Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elisa


zebaldwin

Recommended Posts

zebaldwin Explorer

Just curious if anyone here has had the ELISA testing done, and if it was helpful or not.

I keep getting so close to finding the answer to my health problems, and I am still convinced it is food related...just looking for a means to find some real answers.

Is it accurate? Is it helpful?

Also, is it something my GP could do or do I need to go to an allergy specialist?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Just curious if anyone here has had the ELISA testing done, and if it was helpful or not.

I keep getting so close to finding the answer to my health problems, and I am still convinced it is food related...just looking for a means to find some real answers.

Is it accurate? Is it helpful?

Also, is it something my GP could do or do I need to go to an allergy specialist?

Thanks!

I had the skin prick test for 98 foods. The test came back with no reactions. I clearly react badly to wheat(gluten) and soy, so my Dr. did a RAST (blood test) and I didn't have any reactions.

I was told there isn't any reliable test for food intolerances, other than your personal experience of symptoms when you consume something that doesn't agree with you. The best way of figuring those out is to keep a log of everything you eat, and note any symptoms you have. Unfortunately many food reactions are delayed, making it a bit tricky to figure out at first.

That being said, some people do food sensitivity testing through Enterolabs via mail order and feel it helps them know what foods to avoid or challenge later. It's been noted that there can be a lot of false positives with this test, which makes it a bit unreliable, which is why Dr.s don't usually order it.

zebaldwin Explorer

I had the skin prick test for 98 foods. The test came back with no reactions. I clearly react badly to wheat(gluten) and soy, so my Dr. did a RAST (blood test) and I didn't have any reactions.

I was told there isn't any reliable test for food intolerances, other than your personal experience of symptoms when you consume something that doesn't agree with you. The best way of figuring those out is to keep a log of everything you eat, and note any symptoms you have. Unfortunately many food reactions are delayed, making it a bit tricky to figure out at first.

That being said, some people do food sensitivity testing through Enterolabs via mail order and feel it helps them know what foods to avoid or challenge later. It's been noted that there can be a lot of false positives with this test, which makes it a bit unreliable, which is why Dr.s don't usually order it.

Ya, that's what I was afraid of.

I am having the hardest time pinpointing anything...especially because I am almost positive whatever it is has a significant delay with reactions.

I recently started keeping a very detailed journal, so hopefully that will help

Skylark Collaborator

The main issue with testing is false positives. It's reasonable to get the test, eliminate everything that comes up, and see if you feel better. If so you challenge the foods one at a time. Problem is if you're reacting to a lot of stuff you may have so many ELISA reactions that the resulting diet is wildly impractical and/or doesn't help because you are sensitive to things other than the 96 that were tested.

burdee Enthusiast

I had the skin prick test for 98 foods. The test came back with no reactions. I clearly react badly to wheat(gluten) and soy, so my Dr. did a RAST (blood test) and I didn't have any reactions.

I was told there isn't any reliable test for food intolerances, other than your personal experience of symptoms when you consume something that doesn't agree with you. The best way of figuring those out is to keep a log of everything you eat, and note any symptoms you have. Unfortunately many food reactions are delayed, making it a bit tricky to figure out at first.

That being said, some people do food sensitivity testing through Enterolabs via mail order and feel it helps them know what foods to avoid or challenge later. It's been noted that there can be a lot of false positives with this test, which makes it a bit unreliable, which is why Dr.s don't usually order it.

Skin prick tests can only diagnose food allergies which produce skin reactions, like hives, eczema, etc. We don't put food under our skin when we eat, so allergies which produce other kinds of reactions are not reliably diagnosed with skin tests.

RAST tests look for IgE antibody mediate allergies, which cause immediate, often anaphylactic reactions. We hear about those kinds of allergies frequently, because they can be life threatening.

However most people have delayed reaction allergies (mediated by either IgA or IgG antibodies). Some 'experts' consider those kinds of delayed reactions 'intolerances', rather than allergies. However those reactions involve the immune system. So others consider those reactions allergies, unlike lactose intolerance, which doesn't involve the immune system. The ELISA test looks for all three kinds of reactions (IgE, IgG and more recently IgA antibody mediated). So ELISA can more often diagnose delayed reaction allergies, than RAST or skin prick tests.

Lori2 Contributor

If you recognize that all these allergy/intolerance tests have a certain degree of unreliability, I did find that they were helpful for me.

My gluten responses are delayed by about three days. That makes it a little difficult to identify problems. I knew I was having problems with more than gluten. We have a gluten-free household and we don

zebaldwin Explorer

If you recognize that all these allergy/intolerance tests have a certain degree of unreliability, I did find that they were helpful for me.

My gluten responses are delayed by about three days. That makes it a little difficult to identify problems. I knew I was having problems with more than gluten. We have a gluten-free household and we don


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

If you recognize that all these allergy/intolerance tests have a certain degree of unreliability, I did find that they were helpful for me.

My gluten responses are delayed by about three days. That makes it a little difficult to identify problems. I knew I was having problems with more than gluten. We have a gluten-free household and we don

Lori2 Contributor

Thanks for the response Lori.

Were these all things that you talked to a food allergist with or general doctor?

An allergist is one doctor I haven't seen. Like I've said...at this point, I haven't really proven that food consumption is my problem but I have strong reason to think it is.

Thanks again

When my frequent, loose bowel movements turned into diarrhea and I lost 15 pounds in two months, celiac was one of the first things I thought of. After two months of improvement on a gluten-free diet, I asked my doctor for celiac testing. I did not know you had to be eating gluten to get a positive test. Unfortunately, my doctor didn

zebaldwin Explorer

When my frequent, loose bowel movements turned into diarrhea and I lost 15 pounds in two months, celiac was one of the first things I thought of. After two months of improvement on a gluten-free diet, I asked my doctor for celiac testing. I did not know you had to be eating gluten to get a positive test. Unfortunately, my doctor didn

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,827
    • Most Online (within 30 mins)
      7,748

    Rebecca Hurst
    Newest Member
    Rebecca Hurst
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.