Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Armpits Dh

GFreeMO

By GFreeMO
in Dermatitis Herpetiformis

Recommended Posts

squirmingitch Veteran
squirmingitch
Posted

I wish dh was a person so I could take it's nuts & wrap them with fishing line & tie it to the trailer hitch of a car & then drive slowly down an asphalt road dragging dh. Then I would stop & get out & take a 38 cal. pistol & shoot dh in one knee & then the other & then I would shoot dh in one elbow & then in the other. And then I would just stand there & watch dh while dh begged me to put it out of it's misery. And I would laugh.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Hopeful1950 Explorer
Hopeful1950
Posted

:lol::D:rolleyes::):lol::lol::lol:

OMG! Thanks for a great start to my day!

GFreeMO Proficient
GFreeMO
Posted
  • Author

I agree! Especially since last night I was up at 3AM with ice packs and my hairdryer on cool. Ice..hair dryer..repeat....I writhed in pain for 2 days with period cramps broke down and took Aleve and the armpits are worse than ever. Period cramps..gone...dh severe. I guess we have to pick our battles.

pricklypear1971 Community Regular
pricklypear1971
Posted

I agree! Especially since last night I was up at 3AM with ice packs and my hairdryer on cool. Ice..hair dryer..repeat....I writhed in pain for 2 days with period cramps broke down and took Aleve and the armpits are worse than ever. Period cramps..gone...dh severe. I guess we have to pick our battles.

Can you find a gluten-free/cf version of Tylenol? It isn't in the same class and supposedly does not provoke DH. I used it an was fine.

Sorry you had a rough night. I think I'd slam down a few shots of something next time and hope for sleep.

squirmingitch Veteran
squirmingitch
Posted

Oh dear, I'm feeling for you, I really am. I'm so sorry you're having to go through this. And period cramps on top of the rest. It seems bound & determined to get you one way or another doesn't it?

I think I'd do like Prickly & do a couple 3 shots of something.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Thank you. It's better this morning. There is no corn free Tylenol. Motrin and Advil give me severe intestinal issues. Aleve is pretty much corn free but not sals free at all. I only take it when I am having severe period pain. Like I said, I have to pick my battles. :unsure:

I agree 2 or 8 shots of something and hoping for sleep! Next time. :D

pricklypear1971 Community Regular
pricklypear1971
Posted

Thank you. It's better this morning. There is no corn free Tylenol. Motrin and Advil give me severe intestinal issues. Aleve is pretty much corn free but not sals free at all. I only take it when I am having severe period pain. Like I said, I have to pick my battles. :unsure:

I agree 2 or 8 shots of something and hoping for sleep! Next time. :D

Can you get a gluten-free/cf version from a compounding pharmacy? Many of them have online shops and ship.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted
  • Author

Can you get a gluten-free/cf version from a compounding pharmacy? Many of them have online shops and ship.

I never thought about that. I'll look into it. Thanks for the suggestion. :)

squirmingitch Veteran
squirmingitch
Posted

Great thinking Prickly!

Di2011 Enthusiast
Di2011
Posted

Yes thank you thank you thankyou ! There is a compounding chemist only 5 minutes drive from home but had never though of that :)

  • 2 weeks later...
GFreeMO Proficient
GFreeMO
Posted
  • Author

I found a compounding pharmacy not too far from my house. They said that I need a RX for corn free Tylenol. My doctors office said corn is gluten free . It is but I can't handle corn. I get intestinal reactions from it almost as bad as gluten. How do we get an RX for this?

Dr office told me to take Tylenol..duh..it has corn though. They said that I am still healing and that it's not the corn in the Tylenol. That is a complete line of BS since I can't have any corn at all and a lot of us celiacs react to corn.

squirmingitch Veteran
squirmingitch
Posted

Yep, my compounding pharmacy says even though it's OTC medication the law requires a script for compounding ANYTHING. I just wanted sal free, iodine free, gluten-free Aleve.

Guess I get to go to a doctor & pay to get a script. sad.gif

Gluten-Free ---- that sucks! Are they stoopid?

pricklypear1971 Community Regular
pricklypear1971
Posted

I found a compounding pharmacy not too far from my house. They said that I need a RX for corn free Tylenol. My doctors office said corn is gluten free . It is but I can't handle corn. I get intestinal reactions from it almost as bad as gluten. How do we get an RX for this?

Dr office told me to take Tylenol..duh..it has corn though. They said that I am still healing and that it's not the corn in the Tylenol. That is a complete line of BS since I can't have any corn at all and a lot of us celiacs react to corn.

Call your doctor and ask to speak to the person who ISN'T an idiot? Geez. It's irrelevant why you react - the fact is that you do. Therefore, you need a script for some dang Tylenol without corn.

Good lord.

squirmingitch Veteran
squirmingitch
Posted

Call your doctor and ask to speak to the person who ISN'T an idiot? Geez. It's irrelevant why you react - the fact is that you do. Therefore, you need a script for some dang Tylenol without corn.

Good lord.

Amen to that! But they like to play God.

RashyA Apprentice
RashyA
Posted

Thanks everyone!!! Prickly, Vanicream really helped. Great stuff! Why would my corn allergy give me DH is what I am wondering. I get it from gluten and now corn..unless I was glutened and blamed it on the corn I drank in the soda. Who knows..Sometimes celiac is a complete mystery as to what made us sick. :huh:

I think I get reactions from corn also! So awful :(

My rash itches like crazy when I eat it. If u eat corn tortilla chips do u break out??

Can't decide if it's the corn or cause they're so salty?

I don't know if I can live without my chips and salsa too! :o

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    2. Scott Adams
      - Scott Adams replied to chrish42's topic in Doctors
      5

      Doctors and Celiac.com

      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating...
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes...
    4. MauraBue
      - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Have Tru Joy Sweets Choco Chews been discontinued??

      Help! My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac. Her favorite candy in the world is tootsie rolls. I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase. Have they been discontinued?? Does anyone have another recommendation...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others thanks again for all the great info
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748
    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Doctors and Celiac.com

      By Scott Adams · Posted

      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Have Tru Joy Sweets Choco Chews been discontinued??

      By MauraBue · Posted

      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.