Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Loss Of Appetite


GaryR

Recommended Posts

GaryR Newbie

Ok, some background first.

My new partner had an eating problem when we met. I diagnosed it and was confirmed by the doc's as Celiac. Her defense mechanism then was "dont eat, no pain". That was last October,after that the pains and bloating started to go and we both started to eat Gluten free. We are just starting to live together and are planning a gluten free kitchen.

This February she had a spell in hospital due to Uterus and Ovary problems linked to cervical cancer 25 years ago. 4 weeks on a drip and not eating left her drained. When she was allowed to eat, everything came back up, food pills etc. The defense was then "dont eat, wont be sick". She eventually got through this as there was no medical reason for it, so she started to eat as it was the only way to get out of hospital. Now she has no appetite at all, turns her nose up at all food and eats begrudgingly. Her taste buds are shot,everything tastes sweet. Only drinks water. no tea, coffee fruit juice.

Mouth dry's up every night, has constant sick feeling after very small meals and it feels like it is sitting high up in the stomach. Feet are constantly cold.

She got a dieticians letter from the hospital and binned it but I've convinced her to at least listen to them.

She still feels not eating is the answer to everything though.

Any help, idea's, theory's greatly appreciated.

Regards

Very worried partner.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Ok, some background first.

My new partner had an eating problem when we met. I diagnosed it and was confirmed by the doc's as Celiac. Her defense mechanism then was "dont eat, no pain". That was last October,after that the pains and bloating started to go and we both started to eat Gluten free. We are just starting to live together and are planning a gluten free kitchen.

This February she had a spell in hospital due to Uterus and Ovary problems linked to cervical cancer 25 years ago. 4 weeks on a drip and not eating left her drained. When she was allowed to eat, everything came back up, food pills etc. The defense was then "dont eat, wont be sick". She eventually got through this as there was no medical reason for it, so she started to eat as it was the only way to get out of hospital. Now she has no appetite at all, turns her nose up at all food and eats begrudgingly. Her taste buds are shot,everything tastes sweet. Only drinks water. no tea, coffee fruit juice.

Mouth dry's up every night, has constant sick feeling after very small meals and it feels like it is sitting high up in the stomach. Feet are constantly cold.

She got a dieticians letter from the hospital and binned it but I've convinced her to at least listen to them.

She still feels not eating is the answer to everything though.

Any help, idea's, theory's greatly appreciated.

Regards

Very worried partner.

It sounds like she's had a rough time? A lot of us tend to equate eating with pain, but we have to eat! It's important to find safe foods that are nutricious. Fruits, veggies, non-processed meats, eggs, nuts, are all good for us. It's best to avoid milk/dairy at first.

Some of her not wanting to eat can come from vitamin/mineral deficiencies. Did she have a Dr. run a blood panel to check her levels?

It's common for Celiacs to be low on B vitamins, especially B12, D, and iron. Cold feet could point towards low iron levels?

Probiotics help food digest and digestive enzymes really help at first too. Adding these should help food digest and not just "sit there" making her feel uncomfortable. Fish oil is an anti-inflamatory that most people benefit from too.

She's lucky she has you on her side. Ask to have the blood tests done if they haven't been, and look for gluten free supplements. She will probably need them until she heals and can eat more?

rosetapper23 Explorer

Like the previous poster, I agree that she may be suffering from nutritional deficiencies (especially B vitamins). There is also the possibility that she is reacting to any hormonal treatment she may have been given in the hospital or afterward. Is she on some type of hormonal treatment for her previous bout with cancer? I can state from experience that when women's hormones are messed with, we can have very bad reactions that particularly affect our appetite and digestion. When certain hormones are low, there can be malabsorption of Thiamine, which can cause all the symptoms you described. However, she may be reacting to ANY medication that she's been given....or reacting to a low-hormone situation where she needs some kind of supplementation. By the way, were her medications checked for gluten?

In the interim, she should attempt to eat some healthy saturated fats to help her absorb fat-soluble vitamins. Good choices would be avocados, nut butters, organic butter, and olives.

You might wish to examine the list of common symptoms of nutritional deficiencies at this website:

Open Original Shared Link

I would like to echo the sentiments above, too, in that your sweetheart is very fortunate to have someone looking out for her and who has her best interests at heart.

Bubba's Mom Enthusiast

Just a note if you look at the chart of vitamin deficiencies..when you see anorexia listed, that means a person doesn't want to eat..not the kind of anorexia where people starve themselves because they think they are fat. :D

Skylark Collaborator

You mention a hospitalization. Was she put on antibiotics? As well as vitamins she may need probiotics. Having your digestive system messed up with antibiotics can cause all sorts of unpleasant problems and make food not sit well at all. Get her something good like Ultimate Flora. :)

  • 3 weeks later...
terikit Newbie

I was diagnosed with Celiac disease in October 2011 after 4 months of stomach burning, nausea and vertigo symptoms.

I have been following a strict gluten free diet, but am still having stomach pain and a sensation of always having a full stomach even after driving a glass of water.

I sense that things just are not processing well in my stomach. I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

IrishHeart Veteran

I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

We have discussed this many times on here and everyone seems to have a "favorite" :lol:

Some good ones are:

Ultimate Flora

Custom Probiotics

Culturelle

and yes, a celiac gut needs them. Hope it helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 months later...
GaryR Newbie

I was diagnosed with Celiac disease in October 2011 after 4 months of stomach burning, nausea and vertigo symptoms.

I have been following a strict gluten free diet, but am still having stomach pain and a sensation of always having a full stomach even after driving a glass of water.

I sense that things just are not processing well in my stomach. I have read several discussions that indicate that a probiotic may be needed to re-balance the flora in my stomach. Is there a brand or type that provides the best results?

We had similar issues.......check the toothpaste/make-up/ shampoo/ bubblebath. I know it may sound strange but as someone pointed out to us your skin is porous, thats how Nicotine patches work.

Gary.

  • 2 weeks later...
AmyB22 Newbie

Just a note if you look at the chart of vitamin deficiencies..when you see anorexia listed, that means a person doesn't want to eat..not the kind of anorexia where people starve themselves because they think they are fat. :D

So happy to read this comment. I just replied to a weight loss comment mentioning medical anorexia as explained by my dr.

Thank you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.