Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pediatric Gi In Cleveland

StephanieL

By StephanieL
in Doctors

Recommended Posts

StephanieL Enthusiast
StephanieL
Posted

Says it all :)

We are Dr. shopping. Need to get out of CCF for several reasons.

Thanks!

  • 1 month later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted
  • Author

BUmp. We really need a new Dr. Anyone know where I can look to find one?

carlao Newbie
carlao
Posted

Hi Stephanie,

Here is a link to the pediatric gastroenterology department at UH:

Open Original Shared Link

I can not personally recommend any one of them, as we use Akron Children's. I would google their names and see what comes up.

Good luck!

StephanieL Enthusiast
StephanieL
Posted
  • Author

I have tried that. I need to know that the Dr. understands the entire scope of Celiac as ours do not ( I had to dx my DS with hypothyroid as they weren't up to it to know the two often go together).

Thanks though.

mommida Enthusiast
mommida
Posted

Hi Stephanie,

I am from Michigan, so I don't understand CCF.

I would try to get my daughter into Cincinnati Children's Hospital. My daughter has probable Celiac, but most definately Eosinophilic Esophagitus. CCH is one of the leading hospitals for EE. EE has a connection to Celiac. There is a recent article from the Ottawa Sun (March 28,2012) about an allergy causing hormone discovery. It primarily relates to EE and asthma, but who can say if it doesn't have a connection to Celiac. It appears that if there is a malfunction with miR-375 (microRNA) which is regulated by a gene, IL-13, the IL-13 determines wether or not to give the individual "allergies".

Since Eosinophilic Esophagitus is mainly diagnosed through an upper endoscopy with biopsy, there has got to be some pediatric gastroenterologists at Cincinnati Children's Hospital Medical Center who know what they are doing. :)

I have considered driving there from Michigan. :rolleyes:

carlao Newbie
carlao
Posted

mommida -

CCF is Cleveland Clinic Foundation.

Stephanie -

I did see on US News Top Doctors that Atiye Aktay, MD from UH Rainbow specializes in feeding disorders, celiac, and capsule endoscopy. Maybe try a consult and see if you like her?

StephanieL Enthusiast
StephanieL
Posted
  • Author

mommida -

CCF is Cleveland Clinic Foundation.

Stephanie -

I did see on US News Top Doctors that Atiye Aktay, MD from UH Rainbow specializes in feeding disorders, celiac, and capsule endoscopy. Maybe try a consult and see if you like her?

:huh: Been there (Dr. Aktay) done that won't go back ;) I think I may have found someone. I'll let you all know how it goes. Not that I have much faith at this point.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


carlao Newbie
carlao
Posted

Good luck! Let us know how it goes.

JonnyD Rookie
JonnyD
Posted

Judy Splawski is really good. We used to take my oldest daughter to her and were always happy. She's very nice too.

I too stay away from the Cleveland Clinic. ;)

JonnyD

Disclaimer: Not sure if it matters but my oldest did not have celiac but we saw Dr Splawski for other GI issues.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.