Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pediatric Gi In Cleveland

StephanieL

By StephanieL
in Doctors

Recommended Posts

StephanieL Enthusiast
StephanieL
Posted

Says it all :)

We are Dr. shopping. Need to get out of CCF for several reasons.

Thanks!

  • 1 month later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted
  • Author

BUmp. We really need a new Dr. Anyone know where I can look to find one?

carlao Newbie
carlao
Posted

Hi Stephanie,

Here is a link to the pediatric gastroenterology department at UH:

Open Original Shared Link

I can not personally recommend any one of them, as we use Akron Children's. I would google their names and see what comes up.

Good luck!

StephanieL Enthusiast
StephanieL
Posted
  • Author

I have tried that. I need to know that the Dr. understands the entire scope of Celiac as ours do not ( I had to dx my DS with hypothyroid as they weren't up to it to know the two often go together).

Thanks though.

mommida Enthusiast
mommida
Posted

Hi Stephanie,

I am from Michigan, so I don't understand CCF.

I would try to get my daughter into Cincinnati Children's Hospital. My daughter has probable Celiac, but most definately Eosinophilic Esophagitus. CCH is one of the leading hospitals for EE. EE has a connection to Celiac. There is a recent article from the Ottawa Sun (March 28,2012) about an allergy causing hormone discovery. It primarily relates to EE and asthma, but who can say if it doesn't have a connection to Celiac. It appears that if there is a malfunction with miR-375 (microRNA) which is regulated by a gene, IL-13, the IL-13 determines wether or not to give the individual "allergies".

Since Eosinophilic Esophagitus is mainly diagnosed through an upper endoscopy with biopsy, there has got to be some pediatric gastroenterologists at Cincinnati Children's Hospital Medical Center who know what they are doing. :)

I have considered driving there from Michigan. :rolleyes:

carlao Newbie
carlao
Posted

mommida -

CCF is Cleveland Clinic Foundation.

Stephanie -

I did see on US News Top Doctors that Atiye Aktay, MD from UH Rainbow specializes in feeding disorders, celiac, and capsule endoscopy. Maybe try a consult and see if you like her?

StephanieL Enthusiast
StephanieL
Posted
  • Author

mommida -

CCF is Cleveland Clinic Foundation.

Stephanie -

I did see on US News Top Doctors that Atiye Aktay, MD from UH Rainbow specializes in feeding disorders, celiac, and capsule endoscopy. Maybe try a consult and see if you like her?

:huh: Been there (Dr. Aktay) done that won't go back ;) I think I may have found someone. I'll let you all know how it goes. Not that I have much faith at this point.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


carlao Newbie
carlao
Posted

Good luck! Let us know how it goes.

JonnyD Rookie
JonnyD
Posted

Judy Splawski is really good. We used to take my oldest daughter to her and were always happy. She's very nice too.

I too stay away from the Cleveland Clinic. ;)

JonnyD

Disclaimer: Not sure if it matters but my oldest did not have celiac but we saw Dr Splawski for other GI issues.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,539
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.