Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Results Of Going Off Gluten

marys2012

Recommended Posts

marys2012 Rookie
marys2012
Posted

If you have celiacs or are gluten intolerant how does it feel? Let me specifically add my symptoms that I have. I do not have chronic diarrhea but do get constipation a lot and have issues with nausea after eating. I also get gas and bloating with fatigue. I have been diagnosed with ibs-d and fibromyalgia. If I were to go gluten free how would I know if it was working? Obviously, I would feel better. But should I expect a complete turn around and to feel great? Would my fibromyalgia be expected to go away? I am contemplating going on to get an endoscopy, but right now have some other medical bills coming in plus I am about to get a laparoscopy for something else I have going on. So I have medical bills coming in and am not sure I want to pursue an endoscopy at this time. But I can go gluten free to see if I feel better. (well, I have been gluten free for about 8 days now I think.) I still feel achy, but my constipation has improved a bit and nausea has gotten a lot better. Fatigue is still there but that could be due to some other pain issues I'm having. Plus I guess I could still have fibromyalgia plus celiacs or gluten intolerance. But my main question is what should I be feeling and how long should it take before I start to see major improvement? I am not one to expect a miracle. I don't expect I'll ever feel like I did before my health problems started, but I also want to understand what to expect. And need to decide if I should get further testing in the future. When I got the celiacs blood work done my Deamidated Gliadin Abs, IgA was high. It was 76 and over 30 was considered high. My doctor said it was a false positive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beachbirdie Contributor
beachbirdie
Posted

If you have celiacs or are gluten intolerant how does it feel? Let me specifically add my symptoms that I have. I do not have chronic diarrhea but do get constipation a lot and have issues with nausea after eating. I also get gas and bloating with fatigue. I have been diagnosed with ibs-d and fibromyalgia. If I were to go gluten free how would I know if it was working? Obviously, I would feel better. But should I expect a complete turn around and to feel great? Would my fibromyalgia be expected to go away? I am contemplating going on to get an endoscopy, but right now have some other medical bills coming in plus I am about to get a laparoscopy for something else I have going on. So I have medical bills coming in and am not sure I want to pursue an endoscopy at this time. But I can go gluten free to see if I feel better. (well, I have been gluten free for about 8 days now I think.) I still feel achy, but my constipation has improved a bit and nausea has gotten a lot better. Fatigue is still there but that could be due to some other pain issues I'm having. Plus I guess I could still have fibromyalgia plus celiacs or gluten intolerance. But my main question is what should I be feeling and how long should it take before I start to see major improvement? I am not one to expect a miracle. I don't expect I'll ever feel like I did before my health problems started, but I also want to understand what to expect. And need to decide if I should get further testing in the future. When I got the celiacs blood work done my Deamidated Gliadin Abs, IgA was high. It was 76 and over 30 was considered high. My doctor said it was a false positive.

Your doc is an idiot. The deamidated gliadin test is very specific, highly accurate. False positives would be very rare. Why on earth would your doctor say your test is a false positive? What other tests did your doc do? A ttg would have been useful as well as anti-EMA.

Your test suggests the need to be gluten free, and I would imagine you would feel a lot better. The time table for improvement is quite variable from one person to the next, some people feel better in days, others take months. No one can predict for sure what your course would be.

If you are wanting to get an endoscopy some time in the future, you would need to be consuming a fair amount of gluten for a fair amount of time before having that test.

Hopefully one of the forum members with greater understanding will be along soon to help you a little better.

Wishing you the best!

birdie22 Enthusiast
birdie22
Posted

Many of your symptoms are similar to mine (bloating, nausea, fatigue). With a positive dgp test I'd say so long to gluten for good. If you did want to do the endoscopy you'd need to remain on a gluten rich diet for accurate results.

It will take a while being gluten-free to see positive improvements to all symptoms. While some say they feel great within a week many others say it took months to a year to see real consistent progress.

Type1CDE Newbie
Type1CDE
Posted

I second the idiot doc comment (: mine was clear that it is very specific to celiac and that it wouldn't be caused by anything else...

Skylark Collaborator
Skylark
Posted

When I got the celiacs blood work done my Deamidated Gliadin Abs, IgA was high. It was 76 and over 30 was considered high. My doctor said it was a false positive.

On what basis did he decide it was false positive? Is this the same idiot who diagnosed you with IBS-d? Around here we say IBS stands for "I Be Stumped". It's often caused by celiac. DGP-IgA is about 85% specific, meaning there is a better chance than not that you are celiac.

As far as improvement, there will be a lot of slow changes. It takes time for your digestive system to heal, then more time for you to absorb and incorporate all the vitamins and minerals you're missing. Your thyroid function may improve, which will likely help the fibromyalgia. This all takes place over a timeframe of months to years, not days or weeks.

marys2012 Rookie
marys2012
Posted
  • Author

Lol-lol-lol!!!! I love it! I do take this seriously and am very concerned about being told I have had a false positive. But I do agree that my doctor may be an idiot! I think I am going to go back to my pcp and ask her to send me to another gastro doctor for a second opinion. And yes Skylark, this is the same doctor that said I had ibs.

marys2012 Rookie
marys2012
Posted
  • Author

I should add that I did get all of the other blood tests you can get for celiacs and they all came back negative, except for the one mentioned above that was positive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beachbirdie Contributor
beachbirdie
Posted

I should add that I did get all of the other blood tests you can get for celiacs and they all came back negative, except for the one mentioned above that was positive.

It is common for people to test positive on only single tests. Doesn't make them any less positive!

Good luck!

beachbirdie Contributor
beachbirdie
Posted

Sorry for the duplicate post. Don't know what happened!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    2. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    3. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
    4. pothosqueen
      - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

      26F!
    5. pothosqueen
      - pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Celiac for dummies

      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,012
    • Most Online (within 30 mins)
      7,748
    jsslynjnes25
    Newest Member
    jsslynjnes25
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
    • pothosqueen
      Celiac for dummies

      By pothosqueen · Posted

      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    • trents
      Positive biopsy

      By trents · Posted

      Would it be rude to ask your age?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.