Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Question


ksmama

Recommended Posts

ksmama Rookie

i started my daughter on a gluten free diet 5 days ago, she was feeling great until today. she started complaining of her stomach and head hurting again....i have been really careful what i give her to eat. i did however make some gluten free bread for the first time last night and today she had her first gluten free macaroni and cheese, i took the cheese packet from a kraft mac and cheese box and used gluten free rice noodles.....that is the only 2 different things i have done today, could it be one of those things that i fed her that did this to her???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



krystynycole Contributor

First, Welcome! It will get easier as you go on, I promise :)

I used the mac and cheese packet from kraft all the time...a simple indulgence I have :)

Have you checked your pots and pans? Gluten can get stuck everywhere! It can hide in the baking, your pot, and your colander you used. The colander/strainer is a very hard thing to completely clean. Many people buy all new pots, pans, spatulas, etc...

ksmama Rookie

First, Welcome! It will get easier as you go on, I promise :)

I used the mac and cheese packet from kraft all the time...a simple indulgence I have :)

Have you checked your pots and pans? Gluten can get stuck everywhere! It can hide in the baking, your pot, and your colander you used. The colander/strainer is a very hard thing to completely clean. Many people buy all new pots, pans, spatulas, etc...

I didn't think about the pot! Maybe that is what it is from, she has also been very gassy since last night....she has always been gassy but got better the first few days now it's back.

kareng Grand Master

Did you use the colander to drain the noodles? Was it the same one you used for gluten noodles? Colanders are really hard to get everything out of each hole.

Mizzo Enthusiast

i started my daughter on a gluten free diet 5 days ago, she was feeling great until today. she started complaining of her stomach and head hurting again....i have been really careful what i give her to eat. i did however make some gluten free bread for the first time last night and today she had her first gluten free macaroni and cheese, i took the cheese packet from a kraft mac and cheese box and used gluten free rice noodles.....that is the only 2 different things i have done today, could it be one of those things that i fed her that did this to her???

First did you get new colanders /strainer as mentioned above this is an item almost impossible to decontaminate fully ?

Although the cheese packet contents are gluten-free, the pasta that it was boxed is in not. Could any pasta crumbs have gotten into your pasta ?

Has she had Gluten free bread prior to you making this loaf ? If not some people have reactions to xantham gum ! which brand was it you made ?

ksmama Rookie

First did you get new colanders /strainer as mentioned above this is an item almost impossible to decontaminate fully ?

Although the cheese packet contents are gluten-free, the pasta that it was boxed is in not. Could any pasta crumbs have gotten into your pasta ?

Has she had Gluten free bread prior to you making this loaf ? If not some people have reactions to xantham gum ! which brand was it you made ?

I bought a new colander, and the bread was bobs red mill brand...

pricklypear1971 Community Regular

In the beginning, lots of weird things are going to happen. Don't sweat the single occurrence, look for patterns.

I'd watch milk, assuming that Mac n cheese has milk in it not soy, etc. or, it could just be one of those days.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kelleybean Enthusiast

My first thought is the Kraft cheese packet since it was touching the pasta - maybe some cc. Annie's makes a gluten free boxed mac and cheese - I get mine in Target for a lot cheaper than the grocery store. Also Amy's has a frozen gluten-free mac and cheese that we keep in the freezer for emergency dinners.

krystynycole Contributor

I use the packet from regular mac and cheese all the time time without a problem because I don't care for Amy's noodles. I am also super sensitive and never have any problems just because the outside of the packet touches the noodles.

ksmama Rookie

Well she did much better today, she did get a headache but no stomachache and she was not gassy all day. She had gluten free, milk free pancakes for breakfast, salad with ham and carrots for lunch, kettle chips for a snack and rice and beans with raisins for dinner and kinninick(sp?) gluten free cookies for dessert.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,811
    • Most Online (within 30 mins)
      7,748

    doodlebubbles
    Newest Member
    doodlebubbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.