Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here, Need Advice


Guest hungryman

Recommended Posts

Guest hungryman

Hi all,

I'm sorry if this is repetitious. I had posted a similar question in an earlier thread, but for the life of me couldn't find it. I finally did, and than you to those who provided some options.

This post adds a little more info. Any further suggestions would be appreciated.

Mark

I have been on a gluten free diet for about three years. The change after going on it was remarkable. That said, I have a tough time gaining weight.

This was brought to the forefront recently when I had to resign from a new job because of excessive weight loss. (I went from 162 pounds to 147 pounds in 10 days).

At 5'11", 147 pounds is just too thin.

I also am lactose intolerant and albumin intolerant, which means no dairy or eggs. I am on medication the prevents my eating just any time because it must be taken every eight hours on an empty stomach. No food two hours before or one hour after.

One of the side effects of some of the medications I take is what is sometimes called pre-diabetes or hyperglycemia. As a result, I must watch my intake of sweets and carbohydrates, although this problem really hasn't progressed and I have managed to keep in under control by making sure my meals contain a balance of protein and carbohydrates.

Anemia is also a problem, but, again, I have managed to keep this in check so far.

Malabsorbsion is an issue, both because of the celiac and other health issues.

To make matters more difficult, some of the medications I take cause lipoatrophy and lipodystrophy, which is a loss of body fat on the arms, legs and face, and an accumulation of fat in a hump at the top of the spine and around the internal organs.

Combined with my weight loss, this has made me look like a concentration camp survivor.

Any thoughts or suggestions regarding how I might be able to gain weight would certainly be appreciated. I have searched through cookbooks, other books and resources, and tried to tackle it on my own, without much success.

Any ideas?

Mark

:unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

High caloric-density foods. If you can keep some nuts with you to snack on whenever those hours of food avoidance are up, that could help. Also add more calories to your beverages by either having meal replacement drinks with your meals (I believe a few people on the board have used Ensure or Boost), or mixing up more filling beverages. (For instance, full fat soy milk, instead of non-fat, but make a smoothie out of it to go with your breakfast meal - add some fruit and protein powder (rice based, soy based, whatever works) and coconut milk for fat.)

(And since you've been dealing with this so long, you may have already tried all these things; if so, I'm sorry for the repetition.)

PreOptMegs Explorer

To echo what was said... every opportunity you get to eat needs to be filled with the highest calorie dense foods. nuts, dried fruit, red meat, fried anything....

Heather22 Rookie

Hi Mark

Another point to add: You may want to be cautious about increasing your caloric intake just through fat. Fat supplies the greatest amount of energy (of the macronutrients), however given the side effects of your medication, this may result in greater accumulation of fat deposits. I would stick to more high-calorie-carbohydrates. Try incorporating more rice products, such as rice bread/buns, granola or lentils. It's not too hard to find gluten-free foods that are high in calories. So, when shopping, choose those high cal foods instead of putting them back on the shelf like the rest of us.

Good luck!

Heather : )

Misa Rookie

Blimey, Mark, you've got a lot of things going on....Because you've got malabsorption probs. I've just gotto recommend supplementing with broad spectrum digestive enzymes. I notice a big difference if I'm taking them or not. They usually contain lipase which breaks down fat, thus preventing it from accumulating in the liver and elsewhere. Also contain protease which breaks down hard to digest protein into the important amino acids (for nervous function and growth).

Also, I found I was deficient in zinc. Since taking large doses, I've noticed a side-effect is weight gain. Zinc stimulates growth hormones (and intestinal healing). I've also read that men are supposed to have lots of zinc in them. Sugar, high copper foods (nuts, raisins, advocado, chocolate, tea) and all grains uses or prevents zinc being absorped. L-glutamine powder which is frequently used by athletes, but which is used for intestinal lining healing amongst some of us with inflammation/damage, also stimulates growth hormone=weight gain. It's recommended for bed-bound people as it prevents muscle wasting.

This is my two cents, Mark. Hope things work out for you.

Take care, Misa :)

cmom Contributor

I also am experiencing significant weight gain since going gluten-free. Now, I am unable to exercise as I have an inflamed nerve in my foot and don't know how long it will take to heal. What digestive enzymes do you recommend and should I stop taking the l-glutamine since it causes weight gain? Thanks.

Misa Rookie

Hiya Robin

I live in Scandinavia, have been ordering my enzymes from a company in the UK. I just recently switched to a US company as I wanted higher amounts per capsule. I chose Houston Nutraceuticals because apparently they are big within the autistic community. The parents often use enzymes as part of therapy. I'm still using up the old batch so haven't tried the new one yet.

It's a bit tricky for me to give such specific advise on whether or not to stop the L-glutamine. Are you taking large amounts each day? Maybe you can do an internet search to read up on it and then go with your gut feeling (sorry, couldn't think of a better word :blink: )

Take care, Misa :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
I also am experiencing significant weight gain since going gluten-free.  Now, I am unable to exercise as I have an inflamed nerve in my foot and don't know how long it will take to heal.  What digestive enzymes do you recommend and should I stop taking the l-glutamine since it causes weight gain?  Thanks.

<{POST_SNAPBACK}>

What about non-weight bearing exercises? Biking might aggrivate the foot, but swimming or weights might not...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.