Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Have I Been Tested For?


RiFi

Recommended Posts

RiFi Newbie

Hi Everyone,

Any ideas on the something?

My (new) GP and I are exploring whether I might have Celiac Disease. My mind and body is always all over the shop, so I can't say that I'm aware of reacting to gluten and/ or wheat per se. But given that I have many of the markers, we're just beginning to investigate.

I have just been tested for:

TTG, IgA gliadin Abs

The blood test results are back, and although they've come back as negative for celiac disease, there's something that's shown up that my GP would like to discuss with me. My appointment isn't for another 5 days and I'm wondering what the 'something' could be? Any ideas?

Thanks

Ri


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ukdan Rookie

The TTG tests for antibodies that are produced if the body reacts to gluten (which in turns causes damage to the small intestine) so it sounds like your results were within the normal range if they have said negative for celiac. It might be worth asking for more details just to be sure, and also to bear in mind that false negatives can occur with these tests.

Beyond that, without knowing what other blood tests were run I wouldn't want to make any suggestions as to what they have called you in for. It is probably best not to worry too much about it until then!

youwillrise Rookie

Well, I *hope* if it were something alarming or really important that they had to discuss with you, they'd have you come in sooner than 5 days...I hope all turns out well! Best wishes. : )

RiFi Newbie

The TTG tests for antibodies that are produced if the body reacts to gluten (which in turns causes damage to the small intestine) so it sounds like your results were within the normal range if they have said negative for celiac. It might be worth asking for more details just to be sure, and also to bear in mind that false negatives can occur with these tests.

Beyond that, without knowing what other blood tests were run I wouldn't want to make any suggestions as to what they have called you in for. It is probably best not to worry too much about it until then!

Thank you for your feedback :)

Just to clarify, do the letters 'TTG, IgA gliadin Abs' pertain to one test or two? The comma after TTG is throwing me because it makes it look like two different tests.

Hope me question makes sense :unsure:

RiFi Newbie

Thank you for your well wishes :) Like you, I'm sure nothing serious has shown up, I think I'm kinda curious more than anything.

It sounds like a ridiculously indulgent and naive thing to say, but when you've got soooo many issues going on with both my head and body, you kind of hope you can uncover/ be diagnosed with a condition that helps make sense of at least some of the messy pieces. And just as importantly, that there are steps you can take ie go gluten-free to help ameliorate the symptoms. In saying that, whether I do or don't have the condition, I'm not for a moment minimising the harsh realities of celiac disease - I have a very close friend who has it along with her two children and I've seen the very difficult path they travel on a daily basis.

Any way, I'll sit tight for another few days :)

mushroom Proficient

TTG, IgA gliadin Abs

I have never seen it written quite that way before, but the best guess is that you were tested for tissue transglutaminase IgA antibodies.

youwillrise Rookie

I feel the same way. I've been experiencing these weird, uncomfortable, scary symptoms for nearly 3 months now...and tomorrow ill hopefully get some answers and be on my way to a solution. You never want to be told you have any disease or condition...but when you feel like crap, you want to know what is going on and what you can do about it.

here's to you and your health!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748

    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.