Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Immune System Issues


GlutenFreeAustinite

Recommended Posts

GlutenFreeAustinite Contributor

So I've been gluten-free for a year and a half, but have been on gluten for the past month of so as part of a diagnosis trial. In January, I noticed a boil on the lower part of my right leg that never fully healed, and resisted two courses of doxycycline. I saw a dermatologist this week, and she biopsied/cultured it, and barring anything that comes back on the culture/surface test, she thinks it's an atypical mycobacterial infection. She says she sees these infections about once a year (so fairly infrequently) and that they take some time to cure. I did some of my own research (a semi-dangerous idea) and what little resources out there told me that it usually crops up in people who have AIDS or have a compromised immune system in general. I don't have AIDS, so is it reasonable for me to speculate that I may have some sort of immune system problem? I've always been highly prone to infections...for example, when my friends and I go tubing, I ALWAYS end up with eye and ear infections, and if a bug goes around, I usually get it. The one backpacking trip I've been on, the entire group was fine and I contracted staph.

Anyway, any thoughts? What sort of foods/supplements do you guys recommend to boost immune systems? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



captaincrab55 Collaborator

So I've been gluten-free for a year and a half, but have been on gluten for the past month of so as part of a diagnosis trial. In January, I noticed a boil on the lower part of my right leg that never fully healed, and resisted two courses of doxycycline. I saw a dermatologist this week, and she biopsied/cultured it, and barring anything that comes back on the culture/surface test, she thinks it's an atypical mycobacterial infection. She says she sees these infections about once a year (so fairly infrequently) and that they take some time to cure. I did some of my own research (a semi-dangerous idea) and what little resources out there told me that it usually crops up in people who have AIDS or have a compromised immune system in general. I don't have AIDS, so is it reasonable for me to speculate that I may have some sort of immune system problem? I've always been highly prone to infections...for example, when my friends and I go tubing, I ALWAYS end up with eye and ear infections, and if a bug goes around, I usually get it. The one backpacking trip I've been on, the entire group was fine and I contracted staph.

Anyway, any thoughts? What sort of foods/supplements do you guys recommend to boost immune systems? Thanks!

Sounds like you just need a GLUTEN FREE diet.... I hope your Dermatologist also did a biopsy for DH... I had many boil like pimples that lasted for months before healing... That all went away with a strick gluten-free diet...

GlutenFreeAustinite Contributor

Problem was, I was gluten-free when it developed, so I don't think that's it. I was gluten-free until about three weeks ago, when I started eating gluten as part of a test. I haven't noticed any real change in it from when I was gluten free.

MitziG Enthusiast

I agree with the above. You couldn't pay me to go back to eating gluten. I really believe that it is poison to all but a very few people.

I had NO immunity for 30 years. Since going gluten-free, I have had exactly ONE minor viral thing in 14 months!

I can't say if your boil is related, but when your immune system is occupied with attacking your villi, it apparently can't be bothered to fight off silly things like germs!

I wouldn't say celiac makes your immune system weak necessarily, but it definitely makes it "distracted"!

Supplements may be of little use to you if gluten is the problem. You likely don't need to strengthen your immune system, you just need to keep it focused.

captaincrab55 Collaborator

Problem was, I was gluten-free when it developed, so I don't think that's it. I was gluten-free until about three weeks ago, when I started eating gluten as part of a test. I haven't noticed any real change in it from when I was gluten free.

Define Gluten Free??? It took many months of eating gluten-free for my body to stop reacting to Gluten...

GlutenFreeAustinite Contributor

I was gluten-free for eighteen months and had absolutely none of my former symptoms.

GFinDC Veteran

... I don't have AIDS, so is it reasonable for me to speculate that I may have some sort of immune system problem? I've always been highly prone to infections...for example, when my friends and I go tubing, I ALWAYS end up with eye and ear infections, and if a bug goes around, I usually get it. The one backpacking trip I've been on, the entire group was fine and I contracted staph.

Anyway, any thoughts? What sort of foods/supplements do you guys recommend to boost immune systems? Thanks!

You do have an immune system problem, celiac is an autoimmune disease. I was the opposite. I rarely got sick while everyone around me got flu, colds, etc. I also had pretty severe hayfever. I think that was because my immune system was in overdrive, ready to pounce on anything that came around full force, all the time. Due to being on-guard against gluten constantly. My hayfever subside greatly after going gluten-free. Other people have reported situations similar to yours, they got sick more often than others. The ideas they seem to go with is their immune systems were worn out or too busy fighting gluten to defend them against other invaders. Then there is the IgA deficient celiac crowd, who just don't really make IgA antibodies. IgA deficiency is not uncommon among celiacs, but is not the rule either. Those good folks are missing a whole set of antibodies that other people's bodies make. So there are lots of possibilities for immune system issues.

Hmm, Can't think of any immune boosters the moment. I am usually looking more towards something the opposite. If I think of any I will post later. Unless someone beats me to it, which they usually do. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MistyRG Apprentice

My family rarely gets sick (5 kids - me and my husband). We are big into Sambucol. We use it (the extract) every time someone starts to get the sniffles. The only person in my family who gets sick is my husband because he doesn't "believe in that stuff!!!" I make smoothies for the kids a few times a week full of fruits and veggies (great immune booster). I also increase our vitamin D intake (pills) during cold/flu season.

When someone does get sick, I make a big pot of chicken noodle soup (lots of chicken broth) full of garlic, ginger, and tumeric.

These are all natural immune boosters. I will add that I am VERY new to the whole gluten free thing (actually haven't gone gluten free yet . . . waiting on a biopsy). I did check Sambucol, and it is gluten free.

GlutenFreeAustinite Contributor

Yeah, interestingly enough though, my dermatologist said that typically celiac patients don't have problems with these sort of infections, and my nurse practitioner said my immune system was fine. Could it just be something the doctors wouldn't think to look for?

woodnewt Rookie

So I've been gluten-free for a year and a half, but have been on gluten for the past month of so as part of a diagnosis trial. In January, I noticed a boil on the lower part of my right leg that never fully healed, and resisted two courses of doxycycline. I saw a dermatologist this week, and she biopsied/cultured it, and barring anything that comes back on the culture/surface test, she thinks it's an atypical mycobacterial infection. She says she sees these infections about once a year (so fairly infrequently) and that they take some time to cure. I did some of my own research (a semi-dangerous idea) and what little resources out there told me that it usually crops up in people who have AIDS or have a compromised immune system in general. I don't have AIDS, so is it reasonable for me to speculate that I may have some sort of immune system problem? I've always been highly prone to infections...for example, when my friends and I go tubing, I ALWAYS end up with eye and ear infections, and if a bug goes around, I usually get it. The one backpacking trip I've been on, the entire group was fine and I contracted staph.

Anyway, any thoughts? What sort of foods/supplements do you guys recommend to boost immune systems? Thanks!

Okay, I'm going to clarify this for you so you don't have to worry so much. Atypical Mycobacterial infection as a general term just means non-Tuberculosis Mycobacteria. You have probably heard of Tuberculosis, well, the full name for the bacteria that causes TB, both genus and species is: Mycobacterium tuberculosis. M. bovis can also cause TB. However, atypical Mycobacterium do not cause TB. There are a few species that may cause tuberculosis-like disease, but this is rare, and only occurs in the severely immunocompromised***.

It must be understood, however, that there are many different types of Mycobacteria species out there, most of which are harmless and ubiquitous in the soil and environment. Sometimes, healthy individuals can contract a type of skin lesion if opportunistic conditions arise; for example, Mycobacterium fortuitum is classically associated with skin lesions in a condition called furunculosis. There is a case study from back about 10 or so years ago where there was an outbreak from foot baths at a nail salon in California. So it happens, and does not necessarily indicate any fault in one's immune system.

Furthermore, atypical mycobacterial infections in AIDS patients is something completely different! It is referring to MAC (Mycobacterium avium complex) which may cause a severe intestinal and sometimes systemic disease in severely immunocompromised individuals, specifically those with extremely weak cell mediated immunity & critically low CD4 count. This specific type of "weakened immunity" is associated with strong immunosupression - ***long-term immunosupressant medication therapy, late stage AIDS, severe and protracted infection, genetic defects in cellular immunity, immune cancers, and chemotherapy.

GlutenFreeAustinite Contributor

That is definitely good to know! Thank you! Given my history of infections, I'm thinking I'll explore the immune system stuff a bit more, but I'm glad to know that the mycobacteria isn't gonna give me a nasty pulmonary disease. :P

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.