Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could It Be I'm Still Not Healing


coffeetime

Recommended Posts

coffeetime Explorer

I have been gluten-free for a couple of years now, all of my cooking is gluten-free and I rarely go to restaurants or eat at friends. My dr. called and wanted to do blood work just to check on my thyroid and just general health. Today her nurse called to set up a follow up but she's going to be out of the office for a couple of weeks. The nurse was kind enough to email me a copy of my results. My anion gap was low at 6.4, my triglycerides were 32, overall 154 and HDL at 74, LDL was 59. I need to lose about 25 lbs, and eat pretty high fat/protein. Health wise I'm super tired, my bones in my lower legs a lot and often wake me up at night ( my VIT D was 40, so I ruled that out) and the muscles in my quads really hurts when I go up or down stairs (new and surprising since I've always walked a lot). Is it possible that my small intestine is stilled not healed to explain the low tri numbers? Does anyone know anything about the anion gap? Thanks everyone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nursenation2 Rookie

Without the rest of your labs the anion gap is hard to say. It isn't a stand alone result. On occasion a low anion gap can mean you have taken a lot of a bi carb such as meds for acid reflux like maalox. It can be a part of a low albumin but you didn't mention that. Usually if it was that (too little protein either from malabsorption or malnutrition) low your anion gap would be much lower. Like a lot of the folks on this site say I would have your thyroid checked thoroughly, not just your basic test.

dilettantesteph Collaborator

I don't think that cholesterol results would tell if you are healing or not. You could ask for a celiac panel or better yet, a repeat endoscopy to get that information.

krystynycole Contributor

I don't know about low tri numbers or the anion gap, but I can tell you that once a month right before my cycle I get very sore quads. Could it be a low level of some sort of hormone due to your thyroid? Now i'm not sure if "coffetime" is male or female, but either way, both genders go through a hormonal cycle. (For example, my students, even male, on seizure meds always change side effects the same one week in the month). Like I said I don't know about the tri numbers or anion gap, but just a thought related to your thyroid.

coffeetime Explorer

Thanks for all the replies everyone. My TSH was 1.92 and the Albumin was normal. I guess I was associating the low cholesterol with low fat absorption (thus low rate of absorption of fat soluble vitamins)The only abnormal numbers were low WBC 3.4 (range 4.8-10.8) Low segmented neutrophil 44 (range 50-70) and high lymph 54 (20-40). My B12 was high at 998 (range 211-946) which is a little odd as I haven't been very consistent in remembering to take my vitamins every day.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,563
    • Most Online (within 30 mins)
      7,748

    dilys.jones53
    Newest Member
    dilys.jones53
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.