Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Glutened...


Mateto

Recommended Posts

Mateto Enthusiast

So yesterday, someone told me I was: senile, full of shi*, foolish, acting childish, and that it was "all in my head"...when I requested my hamburger be barbequed on tin-foil so to avoid the CC from the sauce. I've done it before, and it worked wonderfully. This person told me "the sauce is burnt off when you cook it anyhow!"...and I tried to explain to him the concept of cross-contamination, but he's too damn stubborn to even listen. He won't let me get a word in, so I can't say anything to him though believe me-I've tried.

Anyhow, said person did it after because I said to "said person" that I won't eat it otherwise, and there was company around. Said peron had already cause enough upset, and other people tried to explain to him why I wanted to do "such a thing".

"Said person" disregarded me afterwards, and somehow ended up getting gluten on my food --whatever it was, I don't know. Now I'm suffering the consequences.

My question, after this, is: what do you find works best for you recovering from a fresh glutening?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

It makes me so sad and so mad when I hear stories like this on the board. Why would somebody treat a celiac like this? I'll never understand it.

L Glutamine powder helps some. Drink lots of water. Eat simply and clean. And wait it out. Feel better soon!

IrishHeart Veteran

Lots of water, double up on probiotics for a week and rest.

Sorry you got "hit". :(

Even sorrier you had to deal with a dipstick who does not take you

seriously.

(hug)

Mateto Enthusiast

Thank you, both of you! I ask so many questions, but I always get the answers I need. I'm feeling better now, but will keep drinking lots of water and stuff. What about epsom salt? I read that epsom salt helps the gluten be removed from your body, or is that just foolishness? :P

IrishHeart Veteran

Well, sweetie, just do not eat it. :P

But if you want to soak in an epsom salt bath, go for it.

It helps to relax muscles. That's it.

Try to relax. A "glutening" sucks (in plain English :rolleyes: ) but it passes, literally and figuratively.

You're going to be okay!

  • 2 weeks later...
Marie1976 Enthusiast

I have tried the l glutamine powder too it seems to help. Also, resting. Ginger pills. And/or Immodium. Sorry people are such jerks. :(

Bobbie Jo Rookie

I always give my kids tylenol when we get glutenated. It seems to help, along with lots of water.

I've read 1% of people will get our diet, and we are to worship the ground they walk on.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Victoria6102 Contributor

I always give my kids tylenol when we get glutenated. It seems to help, along with lots of water.

I've read 1% of people will get our diet, and we are to worship the ground they walk on.

"glutenated"

LOVE that! Lol that's one I haven't heard before!:D

dani nero Community Regular

There's a word for "said person": butt-****

Sorry for the vulgarity, but "said person" really is :-(

Mateto Enthusiast

Well, sweetie, just do not eat it. :P

But if you want to soak in an epsom salt bath, go for it.

It helps to relax muscles. That's it.

Try to relax. A "glutening" sucks (in plain English :rolleyes: ) but it passes, literally and figuratively.

You're going to be okay!

I used to think epsom salts were a posh fancy baking ingredient, and I often wondered why they were in the personal care section of shops.

Above poster, you're spot-on.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.