Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Greetings

youwillrise

Recommended Posts

youwillrise Rookie
youwillrise
Posted

hello all! I don't usually do intros, but I figure...what the heck?! I am from new york (not nyc lol). I haven't been diagnosed with celiac or any gluten sensitivity (yet anyway...we'll see what test results show), but I'm here and I'm glad I am. I actually had about 9 million vials of blood drawn today and they'll test for a variety of things (which is *supposed* to include celiac) I've been searching through this forum for days. It's been great. So whether I end up having celiac or not, I might just hang around. ; )

Anyway...

Shake it up, rock it out, break it down.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Welcome riser! Please make sure & post your test results when you get them. There are those on here who can interpret them quite well as they are very knowledgeable on the subject.

Here's hoping you find the answers you are seeking in your 9 million vials of blood.cool.gif

Lisa Mentor
Lisa
Posted

Hello back and welcome! :D

Bubba's Mom Enthusiast
Bubba's Mom
Posted

hello all! I don't usually do intros, but I figure...what the heck?! I am from new york (not nyc lol). I haven't been diagnosed with celiac or any gluten sensitivity (yet anyway...we'll see what test results show), but I'm here and I'm glad I am. I actually had about 9 million vials of blood drawn today and they'll test for a variety of things (which is *supposed* to include celiac) I've been searching through this forum for days. It's been great. So whether I end up having celiac or not, I might just hang around. ; )

Anyway...

Shake it up, rock it out, break it down.

Hello..and welcome! It's crazy how many vials of blood they can take when doing tests. I figured if I wasn't anemic when they started..I should have been by the time they were done? :lol:

I hope the tests give you the answrs you need.

GottaSki Mentor
GottaSki
Posted

Welcome!

I hope you get answers from the mass blood draw...as others mention - if you have questions post the results here -- many can explain the results better than some medical personnel (especially primary docs and nurses -- even some GIs that don't specialize in Celiac can be less than helpful).

Good luck to you on finding an answer to improve your health!

youwillrise Rookie
youwillrise
Posted
  • Author

Thanks for the welcome, all! I'm hoping for (and expecting) the best. I will be sure to post my results. I got my blood drawn by a hematologist, so hoooopefully he knows how to read and interpret the results. I guess we'll see? : p.

I'm thinking of starting a gluten free diet as a test to see if it helps any...I know it'll take time once I start the gluten free. I wanted to wait until after I got the blood drawn before I started and now that I have...I think ill give it a shot.

Or...do you guys suggest I wait until after I get results?

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Thanks for the welcome, all! I'm hoping for (and expecting) the best. I will be sure to post my results. I got my blood drawn by a hematologist, so hoooopefully he knows how to read and interpret the results. I guess we'll see? : p.

I'm thinking of starting a gluten free diet as a test to see if it helps any...I know it'll take time once I start the gluten free. I wanted to wait until after I got the blood drawn before I started and now that I have...I think ill give it a shot.

Or...do you guys suggest I wait until after I get results?

IMO you should wait for the results of the tests before going gluten-free if you think they'll want to do an endoscope. They want you to be consuming gluten to get a good biopsy.

If you think you won't be getting a scope..go ahead and go gluten-free.

Be aware that 20-30% of us test negative in the blood work, but have positive biopsies when scoped. If you think it would be hard to stay on the diet without that biopsy DX..stay on gluten, but ask to have the scope scheduled ASAP.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

I second Bubba's Mom -- I misread your original post and thought you had already had an endoscopy.

If there is a chance you will be considering having an endoscopy, do not stop eating gluten until after that is complete.

sharilee Rookie
sharilee
Posted

Welcome! I was just diagnosed with celiac on February 22nd. I was in shock when I went for the first blood work and they took all those vials. Then even more shocked after I was diagnosed with celiac and they took more blood to check my iron, vitamin levels, etc. Never had so much blood taken in my life.

Keep us posted on the results.

squirmingitch Veteran
squirmingitch
Posted

I third those suggestions.

youwillrise Rookie
youwillrise
Posted
  • Author

Yeah, they're also checking iron and other vitamins/minerals...I'm sure other things, too. Ill wait for the results before I make any changes. Thanks for the help!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,246
    • Most Online (within 30 mins)
      7,748
    Kathleen weber
    Newest Member
    Kathleen weber
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Hypothetical question about antibodies

      By knitty kitty · Posted

      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross contamination or (heaven forbid) intentional cheat days will not be sufficient for tTg IgA testing.  You will still be making antibodies which will still be causing inflammation and damage to the intestines and body.  Histamine is released as part of the immune response to gluten.  High histamine levels lead to food sensitivities, brain fog, and body aches.   The damage done to the gastrointestinal tract affects the absorption of essential vitamins and minerals.  Malabsorption of fats can cause changes in stools.  Insufficient absorption of vitamins and minerals can cause damage to other organs like the thyroid if it can't get enough Selenium, iodine, iron, zinc, and Thiamine.  Brain fog and fatigue can be caused by low Thiamine and other B Complex vitamins.  Vitamin D is needed to regulate the immune system.  One gene is all that's needed to develop Celiac disease.  I know a Celiac diagnosis is a change that can be difficult to get your head around.  Many people go through the five stages of grief.  One stage is "bargaining".  Sounds like you're stuck there.  Every little cheat counts to your detriment.  But sticking to a gluten free diet, makes every meal a success.   Read the comments below the article... Best wishes!  Keep us posted on your progress!
    • Scott Adams
      Hypothetical question about antibodies

      By Scott Adams · Posted

      No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi.  Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Inflammation and Menier’s disease link?

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Pablohoyasaxa
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By Pablohoyasaxa · Posted

      Great  post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. 
    • knitty kitty
      Is it common to develop a wheat allergy in addition to Celiac Disease?

      By knitty kitty · Posted

      I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin.  The flushing is harmless and goes away the longer Niacin is taken.  The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters.  TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac.  People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies.  Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer.   I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters.  I avoid kelp (nori, seaweed) and crustaceans,  eggs, dairy products, and iodized table salt.   Niacinamide and Nicotinic acid are water soluble and harmless.  I'd much rather take Niacin than Dapsone with scary side effects.  
×
×
  • Create New...