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Does Undiagnosed Celiacs Cause Frequent Illnesses?


cmdoppler

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cmdoppler Newbie

If you have celieacs without knowing it does it contribute to having more frequent illnesses? Just wondering.


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rosetapper23 Explorer

Yes, yes, YES! If your immune system has been suppressed because it's been reacting to gluten, you will definitely get sick a lot. Before I knew I had celiac, I was sick 75% of the time--no kidding!

lesliev523 Rookie

Yes, yes, YES! If your immune system has been suppressed because it's been reacting to gluten, you will definitely get sick a lot. Before I knew I had celiac, I was sick 75% of the time--no kidding!

ME TOO! And my allergies were progressively worse year after year. To the point I was going to have to get shots.

tom Contributor

When I was sick every day for a long time, I seemed to never get a cold or flu though. Seen others here say the same, but I don't know how common that is.

mushroom Proficient

I was sick nearly every day with a cold or flu before I quit eating gluten. Four years gluten free - one flu, that's it. And it was a cougher, something I'd never had before. My colds, followed by secondary infections, used to last 3-4 weeks.

MitziG Enthusiast

I spent 30+ years without ever having gone a month without some cold, flu or virus it seems. I have been gluten-free for almost 14 mos now and have exactly ONE mild sinus thingy in that whole time.

So I would definitely say, YEP!

When your immune system is busy attacking your intestines, it can't be bothered to do silly things like, say, fighting off germs....B)

Mateto Enthusiast

I'm one who had the flu and cold almost every day, in some shape or form, before going gluten-free, so definitely YES!


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beebs Enthusiast

YES, I had multiple middle ear infections that ended in perforations - I mean - like at least two a year, chest infections all the time, I'd always get whatever was going around. AND I know have more Autoimmune diseases, that may very well have been triggered from eating gluten. Also - I know have to go for another endo because there may be long term damage to my esophaus and stomach from eating gluten all those years. Doh. Sometimes it doesn't just end by going gluten free. So if you think you might have it -then get it tested asap.

Capegin Rookie

I am so glad I stumbled on this post! My 15 month old DD is going through the testing process now- awaiting results of blood work. The dr. also wants to test for CF because of her size, even though I'm not a carrier. I've been panicking, even though I know it's highly unlikely, because she had soooo many colds all winter. Knowing there is even the slightest chance it was Celiac causing that and not CF is gping to go a long way towards getting me through the next couple of days before her CF test!!! Thank you!!!!

Btw- did any of you experience frequent low-grade fevers?

beebs Enthusiast

I am so glad I stumbled on this post! My 15 month old DD is going through the testing process now- awaiting results of blood work. The dr. also wants to test for CF because of her size, even though I'm not a carrier. I've been panicking, even though I know it's highly unlikely, because she had soooo many colds all winter. Knowing there is even the slightest chance it was Celiac causing that and not CF is gping to go a long way towards getting me through the next couple of days before her CF test!!! Thank you!!!!

Btw- did any of you experience frequent low-grade fevers?

Hello, my little one was given a 90% change of CF, due to panreatic something or other, anyhow long story shore. It wasn't that (thank god) it was gluten! He was the same, like seriously sick ever single day of his entire life until he went gluten-free.

T.H. Community Regular

Btw- did any of you experience frequent low-grade fevers?

Both my daughter and I did, yes, before we were diagnosed. It's happened a few times getting gluten contamination, too, for both of us, but I've noticed that this happened less and less as time went on, and somewhere around 2 years gluten free, I haven't had a fever again when glutened.

I've spoken to a only few folks here at celiac.com who reported having this as an issue when they get glutened, or their children did, but I haven't seen anything in the celiac literature on it.

There's been a few threads on it - here's a link to a real short one:

Capegin Rookie

Thanks TH! My daughter went through a spurt of about a week when daycare would call me every coupke of days to say she had a low fever. Twice we picked her up, gave her some motrin, and she was absolutely fine!

Celiac panel should be ready Monday, follow up with pedi GI the next week, so we'll see!

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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