Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Behavior Issue's Getting Worse Gluten Free?


jenn42

Recommended Posts

jenn42 Explorer

My DD has been gluten-free for almost 2 weeks now and her moods are all over the board. She's been very irritable. I'm not sure if it's hormonal (she's almost 12) or it's the gluten-free diet. She did the gluten-free diet for 12 days a couple months ago and was an angel, then we had to go back on gluten for the biopsy. Is this normal as she's adjusting to the food change. I'm thinking maybe my kitchen is as clean of gluten as I think it might be. We are still learning new things every day, so possibly some CC is going on? Any suggestions? Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Withdrawal and hormones. Wow. Glad I'm not at your house.

She may be going through withdrawal this time, or she may be acting like a 12 year-old.

Withdrawal can make you mad mad mad, moody, and emotional. Personally, I went into the bathroom at work and kicked the wall. And bawled.

I suggest a good stiff martini for you.

rosetapper23 Explorer

It could be cc...or it could be that she's also intolerant of dairy or soy; however, another possibility is that she is now able to absorb hormones. A 12-year-old will be producing an increased amount, and if she was unable to adequately absorb them previously, the rush of hormones may be unexpected and confusing. This is only one possibility.

mamaupupup Contributor

We are right behind you...10 days gluten-free...I'm still cleaning my kitchen! We have 2x celiac disease in twin 5 yr old girls. One is behaving like an angel. The other is a rollercoaster. I was warned by multiple people not to take the girls off gluten cold turkey, but I just couldn't stand having any more evil gluten around!!! I'm told there is a nasty die-off effect!

You are in good company :)

Btw, I never drink a sip of alcohol when my husband is out of town (too afraid I won't be able to drive a kid to the ER 'cause of a glass of wine). Last night I had a glass of wine. It's just plain tough some days!!!

Hang in there!

Cara in Boston Enthusiast

My son and I went gluten free a year ago. He was fine. I had about 2 weeks of feeling MUCH worse (irritable, headache, tired, etc.). Doctor said there is a group of people who will experience withdrawal symptoms when gluten is removed. I guess I was one of them. After that, it got a little better each day. . . . and then I just felt good - every day - which was new for me.

Cara

jenn42 Explorer

Thanks everyone. It seems to be getting better. She's such a trooper. And....the glass of wine does help Mommy!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748

    Rrenee2990
    Newest Member
    Rrenee2990
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.