Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Crying Mess

GFreeMO

By GFreeMO
in Coping with Celiac Disease

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

What is it in gluten that can take a happy girl who is feeling pretty well to a crying mess with severe cramping, joint and muscle pain and cracked and bleeding lips. I feel like I have the flu. Is this the autoimmune reaction and my body fighting off gluten. I was either CC'ed or corned because I feel horrible. I just took a shower and got so weak that I had to sit down and I just sat there and cried. I don't have anything to be depressed about right now.

It's so hard when you are active to just sit here and suffer. I have so many things to do but I don't feel up to any of them today.

Is there anything to do for the intestinal pains other than water? Also- would my bleeding and cracked lips have something to do with being dehydrated.

I hate this crap so much!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kirstie Apprentice
Kirstie
Posted

What is it in gluten that can take a happy girl who is feeling pretty well to a crying mess with severe cramping, joint and muscle pain and cracked and bleeding lips. I feel like I have the flu. Is this the autoimmune reaction and my body fighting off gluten. I was either CC'ed or corned because I feel horrible. I just took a shower and got so weak that I had to sit down and I just sat there and cried. I don't have anything to be depressed about right now.

It's so hard when you are active to just sit here and suffer. I have so many things to do but I don't feel up to any of them today.

Is there anything to do for the intestinal pains other than water? Also- would my bleeding and cracked lips have something to do with being dehydrated.

I hate this crap so much!

I'm sorry you are feeling so bad, I understand as I feel the exact same right now. (Literally just woken up after passing out for 2 hours after accidentally eating gluten!)

You need to be patient with your body and not beat yourself up! Its so hard and frustrating because it seems so difficult to pin down what's actually wrong with you and to find out if gluten is really causing all of these problems!

As far as cracked lips go, that's something I always suffer from even though I drink tons of water, so maybe that is a gluten symptom! I haven't really thought about it :huh: My lips have improved after biting the bullet and buying this rather expensive lip balm, but it really helps! Open Original Shared Link I presume its gluten free (I know not all makeup is :angry: ) but it's never caused me problems :)

The best thing to do is rest, enjoy yourself and take it easy! Drink tons of water, peppermint tea is very soothing for your stomach, as is ginger tea and regular sweet milky tea :)

Eat nice but bland foods that are definitely gluten free, maybe go for a walk or a swim, give your body time to prepare and DON'T feel guilty!

I really hope you feel better soon :) I just discovered this website with tons of helpful tips Open Original Shared Link

Good luck, relax and feel better!

K x

GFinDC Veteran
GFinDC
Posted

Hmm, water, rest, Pepto Bismol, pro-biotics, more water, maybe some peppermint tea, some marshmallow root, some aspirin and a very bland and sugar free diet.

bartfull Rising Star
bartfull
Posted

And a great big ((((((HUG))))))!

KMMO320 Contributor
KMMO320
Posted

I am so sorry. I wish I had an answer to help you. I am still being tested. I just wanted to say that I knew how you felt only I never knew it was likely Gluten doing it to me. For the last year, I have felt weak and dizzy and unmotivated every day. I look around my house and see it a mess and I cant even stand up still long enough to wash dishes each night. I sit when I shower, and I nearly pass out when I reach my apartment (3rd floor). I thought it was because I have gained so much weight in the last year, or my thyroid out of whack again. (when I gain or lose weight my meds need to be adjusted) but then I find out..its this.

Its good to have a reason for it...but for someone like me who wants to go go go and CANT..its devastating.

I am so sorry you got glutened, I wish I knew of a way to make it easier.

MitziG Enthusiast
MitziG
Posted

Braggs apple cider vinegar. A tsp in a glass of water does wonders for the stomach pain- works within seconds! Take as often as needed. The rest, well..it will pass. Hang in there, we have all been there! It gets better!

GFreeMO Proficient
GFreeMO
Posted
  • Author

Thanks everyone for the ideas, hugs and website! I am feeling better today. I appreciate it so much! It's so comforting to know that people do understand. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,498
    • Most Online (within 30 mins)
      7,748
    Nicole71
    Newest Member
    Nicole71
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Art Maltman
      My 5 months of Struggle

      By Art Maltman · Posted

      I did a test already not exactly sure if it was the right one the doctor I went to at first refused to give me the test but i evantail convinced him but he wasnt exactly sure what test to do. I didn't eat gluten on sunduy monday tuesday and i had the test on thursday. Is it possible the test will still be accuret
    • JA917
      A year and a half of test confusion...

      By JA917 · Posted

      I was just thinking this same thing - requesting repeat testing prior to giving up gluten. Makes sense. Thanks!
    • knitty kitty
      A year and a half of test confusion...

      By knitty kitty · Posted

      Since you're having a last hurrah with gluten, request another round of blood tests for celiac antibodies.  Make sure you're eating ten grams or more daily for those few weeks before your capsule endoscopy.  You probably weren't eating a sufficient amount of gluten needed to provoke sufficient antibody production.   
    • cristiana
      Christmas Cake

      By cristiana · Posted

      Hello all I am taking some time out from work today to make my annual Christmas cake along the lines of a tried and tested English recipe which means a fruit cake, with marzipan  and icing.   As usual, I've left it too late - we're meant to bake these things some time  in advance to improve the flavour.    I never remember.  But it never seems to matter! I thought I'd share it in case any UK coeliacs still haven't made theirs and don't have a recipe, or any of my friends across the Pond want to try making one.  Do you make iced fruit cakes like this in the US for Christmas? - I have no idea! I adapt it slightly as instead of fondant icing I make Royal Icing which sets hard and you can create exciting snow scenes with it if you can find any tiny model houses, churches and trees to put on it!  (my Mum used to do this).   https://www.coeliac.org.uk/information-and-support/your-gluten-free-hub/home-of-gluten-free-recipes/1511804/ With thanks to the charity Coeliac Uk for this recipe. Cristiana  
    • trents
      My 5 months of Struggle

      By trents · Posted

      Welcome to the forum, @Art Maltman! Ask your physician to order serum antibody tests specifically designed to detect celiac disease. That's the place to start but you shouldn't be on a gluten free diet some weeks before the blood draw. You certainly have some symptoms that are characteristic of celiac disease and you have a first degree relative that has celiac disease. So, I think this would be an appropriate request to bring to your physician. Here is an article outlining the various serum antibody tests that can be ordered when checking for celiac disease:   The physician may not be open to ordering a full panel but push for at least these two: total IGA and tTG-IGA. By the way, absence of gut pain is very common in the celiac population. We call them "silent" celiacs as they have no or very minor symptoms. There are over 200 symptoms and spinoff health issues that have become associated with celiac disease and the range of symptoms and effects produced by the disease in different individuals various tremendously. 
×
×
  • Create New...