Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are There Any Blood Tests If I'm Already gluten-free?

erikamarie87

Recommended Posts

Skylark Collaborator
Skylark
Posted

Skylark, quick question by eating Lamb (or turkey), rice, and pears how is this a classic allergy eliminator? Would you suggest eating just these 3 things for some time???...I guess I'm a little confused?..Thanks again for your help :)

They are foods that people are not commonly allergic to. Lamb is the least common allergy, but turkey allergy is relatively uncommon and it's a lot cheaper if the cost of lamb is an issue. If you suspect fructose intolerance (bloating, diarrhea, flatulence, nausea, reflux) you might eat lettuce instead of the pears.

Eat only those foods for at least a week, if things start to improve then stay on them until you get a few good days in a row. It took me a week to start to feel better, two weeks to where my stomach had really settled down. Then you can start to introduce new foods one at a time. You add the food, eating a few servings of it over a day or two and watch at least 48 hours for a reaction. If that goes OK, add another. Keep a diary as you go in case something gets confusing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


erikamarie87 Newbie
erikamarie87
Posted
  • Author

They are foods that people are not commonly allergic to. Lamb is the least common allergy, but turkey allergy is relatively uncommon and it's a lot cheaper if the cost of lamb is an issue. If you suspect fructose intolerance (bloating, diarrhea, flatulence, nausea, reflux) you might eat lettuce instead of the pears.

Eat only those foods for at least a week, if things start to improve then stay on them until you get a few good days in a row. It took me a week to start to feel better, two weeks to where my stomach had really settled down. Then you can start to introduce new foods one at a time. You add the food, eating a few servings of it over a day or two and watch at least 48 hours for a reaction. If that goes OK, add another. Keep a diary as you go in case something gets confusing.

Wow thanks for the advice! :D Would you suggest doing this before going on the GAPS or SCD or would it be pointless then?...My only concern is I feel I need to heal my gut...What's your take on this? I guess I'm confused because what if I'm intolerant to the foods suggested on these diets? How would I know if the diet was ever truly working or not if I could possibly be intolerant to a food listed on the diet but yet didn't know?...I guess I just don't know where to start?...I've been keeping a food journal and seem to have found I'm intolerant to corn :/ ...that's a tricky one I think...I'm also finding that soy is a problem and I'm already lactose intolerant. So if this is the case than what would I put in place of these(for example)if called for on the diet?..Would the diet still be affective if I was to change it up a bit?...I was reading on the SCD that the foods that are legal are for the reason being the chemical makeup of them together, etc was why the diet is so effective with the healing process. Would it be safe to say if I went on the Gaps for instance and healed my gut that I wouldn't be as intolerant to many of the foods I'm finding I am? I feel like I need some sort of guidance and starting point to move along with my healing process. If you could give me any and all the advice you could that would be WONDERFUL as I think you're very intelligent on this matter and I can sense your trustworthiness and honesty. ;) You've been such a Great Help I can't thank you enough!! Also I get a better understanding when I have a book in front of me so I can refer to it when needed. Do you suggest any that would help? I have "Breaking the Vicious Cycle", and am currently looking at ordering the "Gut and Psychology Syndrome" as well as the "Management Of Celiac Disease by Sidney Valentine Haas...but if I should stick to the GAPS diet I would like to find some others as well that would be of much help. I know I'm asking a lot here. :/ Thanks again!

ravenwoodglass Mentor
ravenwoodglass
Posted

If you suspect you may have multiple intolerances you could see an allergist who will help you with a starting point for an elimination diet. Not all allergists deal with intolerances so do ask before you make an appointment. Typically the doctor will take a detailed history of all the foods you usually eat and then give you a starting point with about 5 foods that will give you adaquate nutrition and calories. My allergist was the one who pinpointed celiac and then referred me back to my clueless GI for confirmation. I hope you are feeling better really soon.

erikamarie87 Newbie
erikamarie87
Posted
  • Author

If you suspect you may have multiple intolerances you could see an allergist who will help you with a starting point for an elimination diet. Not all allergists deal with intolerances so do ask before you make an appointment. Typically the doctor will take a detailed history of all the foods you usually eat and then give you a starting point with about 5 foods that will give you adaquate nutrition and calories. My allergist was the one who pinpointed celiac and then referred me back to my clueless GI for confirmation. I hope you are feeling better really soon.

Thanks for your input :) I seen an allergist about 4 years ago and they tested me for EVERY food allergy and of course they all came back normal but as you said they don't all deal with food intolerance's. I'm skeptical even trying to go somewhere else b/c ALL docs seem to think it's all in my head! I'm sooooo tired of it! :( I recently went to my doc for my Fatigue and she basically said she couldn't do anything about it so referred me to a GI, who I see on the 16th. Do you have any suggestions as far as tests he could perform as far as looking at the actually damage to my gut or if I'm absorbing nutrients, minerals correctly? All my blood tests seem to be 'normal' as they say... <_<

fannyarbuckle Newbie
fannyarbuckle
Posted

I have a question about testing. 2 years ago I tested positve, according to my doctor, with a gluten intolerance. This week i went in with an order to have a celiac panel. Today the dr. said that the results were negetive but he wants me on allergy serum because I tested positive to skin test to garlic and apricot. The test results from what I can read- I asked for a copy- Shows only the IG antibody, IgA 3.26 and then again -IgA 186. I have a sister who was diagnosed by biopsy 20 years ago and another sister diagnosed by blood and biopsy 2 weeks ago.

I definitely feel better on a gluten free diet. I have IBS (diarrhea and constipation, cramping, nausea, fatigue and headaches and had gallbladder removed due to a stone). I am hypothyroid and have tested positive for arthritis. I have not been to a gasto or an enterologist, but have appointments at the end of the month. Should I bother? There is a family history of thyroid, psoriasis, celiac, colon cancer, diverticulits, diverticulosis, stomach ulcers and gallbladder disease. I ate gluten for about 5 days before the last blood test and just a little off and on for the months prior. Not everyday but a little on the weekends. Did that skew the test? The test I took 2 years ago also was done right after I had been avoiding gluten for awhile. I am so confused. Someone even said it was in my head!

mushroom Proficient
mushroom
Posted

I have a question about testing. 2 years ago I tested positve, according to my doctor, with a gluten intolerance. This week i went in with an order to have a celiac panel. Today the dr. said that the results were negetive but he wants me on allergy serum because I tested positive to skin test to garlic and apricot. The test results from what I can read- I asked for a copy- Shows only the IG antibody, IgA 3.26 and then again -IgA 186. I have a sister who was diagnosed by biopsy 20 years ago and another sister diagnosed by blood and biopsy 2 weeks ago.

I definitely feel better on a gluten free diet. I have IBS (diarrhea and constipation, cramping, nausea, fatigue and headaches and had gallbladder removed due to a stone). I am hypothyroid and have tested positive for arthritis. I have not been to a gasto or an enterologist, but have appointments at the end of the month. Should I bother? There is a family history of thyroid, psoriasis, celiac, colon cancer, diverticulits, diverticulosis, stomach ulcers and gallbladder disease. I ate gluten for about 5 days before the last blood test and just a little off and on for the months prior. Not everyday but a little on the weekends. Did that skew the test? The test I took 2 years ago also was done right after I had been avoiding gluten for awhile. I am so confused. Someone even said it was in my head!

Hon, I am sure it is not in your head. You have to be eating a full gluten diet for celiac testing to be reliable. And it has to be continuous for at least two months, preferably three, the equivalent of 3-4 slices of bread a day. You body only makes antibodies when exposed to gluten, and the blood test is searching for antibodies, so no gluten = no antibodies and negative results.

With your family history, and personal history of GI symptoms, fatigue, headaches, gallbladder problems, hypothyroid, arthritis,psoriasis, I would guess you are most definitely celiac. But you cannot prove it if you were not eating gluten continuously and in sufficient quantity for long enough When you say you were tested positive for gluten intolerance two years ago, were you diagnosed as celiac? Because as of now there is no specific testing for gluten intolerance - they are working on it. If you were diagnosed as not being able to eat gluten two years ago, nothing has changed: you are still unable to eat gluten and you need no more testing.

And what on earth is "allergy serum"??? Never heard of it. Can you be more specific what he is asking you to take? Because the only cure for gluten intolerance is not to eat gluten. Period. .

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.