Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

100 (or More) Things To Do When You Are Glutened


Guest BERNESES

Recommended Posts

Guest BERNESES

I'll start:

1. Take a nap

2. Pet your pets or borrow one

3. Call a friend who will listen to you (spread out the wealth)

4. Watch some comedy ( I LOVE John Stewart's Daily Show- so irreverent)

5. Watch Sex and the City

6. Look in the mirror and tell yourself it will pass.

7. Come to this site and vent.

8. Read a magazine you'd never really read (like the National Enquirer)

9. Draft a letter to a company or place you are really grateful too because they either have gluten-free products or labels that won't fool you (mail it later when you have the energy)

10. Make a list of 10 things you are really grateful for.

Who's up next? Thanks, Beverly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

11. Have a really good cry

12. Come to this message board :)

13. Look over my old journals to remember how bad I *was* compared to now.

14. Do some yard work

15. Take a hot bath

16. Go to the sauna

17. Take my dog for a walk

18. Sleep...sleep...sleep (oh was that already mentioned?)

19. Read a good magazine (scrapbooking or People)

20. Listen to music

burdee Enthusiast

I can add a few more ideas:

21. Make a pot of really strong herbal peppermint tea and DRINK IT!

22. Do yoga positions which focus on abdominal area.

23. Put on really loose, comfortable, but attractive, clothes.

24. Drink warm water or herbal tea (besides peppermint) continuously.

25. Ask a family member, housemate or spouse to give you a hug.

26. Vent your feelings in an email to an understanding celiac friend.

27. Watch Funniest Animal Videos.

28. Mentally trace the source of your contamination and vow to avoid (or substitute for) that food or cross contamination incident in your own kitchen or restaurant where you were 'glutened'.

29. Take a hot shower and focus the water stream on the painful area.

30. When/if you feel hungry, ask your stomach what would feel really comfortable and easy to digest and then only eat/drink enough to satisfy hunger.

mandigirl1 Enthusiast

31. Put a heating pad on your stomach.

32. Drink camomille tea.

33. Eat bland food like white rice or potato to "push down" the BM.

34. Vent to someone close to you about it.

35. Write down your feelings in a journal.

36. Have a friend or family member tell you jokes to make you laugh.

37. Play with your pet, if you have one.

38. Retrace back to what you ate and promise to eat healthy.

39. Lay in a fetal position on the bed/couch.

40. CRY!!!!!! Let it all out! You'll feel better!

2old4 Rookie

I hope this edited okay, Mandigirl snuck one in on me while I was thinking, ha, ha!

41. Snuggle up on the couch with lots of pillows.

42. Call your Momma.

43. Drink some Coke, burp big!

44. Thank God we have a reaction so we know we're doing damage (some don't have this)

45. Tell yourself, this bloat will go away, I'm not this fat!

46. Remember, last year (or pre-gluten-free) this happened all the time.

47. Watch that cartoon with your child you haven't had time for yet.

48. Remind yourself, I need to take time like this when I'm not sick, to just relax.

49. Watch "National Lampoon's Christmas Vacation" and laugh like hell!

50. And remember, you're not alone...Thanks Beverly

mandigirl1 Enthusiast

Good ideas!!!!!

LOL about posting our blog at the same time!!!

happygirl Collaborator

I don't have a whole ten to add as mine mainly consists of SLEEPING and....

51. Have your darling significant other give you a massage....it is the only thing that helps my muscle/bone pain temporarily. Even for those w/o the pain, hey, you are still getting a massage from your sweetie! :)

52. After you've called your mom, call your grandma! "Older" people can relate to the chronic pain and are so sweet and caring. Plus, you know you'll get an extra mention in her prayers that day, so that always helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

Reading the suggestion about watching "National Lampoon's Christmas Vacation" (I laugh just thinking about that one) reminded me of another funny movie which I saw BEFORE I learned I was celiac, but while I was continually tormented by loud, embarrassing gas. One especially fitting scene from "Hot Shots Part Deux" featured scuba divers who were trying to sneak underwater past a boat where enemy soldiers stood guard. Just when the divers were passing under the boat, the narrator says "And then it happened ..." and a whole bunch of bubbles float up to the surface from one of the divers. The scene makes it look like those were intestinal gas bubbles. You would expect that the enemy would discover the divers from the bubbles. However the next scene depicts all the enemy soldiers keeling over (fainting) and falling off the boat as the bubbles surface. :lol: So that takes care of the enemy and the divers go unnoticed. The first time I saw that scene, I laughed so hard I was literally rolling on the floor. :D I'll have to rent that movie the next time I suffer a contamination episode. ;)

BURDEE

Guest BERNESES

Oh my God! That's awesome- I've got to SEE that! I did threaten to fart my husband out of the bed last night. I haven't been successful yet, but I've come darn close!

Wow! we're up to 50. That's awesome! Thanks everyone.

Kenster61 Enthusiast

53) have some gluten free chicken soup :P .

Guest BERNESES

Oh yeah!

54. Go watch something you enjoy (have someone take you if you're too tired to get there). I went to a horse show this weekend and it cheered me up so much.

burdee Enthusiast

I noticed we got stuck at #54, so I thought I should add a few more to get this topic rolling again ... ;)

55. As mentioned in my post, watch "Hot Shots Part Deux" for celiac humor. :lol:

56. Call a celiac friend who shares your SAME SYMPTOMS and ask her to 'talk you through the pain' (my best celiac friend makes me laugh during waves of dairy cramps).

57. Look through gourmet gluten-free cookbooks (like Karen Robertson's "Cooking Gluten Free") for ideas to cook when your appetite returns. :blink:

Anybody else have any different ideas? I want to print this topic out when we have 100 ideas, because I will facilitate a discussion at my next celiac support group meeting about 'coping with contamination, confusion and consternation'. We only need 43 more ideas ... :lol:

BURDEE

Guest BERNESES

Thanks Burdee! Good thinking.

58. Fart, fart, fart.

59. Call a friend who doesn't have Celiac's and makes you laugh. I talk to my friend Niki who also has an auto-immune disorder, and she refers to it as "Celeriac's" and we joke about how I wish it was a celery intolerance because I HATE celery.

60. Plan something fun for the first day you feel better.

61. Plan your dream vacation. When I want to escape my body, I go online and research all the places I want to travel in this life. last time, I planned my dream vacation to Paris and you know what, I just might do it.

62. Watch a sappy movie. I just watched "Shall we Dance?" with Richard Gere and JLo and I'll admit it, it made me happy.

63. If you're not too ill, do something nice for someone else.

64. If you can, get a pet- a fish, a cat, a dog. It gives you something to focus on besides yourself and fish are wonderful stress reducers.

65. Tell someone who has been supportive of you during this and tell them how much you appreciate their support.

ponita Newbie

66. Watch Meg Ryan in "French Kiss" have her "lactose intolerance" scene on the train with Kevin Kline. While she's eating the cheeses on the bread, I dying, then when she starts have spasms I'm crying but nothing compares to her walk afterwards, I've been there SO many times until I found out I too was Lactose intolerant.

67. Make something with your hands. I string jewelry and it's great for my mental attitude.

68. Read some of the old classics, such as Tom Sawyer or a Nancy Drew story.

What fun!

Melissa

burdee Enthusiast

The idea about getting a pet reminded me of a few more ...

69. Visit a pet store, even if you don't have time or money to have your own. I especially like whistling at the cockateils and dream of having one someday when I have more time and energy. :)

70. If you're feeling well enough to walk around, go to a local zoo. Nobody will notice when you pass gas, because there are so many animal smells already. :lol:

71. Clean out closets, box clothes to donate, transfer summer to winter storage, etc., if you feel too awful to go anywhere, but don't want to sit and stew.

72. Look online for a local celiac support group or consider starting one of your own. I decided to assume leadership of my local group (which was floundering after our previous leader resigned) when I was sick for a whole week, after cross contamination in my own kitchen. :blink:

BURDEE

YankeeDB Contributor

73. Take deep breaths, breathing in through your nose and blowing out gently and slowly through your mouth. Very soothing and eases pain.

74 Take Immodium if you absolutely cannot have any downtime.

75. Read a good book.

76. Listen to your favorite music.

78. Watch the news -- so many have it so much worse.

79. Indulge in your favorite gluten-free treat food.

80. Lie in a comfortable position and moan and groan.

pogirl1786 Apprentice

81.) Watch too many epsiodes of your favorite show on DVD.

82.) Call your friend who let's you know that it's totally okay to feel awful and cry to let it all out.

83.) Remember other times when you've been so sick and someone has done something nice for you to make you feel better.

84.) As has been mentioned many times- sleep!

85.) Put on your favorite hoodie sweatshirt and sweat pants.

86.) Walk slowly and focus on making it through the next minutes, instead of our usual fast-pace of thinking about things weeks in advance.

87.) Watch or listen to something that makes you laugh so hard you cry.

88.) Buy yourself some more sweat pants.

89.) Cuddle with your pets!

90.) Know that even though you feel absolutely horrible right now, and the pain doesn't seem like it will ever pass- that it will get better!

VegasCeliacBuckeye Collaborator

91. Take a hot bath with sweet smelling soaps to cover the deadly-smelling bubbles

92. Jump in a whirpool with a friend and don't tell them about the gluten incident (gee whiz, this whirpool stinks - haha)

93. Exercise, exercise, exercise -- get the bad stuff through the system and get your metabolism going

94. Healthy Dose of Pepto for the bad days...."the one that coats..."

95. Write the company that glutenized you a nasty letter/e-mail :)

96. Take a trip to Whole foods/Wild Oats/Henry's/Trader Joes to pick something out for later.

97. Massage your belly, Massage your belly, Massage your belly

98. Bake homemade gluten free Mac N Cheese

99. Make Homemade Ice Tea -- Yummy!

100. The last one has to be a good one --- Consumate your marriage or relationship -- Hey, its just like pizza -- even when its pretty bad, its still pretty good !! HAHA

burdee Enthusiast

WOW!!! Thanks everybody. Now I can share these 100 suggestions at my support group meeting in October. We really DO know how to get through those contamination episodes and even learn to prevent future ones! :rolleyes:

BURDEE

FaithInScienceToo Contributor

Just wanted to add a reply to this...

Really, just to keep this post fresh, so am moving it back to the top of the list with my reply, since this is such a good one for the newbies to read.

[Also, am emailing this one to myself, for future reference ;-) ]

Thanks for all of the good ideas!

Gina

Guest BERNESES

Yeah!!!!! We did it! Nice work everyone!

Nicolette Rookie

How about...

Start a cross-stitch kit? The things are so damned complicated at times, it'll take your mind off of anything!

Nikki

FaithInScienceToo Contributor

Just moving this one back to the top again, since it is SUCH a good one for newbies to see... (hope that's OK with the site's Admin) -

Actually, maybe we can have a place where the site admins keeps these kinds of threads - the best ones for newbies? So, we don't have to re-generate the info over and over again....?

Just a thought -

Gina

toxemicfrog Rookie

just finished reading the 100....i sleep sleep sleep, watch vids and usually cos im so crook i go on ebay and look at all the pretty gems and dresses....window shopping from home and i can burp from the backside as much as i want cos its only my dog who smells it and she thinks its great anyway...heheheheeh...im sure she thinks it is channel au de canine hehehehehehehe.

great ways to cope though thanks...am just getting over (3 days off work) an accidental glutening from my own kitchen...am learning though.

have a great day :D

Guest BERNESES

i'm so glad we kept this going!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.