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Stubborn red head

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Stubborn red head Apprentice
Stubborn red head
Posted

When I was 16, I had been in and out of hospitals for a number of reasons for two years. My mother and a team of doctors felt that it was worth a shot on the gluten-free diet I tried it felt good the first few weeks then got to the point that no mater how many Vitamins I took I was always tired. I worked at Wendy's and didn't eat there because of CC. I would still come home and sleep 12-14 hours wake up an hour or so before I had to be at work, only to come straight home and go right back to bed. We went back to the doctor and my pediatrician recommended that I go back on gluten, to see if I got my energy back. Of course my mother was outraged and got my medical records right then I never seen him again. I ended up moving to my grandparents and went back on gluten. I felt like a normal person again. My grade shot through the roof normally a C student I was bringing home a 4.0, working 20-30 hours a weeks and I was involved in two clubs at my high school.

Now its complete opposite. I was sleeping anywhere from 9-13 hours and couldn't hardly concentrate. Now gluten-free and 26 I feel like I am 16 again. I have energy to burn, I am more productive at work than ever, and I am sleeping 6-8 hours a night waking up refreshed... Whats the difference. Why now, what has changed in my body that makes such a difference.

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Bubba's Mom Enthusiast
Bubba's Mom
Posted

When I was 16, I had been in and out of hospitals for a number of reasons for two years. My mother and a team of doctors felt that it was worth a shot on the gluten-free diet I tried it felt good the first few weeks then got to the point that no mater how many Vitamins I took I was always tired. I worked at Wendy's and didn't eat there because of CC. I would still come home and sleep 12-14 hours wake up an hour or so before I had to be at work, only to come straight home and go right back to bed. We went back to the doctor and my pediatrician recommended that I go back on gluten, to see if I got my energy back. Of course my mother was outraged and got my medical records right then I never seen him again. I ended up moving to my grandparents and went back on gluten. I felt like a normal person again. My grade shot through the roof normally a C student I was bringing home a 4.0, working 20-30 hours a weeks and I was involved in two clubs at my high school.

Now its complete opposite. I was sleeping anywhere from 9-13 hours and couldn't hardly concentrate. Now gluten-free and 26 I feel like I am 16 again. I have energy to burn, I am more productive at work than ever, and I am sleeping 6-8 hours a night waking up refreshed... Whats the difference. Why now, what has changed in my body that makes such a difference.

I don't know if this is the case for you..but I had spells where my Celiac symptoms went into remission for a time.

This was many years before I was DXed with Celiac. I'd have spells where I was sleepy/exhausted no matter how much I slept, and then out of the blue I'd feel just fine.

I'd have spells where I had a lot of digestive issues and then they'd just clear up for a while too.

I know others have had these periods of "remission" too.

Victoria6102 Contributor
Victoria6102
Posted

Before I was diagnosed, I would be sick for 3 months and then feel ok for maybe a week( those were the best weeks of my life, that was when I remembered what it felt like to feel normal) but then sure enough the next couple weeks passed and BOOM back to being sick. That went on for five years before I was diagnosed. I can't eI plain why that happens to a lot of us though :P

Cara in Boston Enthusiast
Cara in Boston
Posted

I'm pretty sure I read somewhere that your symptoms can seemingly disappear for months or years, but the damage is still being done (internally) and you are still at a higher risk of developing associated autoimmune disorders. I was reading specifically about teenagers/young adults. People diagnosed as kids, then they cheat (must be hard to be gluten-free as a teen?) and feel fine so they conclude they must have been misdiagnosed. If you are still eating a regular diet now, perhaps you should consider blood tests and biopsy to confirm or rule out celiac disease?

Cara

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