Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Do Withdrawal Symptoms Last ?


dudley007

Recommended Posts

dudley007 Newbie

Hello everyone, I am a newbie here. I started on gluten free diet exactly 2 weeks ago for two reasons:

1) I would like to lose some weight

2) I get headaches/brain fog from time to time and I heard this may be related to gluten (I realize not every headache is caused by gluten)

I have no reason to believe that I am gluten sensitive, my digestive system works very well but I read that people may be gluten sensitive yet have very few symptoms. I have no problems following the diet - in fact, after a week I stopped craving bread/past completely. However (!), 3 days after I eliminated gluten from my diet, I started experiencing strong brain fog episodes and even mild/moderate depression. This has been taking for 11 days now and it is pretty bad.

I read about withdrawal symptoms but people usually report having them for a few days. Is what I experience common? Why the depression?

Thanks for any insight you can share with me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dudley007 Newbie

Any help here? Can you please share if your withdrawal symptoms included depression and if so, how long they lasted? Thank you.

Diane-in-FL Explorer

Withdrawal seems different for everyone.....it depends on how old you are, how long you may have had gluten issues without being diagnosed or knowing it. Gluten is addictive and your body is reacting to missing it, and for some people, withdrawal symptoms can be as bad or worse than their original symptoms. But it will get better.

Welcome to the forum! :)

pricklypear1971 Community Regular

Or, you could need some of the b vitamins gluten goods have added to them. Just a thought - add a multi vitamin?

Kamma Explorer

Hi Dudley...

When I was going through my withdrawals I really wanted to know how long they would last as well. I started reading some of the research stuff and I believe it was in one of Dr. Fassano's papers where he stated that the antibodies created in reaction to the gluten have a half life of three months. So in three months, half of the antibodies are gone, in another three months, half of that half is gone and so on. It takes a full year to eliminate your system of the antibodies if you don't accidently gluten yourself.

I started to feel better for longer periods of time around the two month mark. Lots of energy, good cheer and hope. Some of my symptoms are ramping up at other times.

Hope that helps.

Oh yes! By the way, gluten acts like an opiate on some of the receptors in the brain so when you withdraw from it some people get depressed.

Gfresh404 Enthusiast

Why are you gluten-free, as a just in case?

dudley007 Newbie

Why are you gluten-free, as a just in case?

Thanks for all your posts. I do take a multivitamin once a day. The reason I went gluten free is to

1) lose some weight (success here so far)

2) see if it can help me with my occasional headaches

3) from what I read, anyone can benefit from gluten-free diet even if that person does not have any alergic symptoms


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WendyLee Rookie

Hi Dudley...

When I was going through my withdrawals I really wanted to know how long they would last as well. I started reading some of the research stuff and I believe it was in one of Dr. Fassano's papers where he stated that the antibodies created in reaction to the gluten have a half life of three months. So in three months, half of the antibodies are gone, in another three months, half of that half is gone and so on. It takes a full year to eliminate your system of the antibodies if you don't accidently gluten yourself.

I started to feel better for longer periods of time around the two month mark. Lots of energy, good cheer and hope. Some of my symptoms are ramping up at other times.

Hope that helps.

Oh yes! By the way, gluten acts like an opiate on some of the receptors in the brain so when you withdraw from it some people get depressed.

Thx Kamma for the information about the reseach.

Wendy

  • 2 months later...
JaneG Newbie

This is a useful thread, thanks Kamma for your reply.

I have gone gluten free as a last ditch effort to cure my chronic fatigue - I have done everything else and my Doctors are less than useless, refusing tests unless there are really obvious signs of anything like thyroid, gluten etc. I am having to go it alone because they depress me so much and make me feel I am insane.

Almost a month in, just like above, finding the way of eating easy and pleasurable and not craving bread at all - perhaps because I have learned a lot from the raw food movement. I did high raw for a while but could never give up bread!

Sadly, I feel absolutely dreadful. I sleep more than ever; sometimes feel sick; have severe headaches and neck ache; can't think straight; can't function and today I am angry as well. I am wondering if it is worth it and if I am just clutching at straws. Last year I thought I was healed of chronic fatigue and then it came back, but now much worse since starting this, though the first week was good and I felt I was on the right track.

I need some hope. I have searched so many sites and forums and all I see over and over are these wonder stories of people losing a stone in the first 4 weeks (I have got heavier) and suddenly having all this energy...and I feel like an oddball, like there is something wrong with me and maybe I shouldn't be doing this and it's all rubbish, etc. But it really does feel like my last hope of recovery.

Any advice, links to articles/sites about difficulties would be gratefully received. Thank you

LauraB0927 Apprentice

Why didnt you consult with a doctor and have blood tests done before going gluten free? Headaches and fatigue could point to a lot of different diagnoses and shouldnt just be related to Celiac. More importantly, I'm a bit concerned that you feel that going gluten free is a sufficient way to lose weight. In fact, many people begin to gain weight after starting a gluten free diet - some because they are actually beginning to absorb food and others because they are loading up on the gluten replacement foods which have WAY more carbs and calories. Gluten free doesnt necessarily equate to healthy....If you want to lose weight, you're right, stick to more natural foods like meats, fruits, veggies, nuts, etc, but if you dont have Celiac or a gluten sensitivity then there is a legitimate place for gluten in your diet.

I would seriously suggest consulting with your doctor to discuss your headaches and fatigue - you could be ignoring another problem. I have to admit, this post is coming from a bit of frustration because I'm not sure why anyone would want to be on this "diet" or "lifestyle" if they dont have to be. Rule out any other medical illnesses and get tested for antibodies - it could be from something else and maybe even something easier to manage.

  • 9 months later...
wonderingman Newbie

Hi Dudley...

When I was going through my withdrawals I really wanted to know how long they would last as well. I started reading some of the research stuff and I believe it was in one of Dr. Fassano's papers where he stated that the antibodies created in reaction to the gluten have a half life of three months. So in three months, half of the antibodies are gone, in another three months, half of that half is gone and so on. It takes a full year to eliminate your system of the antibodies if you don't accidently gluten yourself.

I started to feel better for longer periods of time around the two month mark. Lots of energy, good cheer and hope. Some of my symptoms are ramping up at other times.

Hope that helps.

Oh yes! By the way, gluten acts like an opiate on some of the receptors in the brain so when you withdraw from it some people get depressed.

I wonder if acupuncture will help remove the half-life that you researched? I have been gluten-free for 4 months and have no libido. I have also removed diary and sugar too. My labs show normal thyriod. Do you have that article or have you been through a similiar raod with this? How long did it take you? 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.