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youwillrise

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youwillrise Rookie
youwillrise
Posted

hello all! I don't usually do intros, but I figure...what the heck?! I am from new york (not nyc lol). I haven't been diagnosed with celiac or any gluten sensitivity (yet anyway...we'll see what test results show), but I'm here and I'm glad I am. I actually had about 9 million vials of blood drawn today and they'll test for a variety of things (which is *supposed* to include celiac) I've been searching through this forum for days. It's been great. So whether I end up having celiac or not, I might just hang around. ; )

Anyway...

Shake it up, rock it out, break it down.

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squirmingitch Veteran
squirmingitch
Posted

Welcome riser! Please make sure & post your test results when you get them. There are those on here who can interpret them quite well as they are very knowledgeable on the subject.

Here's hoping you find the answers you are seeking in your 9 million vials of blood.cool.gif

Lisa Mentor
Lisa
Posted

Hello back and welcome! :D

Bubba's Mom Enthusiast
Bubba's Mom
Posted

hello all! I don't usually do intros, but I figure...what the heck?! I am from new york (not nyc lol). I haven't been diagnosed with celiac or any gluten sensitivity (yet anyway...we'll see what test results show), but I'm here and I'm glad I am. I actually had about 9 million vials of blood drawn today and they'll test for a variety of things (which is *supposed* to include celiac) I've been searching through this forum for days. It's been great. So whether I end up having celiac or not, I might just hang around. ; )

Anyway...

Shake it up, rock it out, break it down.

Hello..and welcome! It's crazy how many vials of blood they can take when doing tests. I figured if I wasn't anemic when they started..I should have been by the time they were done? :lol:

I hope the tests give you the answrs you need.

GottaSki Mentor
GottaSki
Posted

Welcome!

I hope you get answers from the mass blood draw...as others mention - if you have questions post the results here -- many can explain the results better than some medical personnel (especially primary docs and nurses -- even some GIs that don't specialize in Celiac can be less than helpful).

Good luck to you on finding an answer to improve your health!

youwillrise Rookie
youwillrise
Posted
  • Author

Thanks for the welcome, all! I'm hoping for (and expecting) the best. I will be sure to post my results. I got my blood drawn by a hematologist, so hoooopefully he knows how to read and interpret the results. I guess we'll see? : p.

I'm thinking of starting a gluten free diet as a test to see if it helps any...I know it'll take time once I start the gluten free. I wanted to wait until after I got the blood drawn before I started and now that I have...I think ill give it a shot.

Or...do you guys suggest I wait until after I get results?

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Thanks for the welcome, all! I'm hoping for (and expecting) the best. I will be sure to post my results. I got my blood drawn by a hematologist, so hoooopefully he knows how to read and interpret the results. I guess we'll see? : p.

I'm thinking of starting a gluten free diet as a test to see if it helps any...I know it'll take time once I start the gluten free. I wanted to wait until after I got the blood drawn before I started and now that I have...I think ill give it a shot.

Or...do you guys suggest I wait until after I get results?

IMO you should wait for the results of the tests before going gluten-free if you think they'll want to do an endoscope. They want you to be consuming gluten to get a good biopsy.

If you think you won't be getting a scope..go ahead and go gluten-free.

Be aware that 20-30% of us test negative in the blood work, but have positive biopsies when scoped. If you think it would be hard to stay on the diet without that biopsy DX..stay on gluten, but ask to have the scope scheduled ASAP.

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GottaSki Mentor
GottaSki
Posted

I second Bubba's Mom -- I misread your original post and thought you had already had an endoscopy.

If there is a chance you will be considering having an endoscopy, do not stop eating gluten until after that is complete.

sharilee Rookie
sharilee
Posted

Welcome! I was just diagnosed with celiac on February 22nd. I was in shock when I went for the first blood work and they took all those vials. Then even more shocked after I was diagnosed with celiac and they took more blood to check my iron, vitamin levels, etc. Never had so much blood taken in my life.

Keep us posted on the results.

squirmingitch Veteran
squirmingitch
Posted

I third those suggestions.

youwillrise Rookie
youwillrise
Posted
  • Author

Yeah, they're also checking iron and other vitamins/minerals...I'm sure other things, too. Ill wait for the results before I make any changes. Thanks for the help!

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    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
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    • trents
      Headaches / Migraines and Hypoglycaemia

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      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
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