Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cramp Types?


dani nero

Recommended Posts

dani nero Community Regular

I'm wondering what gluten cramps feel like? Can everyone try to describe theirs? What area of the abdomen, are the lower-back and or sides, thighs/ legs involved? is it stabbing or pinching type? does it just come or come and go? Is it on the left, right or center? Stuff like that, anything you could think of?

Edit: Also, can you please specify if it's a one time thing, or lasts for a few days, and how long each cramp episode lasts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

For me it is a whole abdomen thing. It feels like some giant has grabbed my intestines and is twisting them into a knot. I can't straighten up and often will break out in a cold sweat and feel like I am going to pass out.

GFreeMO Proficient

Mine feels like someone filled my intestines with glass, bees and cement. It almost feels like what I would think a bowel blockage would feel like. Trapped gas and severe pain. Mostly on my left low side but it moves around throughout all of the lower abdomen. I can actually feel the damage moving through. It starts higher up and goes lower and lower. When the pain subsides, I get mucus and gas coming out. It's so painful, I just about can't stand it.

Ninja Contributor

At first I feel like my intestines are being tied in knots while glass is trying to pass through – I often get nauseous, the cold sweats and (sometimes) throw up with it. Occasionally (usually a few days after being glutened), I'll get a stabbing kind of cramping either on the lower left or lower right side of my abdomen. My upper abdomen typically feels like it's been "blown up" when the latter happens.

Edit to add: good thread idea! :)

Treated Celiac Newbie

I hardly ever get cramps in my small intestine area. Often I get them in the large intestine. It only happens in the small intestine when I'm glutenned. When I do get glutenned it's like a bee sting inside and I pass out on the floor. :(

pricklypear1971 Community Regular

Well, I have limited experience with glutening symptoms because I was never one that obviously reacted (well, maybe over 10 years ago..).

The one time I am pretty sure I was glutened I felt like I'd been caned - more like the flu - a rock in my stomach and all of my muscles ached.

This last time I think I was glutened it was my stomach (directly under my ribs) that clenched, knotted and swelled....followed by too much stomach acid.

Next night I had muscle cramps all downy legs into my feet. That continued off and on all day. I get a twinge here and there - sometimes just muscles jumping.

I'm still getting the clenching stomach/acid thing every other day or so - I'm on day 5 now???? This is all new to me (well, I had these symptoms in my late 20's but they went away).

dani nero Community Regular

Thank you guys! I was asking because I had seriously painful cramps last night.. I was about to scream. They were in my lower-left (front and back) parts of my abdomen and around the center. It started feeling like my left side was tied into a knot together with my left thigh muscles with faint cramps, but got more and more painful. At first I thought it could have been due to the constipation I'm having, so I took a laxative and went to the toilet shortly after. But the pain started getting worse, so then I thought perhaps my appendix decided to explode, or maybe trapped gasses, and then I thought it might have been another kidney stone. My husband wrapped a blanket around my stomach and force-fed me an espresso (he believed it was trapped gasses and coffee would induce some more bowel movements). The cramps did start to ease 15 minutes after and I fell asleep while they were going away. I woke up pain-free this morning.

We did have chicken from a restaurant on the 29th and 30th.. but I've never had gluten cramps before, so thought I'd ask. Is it possible to "start" getting them out of the blue?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dani nero Community Regular

Well, I have limited experience with glutening symptoms because I was never one that obviously reacted (well, maybe over 10 years ago..).

The one time I am pretty sure I was glutened I felt like I'd been caned - more like the flu - a rock in my stomach and all of my muscles ached.

This last time I think I was glutened it was my stomach (directly under my ribs) that clenched, knotted and swelled....followed by too much stomach acid.

Next night I had muscle cramps all downy legs into my feet. That continued off and on all day. I get a twinge here and there - sometimes just muscles jumping.

I'm still getting the clenching stomach/acid thing every other day or so - I'm on day 5 now???? This is all new to me (well, I had these symptoms in my late 20's but they went away).

Day 5? Prickly, maybe it's time to call the doctor? :-(

pricklypear1971 Community Regular

Hell no.

Been there, done that. They will give me acid reducers (which I can buy OTC).

I'm getting my old skill of visualization back - breathe deep and imagine the pain going away and the acid stopping. It works. Like biofeedback for high bp.

I just hope it's gluten (and therefore will pass), not some other food issue. That would suck lemons.

dani nero Community Regular

I am positive I got glutened about a month ago, but I didn't have any cramps then.. I just had lower-left abdominal (back and side) pain when I moved.

pricklypear1971 Community Regular

Well, the longer you're off gluten, the stronger your gluten reaction (usually). And yes, of you didn't have obvious gluten signs then you can develop them or you can develop new ones. I think that's what is happening to me.

dani nero Community Regular

Hell no.

Been there, done that. They will give me acid reducers (which I can buy OTC).

I'm getting my old skill of visualization back - breathe deep and imagine the pain going away and the acid stopping. It works. Like biofeedback for high bp.

I just hope it's gluten (and therefore will pass), not some other food issue. That would suck lemons.

Well keep us posted on this! If it continues and when it stops. I also hope you're not reacting to another food or that something else is wrong. I have to say it's nice to see people with good mental control.. You're not freaking out at all. I tend to get paranoid in the beginning and my mind starts to wander :-)

dani nero Community Regular

Well, the longer you're off gluten, the stronger your gluten reaction (usually). And yes, of you didn't have obvious gluten signs then you can develop them or you can develop new ones. I think that's what is happening to me.

Honestly, I really do hope it's a gluten-cramp. I know this might sound wrong to some people here but life would be so much easier for me if I have a clear sign that I've been glutened, then I wouldn't have to keep thinking and monitoring myself. It was like I had to be a little paranoid all the time in order to keep myself healthy. Having a clear signal would mean I would know for sure if something's wrong and I wouldn't have to be tracking something that's not visible!

dani nero Community Regular

Also, can you please specify if it's a one time thing, or lasts for a few days, and how long each cramp episode lasts?

Ninja Contributor

My the worst of my reactions (cramping, nausea, "D", etc etc.) last for about a week and they aren't always constant. I'll usually have constant nausea, pain or discomfort but the cramps themselves tend to... pulsate (???) kinda – can't think of the right word. :P Then the bloating and a few residual cramping lasts for about another week... it worsens when I eat.

The cramps for me tend to be somewhere between 5 min-25is min, I think... not that long.

Is it possible to "start" getting them out of the blue?

I never had rashes before I went gluten-free and now every time I'm glutened I get a rash! It's totally possible for your body to change the way it reacts to gluten.

GFreeMO Proficient

My the worst of my reactions (cramping, nausea, "D", etc etc.) last for about a week and they aren't always constant. I'll usually have constant nausea, pain or discomfort but the cramps themselves tend to... pulsate (???) kinda

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.