Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

At My Wits End. Pain!


GFreeMO

Recommended Posts

GFreeMO Proficient

Well, I gave in and tried my dairy intolerance yet again. I don't know why I thought it would be any different this time. I have been gluten free for 3 years. They said that I would be able to add back dairy after 6 months. I think I am one of those celiacs who wont ever be able to have dairy again. I started out slowly...Just a little milk in my coffee. That was ok at first but it seems like after a week of doing it, it has built up and caused a horrible reaction. I have cold sores, can't get enough water, backache, severe intestinal pain. Mucus in stool (when there is any) I honestly feel very similar to when I am glutened. Horrible. I guess I react to gluten, corn and dairy all with the same symptoms. I think the last straw was today at lunch, I drank a juice glass of milk. I have the glass in the intestines feeling that I get from being glutened. (I know I wasnt glutened) Can casein feel like this too? It hurts...ugh.

Can casein cause an autoimmune response like gluten does because this is not a lactose issue I am sure.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

Also, can casein cause joint pain like gluten does?

Bubba's Mom Enthusiast

Also, can casein cause joint pain like gluten does?

According to an article I found on the site here, dairy can cause villi flattening, which would give you the same feeling as gluten.

https://www.celiac.com/articles/50/1/Main-Causes-of-Flattened-Villi/Page1.html

I'm so sorry..but it looks like you may have to stay dairy free? :(

GFreeMO Proficient

According to an article I found on the site here, dairy can cause villi flattening, which would give you the same feeling as gluten.

https://www.celiac.com/articles/50/1/Main-Causes-of-Flattened-Villi/Page1.html

I'm so sorry..but it looks like you may have to stay dairy free? :(

Thanks for posting that article. It makes sense now. I guess I am going to join the no dairy ever club! B)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,199
    • Most Online (within 30 mins)
      7,748

    Andrea Spencer
    Newest Member
    Andrea Spencer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.