your body stops producing the entitbodies to fight it, and antibodies is what the testing measures. Similarly, if a biopsy is ordered, no gluten means the instinal tract starts to heal, and there may not be enough damage to measure.

So you have to make a decision before summer comes along about whether you want to be tested or you want to eat truly gluten free and see if you get better.

You will find a partial listing of typical celiac symptoms here: https://www.celiac.com/articles/1106/1/Celiac-Disease-Symptoms/Page1.html

Cathey Apprentice

To me this is gross and embarrassing, but when I eat something with gluten, i get horrible gas. I become bloated, and Fart uncontrollably all day! It doesn't smell too great either. I also get rashes around my eyes, they start off red, then become flakey, but last for a while. I haven't yet fully connected headaches to this, but it is something I will look out for when i get tested.

MY QUESTION:

Do my symptoms match anyone else? I cant get diagnosed till this summer being as im attending school in another state. What are some other symptoms people have? What do you eat when you can't resist the cravings? how have you stayed on the wagon?

Mushroom is right about the having to stay on gluten for an accurate test.

I know it's a hard discussion to indulge or not, but one you may have to decide on soon before this summer to be tested. If you decide to be gluten-free while @ school try and eat only whole foods. A good go to snack is corn tortilla chips, potato chips, salsa's, or try a great salad with the cold cuts and all good fixings in lieu of a subway, also try and find a gluten-free pizza.

I have been 100% very strict gluten free as well as our home for 4 months and I was feeling soo much better. I got accidently gluten over a 7 day period (new medication). Well, the gas, bloating is back and the big D is worst then ever. I changed medication last Friday and starting to get better.

Hope your feeling better and making good choice to feel better and get through the semester.

Weeny Newbie

Does one have to eat 4 slices of bread a day? I usually eat one sandwich per day... Plus some cake here and there and eat whatever I want. Isn't it enough?

I will do the bloodwork in 1,5 months at the earliest... Feel terrible in my belly at this moment. It wasn't that bad in the beginning, but now I feel sick in the morning also:/

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,265
    • Most Online (within 30 mins)
      7,748

    V Arnold
    Newest Member
    V Arnold
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...