Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going In To Be Tested Today

Mnicole1981

Recommended Posts

Mnicole1981 Enthusiast
Mnicole1981
Posted

I have been pretty sick for two months now. It just got really bad in last two weeks. I have gone to two different ERs where I was told that I had a relative constipation in my ascending colon and that is what was causing the nonstop burning sensation in my upper abdomen. I was put on a Miralax cleanse for a week, to be followed up with stool softener. Bloodwork was fine, no issues with gallbladder. I was told to follow a high fiber diet which I already had in place. Anyway, I did what the ER doc suggested, and still felt crappy. So I was eating oatmeal, Raisin Bran, and Cream of Wheat and I still felt horrible.

I ended up in another ER just this week where they couldn't find the exact problem. They states I could have gastritis or an ulcer. I am scheduled for a endoscopy next week, but I am getting blood tested for Celiac today. Last year I was told I was anemic and advised to take iron pills three timea a day. Shortly after that, I began to get rashes all over my abdomen, arms, and back of my knees. It wasn't until my mom suggested it yesterday that I even considered Celiac disease. I was lactose intolerant as a newborn and more recently found out I was. I also havw an aunt with MS and a cousin with Crohns disease.

Anyway, my question is this. Should I eat something with gluten for breakfast this morning before I go in for the bloodwork to assure a positive test? I had oatmeal two nights ago before not realizing it might be my problem. Would the gluten from that show up in my bloodwork? I would hate to have to eat something with gluten to end up in the ER again. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Do not stop consuming gluten, even though it makes you feel lousy, hon. Sorry, but it is the presence of Tissue transglutaminase antibodies that are measured by blood work. Do not change your diet just yet.

You mention an endoscopy. That will NOT diagnose Celiac.

You need to have a biopsy done while the doctor is down there.

They take several samples of the small intestine so they can see if the villi, which line the gut, are blunted or flat.

Here are the tests explained:

Open Original Shared Link

Finally, tests have their faults and some of us are seronegative, meaning our lab tests were negative, but we have Celiac nonetheless.

Good luck! Hope you get some answers.

Cara in Boston Enthusiast
Cara in Boston
Posted

You need to be eating a sufficient amount of gluten DAILY in the week/months leading up to your tests. Being gluten free, or even gluten "light" for even a short time, can change the results of the tests. Oatmeal probably wouldn't be sufficient as it is naturally gluten free and only off limits to celiacs due to cross contamination with wheat.

Cara

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

I have also had Raisin Bran, some whole wheat tortillas, Sunchips, deli thins a lot since this has all started. Again not knowing it could be the cause.

IrishHeart Veteran
IrishHeart
Posted

Eat up. :) Until your testing is over. You want it to as accurate as possible.

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Thanks! I will! As miserable as it will make me, but if you want accuracy, you have to do what you gotta to get answers. I just wish I had realized this before it got to this point. I really thought it was IBS.

IrishHeart Veteran
IrishHeart
Posted

Many of us heard that one. "IBS" :rolleyes:

You know what we call it on here?

Doctors use it when they do not know what else to say

It stands for

I

Be

Stumped

:lol:

Have your tests run and come back and tell us what happened.

best wishes!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted
laugh.giflaugh.giflaugh.gif I like to think of the initials IBS as indicating the doctors ---- Imbecilic B&$$ S%$&ters.ohmy.gif
Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

I am waiting to see the doctor right now. For those of you who lost weight, how rapid was your weight loss? I was 172 last Thursday, now I am about 163-164. I am hungry but I was scared to eat. Last night I had scrambled Eggbeaters and applesauce and my heartburn wasn't that awful. This morning I had Rice Chex. It seems to be the only thing that doesn't make me feel all that bad. Any other food suggestions until my EGD?

IrishHeart Veteran
IrishHeart
Posted

I lost 90 lbs. Not sure how long it took. I was very sick.

But not everyone loses weight!

You have to eat, hon and you have to keep consuming gluten, sorry.

When is the biopsy??

Mnicole1981 Enthusiast
Mnicole1981
Posted
  • Author

Next Thursday and now I have colonoscopy scheduled at the same time. I may try some scrambled eggs and toast.

IrishHeart Veteran
IrishHeart
Posted

Next Thursday and now I have colonoscopy scheduled at the same time. I may try some scrambled eggs and toast.

Make sure they take many samples in that biopsy from various places.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.