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Behavior Issue's Getting Worse Gluten Free?

jenn42

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jenn42 Explorer
jenn42
Posted

My DD has been gluten-free for almost 2 weeks now and her moods are all over the board. She's been very irritable. I'm not sure if it's hormonal (she's almost 12) or it's the gluten-free diet. She did the gluten-free diet for 12 days a couple months ago and was an angel, then we had to go back on gluten for the biopsy. Is this normal as she's adjusting to the food change. I'm thinking maybe my kitchen is as clean of gluten as I think it might be. We are still learning new things every day, so possibly some CC is going on? Any suggestions? Thanks.

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pricklypear1971 Community Regular
pricklypear1971
Posted

Withdrawal and hormones. Wow. Glad I'm not at your house.

She may be going through withdrawal this time, or she may be acting like a 12 year-old.

Withdrawal can make you mad mad mad, moody, and emotional. Personally, I went into the bathroom at work and kicked the wall. And bawled.

I suggest a good stiff martini for you.

rosetapper23 Explorer
rosetapper23
Posted

It could be cc...or it could be that she's also intolerant of dairy or soy; however, another possibility is that she is now able to absorb hormones. A 12-year-old will be producing an increased amount, and if she was unable to adequately absorb them previously, the rush of hormones may be unexpected and confusing. This is only one possibility.

mamaupupup Contributor
mamaupupup
Posted

We are right behind you...10 days gluten-free...I'm still cleaning my kitchen! We have 2x celiac disease in twin 5 yr old girls. One is behaving like an angel. The other is a rollercoaster. I was warned by multiple people not to take the girls off gluten cold turkey, but I just couldn't stand having any more evil gluten around!!! I'm told there is a nasty die-off effect!

You are in good company :)

Btw, I never drink a sip of alcohol when my husband is out of town (too afraid I won't be able to drive a kid to the ER 'cause of a glass of wine). Last night I had a glass of wine. It's just plain tough some days!!!

Hang in there!

Cara in Boston Enthusiast
Cara in Boston
Posted

My son and I went gluten free a year ago. He was fine. I had about 2 weeks of feeling MUCH worse (irritable, headache, tired, etc.). Doctor said there is a group of people who will experience withdrawal symptoms when gluten is removed. I guess I was one of them. After that, it got a little better each day. . . . and then I just felt good - every day - which was new for me.

Cara

jenn42 Explorer
jenn42
Posted
  • Author

Thanks everyone. It seems to be getting better. She's such a trooper. And....the glass of wine does help Mommy!

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    • lizzie42
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      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
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      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      By trents · Posted

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      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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