Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Have I Been Tested For?


RiFi

Recommended Posts

RiFi Newbie

Hi Everyone,

Any ideas on the something?

My (new) GP and I are exploring whether I might have Celiac Disease. My mind and body is always all over the shop, so I can't say that I'm aware of reacting to gluten and/ or wheat per se. But given that I have many of the markers, we're just beginning to investigate.

I have just been tested for:

TTG, IgA gliadin Abs

The blood test results are back, and although they've come back as negative for celiac disease, there's something that's shown up that my GP would like to discuss with me. My appointment isn't for another 5 days and I'm wondering what the 'something' could be? Any ideas?

Thanks

Ri


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ukdan Rookie

The TTG tests for antibodies that are produced if the body reacts to gluten (which in turns causes damage to the small intestine) so it sounds like your results were within the normal range if they have said negative for celiac. It might be worth asking for more details just to be sure, and also to bear in mind that false negatives can occur with these tests.

Beyond that, without knowing what other blood tests were run I wouldn't want to make any suggestions as to what they have called you in for. It is probably best not to worry too much about it until then!

youwillrise Rookie

Well, I *hope* if it were something alarming or really important that they had to discuss with you, they'd have you come in sooner than 5 days...I hope all turns out well! Best wishes. : )

RiFi Newbie

The TTG tests for antibodies that are produced if the body reacts to gluten (which in turns causes damage to the small intestine) so it sounds like your results were within the normal range if they have said negative for celiac. It might be worth asking for more details just to be sure, and also to bear in mind that false negatives can occur with these tests.

Beyond that, without knowing what other blood tests were run I wouldn't want to make any suggestions as to what they have called you in for. It is probably best not to worry too much about it until then!

Thank you for your feedback :)

Just to clarify, do the letters 'TTG, IgA gliadin Abs' pertain to one test or two? The comma after TTG is throwing me because it makes it look like two different tests.

Hope me question makes sense :unsure:

RiFi Newbie

Thank you for your well wishes :) Like you, I'm sure nothing serious has shown up, I think I'm kinda curious more than anything.

It sounds like a ridiculously indulgent and naive thing to say, but when you've got soooo many issues going on with both my head and body, you kind of hope you can uncover/ be diagnosed with a condition that helps make sense of at least some of the messy pieces. And just as importantly, that there are steps you can take ie go gluten-free to help ameliorate the symptoms. In saying that, whether I do or don't have the condition, I'm not for a moment minimising the harsh realities of celiac disease - I have a very close friend who has it along with her two children and I've seen the very difficult path they travel on a daily basis.

Any way, I'll sit tight for another few days :)

mushroom Proficient

TTG, IgA gliadin Abs

I have never seen it written quite that way before, but the best guess is that you were tested for tissue transglutaminase IgA antibodies.

youwillrise Rookie

I feel the same way. I've been experiencing these weird, uncomfortable, scary symptoms for nearly 3 months now...and tomorrow ill hopefully get some answers and be on my way to a solution. You never want to be told you have any disease or condition...but when you feel like crap, you want to know what is going on and what you can do about it.

here's to you and your health!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,695
    • Most Online (within 30 mins)
      7,748

    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.