Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Days I'm Totally Lost


Indynut

Recommended Posts

Indynut Newbie

I'm sorta new to all this and currently I'm about 3 month's gluten free. I've arrived the hard way, through a process of elimination. I'm learning every-day and I'm currently having about one or two bad days a week. Today's been a bad a day and yesterday a friend brought me a lobster sandwich, without mayo. I only had a small piece of the bread and ate all the lobster. God it was good but I wondered what today would bring. For me I've already eliminated dairy products, eggs, and all the gluten things like bread and pasta.

I'm off the coffee, tea, pop, no liquor but I do drink the soya milk. Might that also be a problem for me?

I'm glad I found this site because I need to speak with people in my situation.

I'm a 6'2" male, age 53, and I just went from 236 to 207 in the last 3 months. No withdrawal symptoms at all during the change over. I have not missed a days work over this but somedays were close.

Thanks for any guidence I can pick up along the way here.

Gerard


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Are you diagnosed with Celiac? Maybe some background info would help.

Obviously, you are not eating completely gluten free. Picking meat off of bread isn't eating gluten free and you ate the bread, too. I bet there are other ways you are getting gluten, too.

Not sure why you are eliminating all these foods. If you are only paritally eliminating them, like you are with the gluten, its probably not worthwhile.

Here's some basic info. Also, read around, lots of people asking questions that you may have.

https://www.celiac.com/gluten-free/forum-12/announcement-3-frequently-asked-questions-about-celiac-disease/

dani nero Community Regular

I'm sorta new to all this and currently I'm about 3 month's gluten free. I've arrived the hard way, through a process of elimination. I'm learning every-day and I'm currently having about one or two bad days a week. Today's been a bad a day and yesterday a friend brought me a lobster sandwich, without mayo. I only had a small piece of the bread and ate all the lobster. God it was good but I wondered what today would bring. For me I've already eliminated dairy products, eggs, and all the gluten things like bread and pasta.

I'm off the coffee, tea, pop, no liquor but I do drink the soya milk. Might that also be a problem for me?

I'm glad I found this site because I need to speak with people in my situation.

I'm a 6'2" male, age 53, and I just went from 236 to 207 in the last 3 months. No withdrawal symptoms at all during the change over. I have not missed a days work over this but somedays were close.

Thanks for any guidence I can pick up along the way here.

Gerard

Was the bread gluten-free? If not, even a crumb of bread will cause a reaction (if you have celiac).. You probably didn't get withdrawal symptoms because your body is still on gluten. Like kareng said more details are needed :-)

Aliciajoe Newbie

What are signs of gluten withdrawal? are they the same as say caffeine?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,593
    • Most Online (within 30 mins)
      7,748

    Michele Roedder
    Newest Member
    Michele Roedder
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.