Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems Tolerating Lactaid Tablet?

mamaupupup

Recommended Posts

mamaupupup Contributor
mamaupupup
Posted

Hi all,

Quick question for the lactose-free crowd...has anyone had problems tolerating the Lactaid tablet itself? Our twin who is Celiac and has an incredibly low lactase score seems to be having more stomach pains taking the Lactaid tablet and eating dairy. In fact, she has twice thrown up after the combo of Lactaid tablet and ice cream.

Our plan is to go with lactose free milk/ice creams, etc for now. We are considering taking her off dairy for some time, although we aren't sure what the boundaries are in terms of how to define dairy...etc.

Any thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AVR1962 Collaborator
AVR1962
Posted

You are talking a child so this might not apply. I could not eat dairy and I did try to lactose enzymes. I found the one that you take prior to eating dairy simply did not work for me. The one that you took daily did as long as I took 2 a day. Is it possible to

hat it is not the lactose supplement that is making her sick but that it is not enough and it is causing hr to be sick from dairy?

ravenwoodglass Mentor
ravenwoodglass
Posted

It is possible that she is reacting to casien and if that is the case lactaid tablets would not help. You may want to drop all dairy for a bit, watch out for casien on labels of 'dairy free' items, and see if that helps.

GFinDC Veteran
GFinDC
Posted

Make sure the lactaid tablets are gluten-free. Not all of them are.

tom Contributor
tom
Posted

I don't think she's throwing up from the tablet.

If I were her I'd want to try true dairy-free for a couple weeks at a minimum. (Somehow casein can be in things called non-dairy :wacko: like powdered coffee non-dairy creamer)

Also, it could make sense if an "incredibly low lactase score" correlates to more villi damage indicating a more advanced case which could have a higher probability of celiac-related casein issues. Just spitballin' here.

I don't bet on much, but I'd bet she wouldn't've thrown up if she had the tablet w/out the ice cream.

mamaupupup Contributor
mamaupupup
Posted
  • Author

Thanks Tom!

Yes, I could do the test "Here's a tablet, let's see how you do!"

And, yes, we are about to go dairy free. Newbie question: is there a difference between dairy free and casein free?

And, here are her disaccharidase scores as background:

Lactase 2.2 Abnormal <15

Sucrase 13.4 Abnormal <25

Maltase 56.8 Abnormal <100

Palatinase 2.2 Abnormal <5

Thanks for the help and input!

BTW, this is a kiddo who has vomited a total of 5x in her entire life (she's 5.5) so I'm especially eager to figure it out!

mamaupupup Contributor
mamaupupup
Posted
  • Author

I just dug up my daughter's allergy testing: her Casein IgE came back negative. Does that mean she is not casein intolerant?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ninja Contributor
Ninja
Posted

IgE testing does not test for intolerances. The IgE antibodies are involved in "true" allergies (histamine response(s)

mamaupupup Contributor
mamaupupup
Posted
  • Author

Thanks Laura--that's a BIG help!

I "tested" my little Lactaid puker today...I took her to McDonald's for a vanilla milkshake and didn't give her a Lactaid tablet. No vomit. Hmmm. No belly ache, no bloating, crazy!

Not sure I'm going to test the Lactaid tablet only...I'd have to be out in the backyard with her for an afternoon to be prepped for that one!

runnergirl88 Newbie
runnergirl88
Posted

I know a few people who have become immune to the lactaid pill, but have found great constant relief from something called Digestive Advantage Lactose Defense Formula. I am lactose intolerant as well and found these work nicely and are much more convenient.My friend suffers from sever lactose intolerant and he swears by it!

Hope this helps! I attached a link to show you what it looks like:

Open Original Shared Link

Stay strong! Feel better :D

tom Contributor
tom
Posted

I know a few people who have become immune to the lactaid pill, but have found great constant relief from something called Digestive Advantage Lactose Defense Formula.

...

Open Original Shared Link

Curious about this & the phrase "become immune to the lactaid pill", I clicked the link. The pill is just lactase & a probiotic.

Most ppl w/ digestive issues should think about taking probiotics - or already be taking them, imho - whether lactose intolerant or not.

P.S. Thought it strange that the label http://www.digestiveadvantage.com/images/suppfacts-da-ldf.gif says "Contains Soy", though no ingredient looks suspect to this 5-yrs-soyfree celiac. Are they making maltodextrin from soy now?

Ninja Contributor
Ninja
Posted

Thanks Laura--that's a BIG help!

I "tested" my little Lactaid puker today...I took her to McDonald's for a vanilla milkshake and didn't give her a Lactaid tablet. No vomit. Hmmm. No belly ache, no bloating, crazy!

Not sure I'm going to test the Lactaid tablet only...I'd have to be out in the backyard with her for an afternoon to be prepped for that one!

No problem!

Well that's good that she didn't have a negative reaction

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,569
    • Most Online (within 30 mins)
      7,748
    lizz Z
    Newest Member
    lizz Z
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.