Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Balance And Falling


Songbird1976

Recommended Posts

IrishHeart Veteran

Looks like Sherry Lynn's may well have been the first, but others have sprung up. That's awesome!

Just to clarify: Sherry's is not just a bakery. They offer full meals, baked goods and products. Her equipment was all new, never used in a restaurant before. Pristine :lol: No one can bring any food or beverages in--not even the employees. :) No CC here!!

I started looking at the links you provided--thanks.

The one in Colorado (yum)and the one on Cape Cod (YUM again--and I could get to that one, at least!) sure appear to be totally gluten-free full menus restaurants!?

Thanks for posting, Joe.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lady Eowyn Apprentice

Hello there

Don't know if i'm too late too reply to this thread or not - not really used to this posting lark or using a forum.

However, was interested to read this as I too have balance issues. Haven't fallen or anything but before gluten free or when cc'd or of course, fallen off the waggon slightly (still learning and occasionally struggling) I get a bit off balance. Very similar to being under alcohol influence! Tends to go hand in hand with being very spaced out so must be a brain issue. I also think bread bakeries affect this too.

As for restaurants - we sometimes go to one my son works for so they are kindly very careful for me but I still get glutened every time :unsure: think it's the flour, etc in the kitchen - that little!!

Apologies in advance if I'm doing anything wrong with the post.

Songbird1976 Rookie

Thank you to everyone who posted on this topic. It was a great resource and of great comfort to me. Much appreciated.

:)

Songbird1976 Rookie

Hello there

Don't know if i'm too late too reply to this thread or not - not really used to this posting lark or using a forum.

However, was interested to read this as I too have balance issues. Haven't fallen or anything but before gluten free or when cc'd or of course, fallen off the waggon slightly (still learning and occasionally struggling) I get a bit off balance. Very similar to being under alcohol influence! Tends to go hand in hand with being very spaced out so must be a brain issue. I also think bread bakeries affect this too.

As for restaurants - we sometimes go to one my son works for so they are kindly very careful for me but I still get glutened every time :unsure: think it's the flour, etc in the kitchen - that little!!

Apologies in advance if I'm doing anything wrong with the post.

Hello Lady Eowyn,

Thank you for sharing (which is always great)! Hope you feel better soon.

:)

thleensd Enthusiast

What a great conversation. It's nice to have people to relate to! So many "atypical" issues here that are simply "just" Celiac. I feel like I'm always looking for more answers to fix my fatigue, aches, brain fog... I will continue to do so, but more than likely what I need is time-time to eat good, nutrious food. Time to rest. Time to understand my body and know that "more exercise to get in shape" isn't always the right answer! Some days I can only walk a few minutes at a time. Others more than an hour!

Last night I was teaching/directing my Tuesday night music group (adults)... There was a point in time (happens periodically!) when I just couldn't make my mouth say what my brain wanted it to! Fortunately, they've seen it before and we can generally just laugh about it. It's like oral ataxia...my tongue and lips just can't quite get their balance. :) (yes, I just made that up!) It's funny because most of them are at least twice my age, yet we have many of the same body-is-betraying-me type of experiences. In my case, however, I'm VERY hopeful that it is a temporary condition. What a painstakingly slow process recovery is for some of us!

And on that thought... Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Cheers.

ravenwoodglass Mentor

And on that thought... Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Cheers.

:D:D:D

I often say patience is the only good thing that came out of my years of illness.

I had the speech problem also. I used to be a chef and I had helpers that were suppposed to do my pulls for orders. By the time I could actually ask for what I needed I could pull it myself three times. I couldn't even tell you what a fork was if you held it up in front me. I am so glad that did resolve for the most part after I had been gluten free for a while.

IrishHeart Veteran

Never ask the universe for patience. It just may give you the "opportunity" to develop it.

Truer words were never spoken!!! I was always patient with students, children, the elderly....but after all I have faced in the last 5 years, I have the patience of a saint now.

I have a PhD in patience. I have a gold medal in patience...ok, you get it. :lol: :lol: :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,556
    • Most Online (within 30 mins)
      7,748

    Majesticrb
    Newest Member
    Majesticrb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.