Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Finding Doctor In Alabama (Hunts/birm)


Mason79

Recommended Posts

Mason79 Newbie

Hello everyone first off thank God for this site and forum. My problems all started about 3.5 months ago and its been a nightmare of course. Was pushed off by several practitions and even a few ER trips as acid reflux. Anyways my new family doctor did some test a week ago and seems to really think its Celiac. Wants me to go to a specialist so I'm hoping to find who is celiac savy. I live about 30 minutes south of Huntsville and about an hour from Birmingham. I really dont have a preference just need HELP! I have already swapped to gluten-free diet still having problems but of course everytime I turn around I find something else that is gluten like toothpaste/mouthwash. So I'm researching like crazy and working real hard on getting gluten-free. Of course in my small town about the only thing I can find is the gluten-free chex cereals and the rice milk stuff but odly enough those seem the best for me now. I made a trip to huntsville and grabbed several gluten-free products but some have not done to well for me, but just trying one new every other day or so...

Docs has had me on sucralfate, nexium, and dicyclomine.... I go back tomorrow for a check up so i really hope to find a suggestion for a Celiac savy specialist....thanks so much for all the help

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



smjb Newbie

I haven't seen these doctors, but I have heard that they are good for celiac. They are at St. Vincent's in Birmingham. Open Original Shared Link

I think they are all ok.

BTW, do NOT go to St. Vincent's East.

I hope this help :)

yorkieluv Newbie

I live in Birmingham and didn't have much luck with a doctor here but I have been seeing Dr. Cynthia Rudert in Atlanta and really like her. Good luck, I think it is hit and miss with most doctors.

smjb Newbie

I live in Birmingham and didn't have much luck with a doctor here but I have been seeing Dr. Cynthia Rudert in Atlanta and really like her. Good luck, I think it is hit and miss with most doctors.

Did you try those doctors at St. Vincent's?

yorkieluv Newbie

Did you try those doctors at St. Vincent's?

No, I didn't try these. I saw two different ones at two other hospitals. It want hurt to make an appointment and see how it goes.

aliceintown Newbie

Not necessarily in alabama,,, but... Did you try phoning Dr Block for a consultation in Tulsa, Oklahoma? He's very experienced with celiac disease and the gluten free diet...

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,805
    • Most Online (within 30 mins)
      7,748

    lovinlifeafter60
    Newest Member
    lovinlifeafter60
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.