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kevbogreen

By kevbogreen
in Coping with Celiac Disease

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kevbogreen Newbie
kevbogreen
Posted

Hi...my name is Kevin im 16 and i live in Arkansas...i just found out that i have celiac diease...and i was j/w if it was hard to cope with or easy to mannage? I would apprecate ur responses...

Kevin

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skoki-mom Explorer
skoki-mom
Posted

Hi Kevin,

I'm new to all this as well. Just wanted to say welcome and I'm sure you'll find some good information and support here. It's been pretty overwhelming the last week for me, but I'm doing ok and finding there are lots of gluten-free products to try, and of course the naturally gluten-free food as well! So far I'm not starving!

tarnalberry Community Regular
tarnalberry
Posted
Hi...my name is Kevin im 16 and i live in Arkansas...i just found out that i have celiac diease...and i was j/w if it was hard to cope with or easy to mannage? I would apprecate ur responses...

Kevin

<{POST_SNAPBACK}>

Welcome to the board. I'm sorry you need to be here, but glad you found us.

As for how hard celiac disease is to cope with, it pretty much depends on how well you cope with the diet. And that varies widely. If it means that you have to greatly change your eating habits, and you also are very uncomfortable being "different" from the crowd, it'll be harder than if neither of those is true. But it's a learning curve, and it'll take some time to learn and adjust to the diet.

Are your parents supportive of the diet and will be helping you keep the kitchen/food safe?

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome to the board.It is very easy to manage as long as you are 100% gluten free...if you stay gluten free you are good to go. You have to be extremely careful. It may seem a bit overwhelming at first because gluten is hidden under so much but then you'll see how much we can still have and good substitutes for the stuff we now can't have. If you need any info or someone to talk you can contact me anytime. I am 18 and I was diagnosed when I was 16 too.

It can be hard, especially at first, when people make comments about it...some people do not understand it.

kevbogreen Newbie
kevbogreen
Posted
  • Author

yea my parents have been supportive so far...but its only been about a week since i found out...so i dont know how far they will go...thanks for eveyones responses...

Kevin Green

Cindy Chabot Newbie
Cindy Chabot
Posted

Hi Kevin

I have been recently diagnosed along with my 16 year old son. There are a lot of gluten-free choices available which help to make dealing with this disease easier. The hard part is going to restaurants or just out with people, you have to be careful not to be glutened. I have found this forum an excellent place to find out information. My son is finding the diet not to bad to deal with. I hope you find some gluten-free food that you like.

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      Gluten free beer ?

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      By cristiana · Posted

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    • Mari
      New here

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      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
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