Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Struggling To Lose Weight...


Dee777

Recommended Posts

Dee777 Rookie

I was diagnosed with Celiac disease on January 25, 2011. I had been losing a lot of weight, fast. Once going gluten-free, and my innards began to heal, I put it back on. And then some, like 15 pounds MORE than I started with BEFORE I lost weight being ill. I was stuck on the whole "I have Celiacs now, it's going to be impossible to lose the weight, etc. etc. etc..." and I lived with that for about 4 months. I was unhappy how I looked, hated looking into a mirror. Lost my confidence.

Then, I realised something. Celiac disease did not take away my body's ability to lose weight. I gave up. Even though I have Celiac disease this same formula holds: Calories in < calories burned. Less input, more output. I gave up eating gluten-free bread, it is more calories than the wheat crap I ate before. Ditto pastas. I eat a slice of bread maybe once a week now. I started online Weight Watchers. I walk, use my exercise bike, play with my dogs in the back yard. I clean my house more vigorously. And, I am losing weight now. Being Celiac didn't stop me from losing weight, THINKING that I couldn't lose weight because I had Celiac's kept me from losing it.

Just a thought. Hope it helps someone get over what I was going though, which is what I call the Celiac Weight Dilemma. Commercially prepared gluten-free foods are high in calories. If you eat them, you need to burn them.

I now eat tons of fresh fruit, veggies, veggie and chicken stir fries, some beef (lean), and can now evern eat dairy products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Congrats on finding something that works for you! :)

  • 4 weeks later...
LuLuBee Newbie

Dee777, you have made my evening. I have been feeling SO DOWN. This is JUST the encouragement that I needed. I am going through the *same thing* *right now*. I have put on about 15 lbs, and can't seem to take it off. I recently switched back to ( I used to be vegetarian a looooong time ago ) juicing on a daily bases and am struggling to get exercise in regularly. I have been avoiding all processed gluten-free foods.......except Udis White Bread. Its killer, I love it with tomatoes or avocados or cinnamon sugar. Its the one thing I've been having a hard time letting go of. ( don't worry! I will! )

While I'm noticing a great difference in how I feel,( and how my painful Gluten attacks are shortening,!) I do feel extremely disheartened by the weight gain.

I will try harder to persevere thanks to you. ;)

Thank you so much.

kaki-clam Enthusiast

are you doing weight watchers on line or going to a meeting? I want to try weight watchers, but wasn't sure if it was adaptable to the gluten free diet, i made a post on here about it but no one replied :( If you have good weight watchers experience, i would love to know!

JustNana Apprentice

Kaki,

I can't speak specifically from experience of WW and Celiac, but I have done WW before I had (or knew) celiac and was thinking of returning. There are no specific foods either required or forbidden by WW's terrific point system. You will find it very flexible and I'd encourage you to try it.

Best of luck. Also, I'm thinking my hypothyroidism is keeping about 20 pounds on that I'd like to lose. Hopfully when we reach a good med level I will start to lose it.

  • 2 weeks later...
Sunny600 Rookie

The only danger with WW (like with any other diet) is that you become obsessed with food. If you actually follow the point recommendation, you will be eating way less than your body needs (thus the losing weight part), but that's all that you'll end up thinking about. I don't remember the exact number, but 97% (or more) end up regaining all that they've lost, and then some, when they stop doing Weight Watchers. I lost 15 pounds, but then gained 35, and turned into a binger for the first time in my whole life. It's taking a LONG time to get over that. So be cautious.

fran641 Contributor

The only danger with WW (like with any other diet) is that you become obsessed with food. If you actually follow the point recommendation, you will be eating way less than your body needs (thus the losing weight part), but that's all that you'll end up thinking about. I don't remember the exact number, but 97% (or more) end up regaining all that they've lost, and then some, when they stop doing Weight Watchers. I lost 15 pounds, but then gained 35, and turned into a binger for the first time in my whole life. It's taking a LONG time to get over that. So be cautious.

Sunny I am so glad you brought up the part about obsessing over foods. I gained 35 lbs while on chemo the last 18 months (who does that, gain weight on chemo, uggghh). I was in a very rigid food program and all I did was think about food/binging. Now I am just working on eating better and avoiding the junk foods. I agree that the "gluten friendly" foods are frequently high in fats and sugars. Thanks again.

Fran


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
ashnyaya Newbie

This post is so helpful. I was just diagnosed yesterday. This gives me hope and some ideas of what to do and what not to do. These forums are so helpful. I seriously don't know what I would do without them. :)

Chad Sines Rising Star

I never could lose on WW. I loved Atkins before they diagnosed my celiac disease as gallbladder and removed it. Now I am just doing a basic ketogenic diet. Cannot consume that much fat.

nmull #newly diagnosed Newbie

I too am also having the weight gain issue. I get so excited when I find my favorite foods in the gluten free version that I keep eating pasta, brownies, etc. I am also hypoglycemic and Hypothyroid as well so those 2 along with Celiac isn't helping the weight issue. I wonder have any of you guys checked into Body by Vi ??? I ordered the shake mix because it does say Gluten free but I am unsure about the add in flavors and supplements. All of my research Just shows info on the shake mix. Im going to start the shakes Monday so if any of you Seasoned Celiacs know anything about this program id love some input. I have the DH, the raw/white tongue, stomach reactions, depression etc so I am thinking these shakes may give me a little help in letting my intestines heal :)

  • 2 weeks later...
KellyNC Newbie

Thank you for sharing this! I got a lot of encouragement from your story!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,142
    • Most Online (within 30 mins)
      7,748

    Mark Conway
    Newest Member
    Mark Conway
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.