Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Does This Mean?

roxieb73

Recommended Posts

roxieb73 Contributor
roxieb73
Posted

ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER

Does it mean they found the antibody even if the test is negative? If so how can a test be negative if the antibody is present? I was under the impression the only place you see this is with Celiac. Ughhh

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

What else was on the result sheet besides what you posted? Either before or after? They did not give any result.

roxieb73 Contributor
roxieb73
Posted
  • Author

What else was on the result sheet besides what you posted? Either before or after? They did not give any result.

It just said negative

MitziG Enthusiast
MitziG
Posted

Well you didn't get a full celiac panel if they only checked endomysial antibodies. They should also do ttg IGA,, ttg IGG, total IGA and Deamidated Gluten Peptides. I would go back to the doctor and insist on the full panel- one test, albeit a specific one, is not enough to rule out Celiac.

roxieb73 Contributor
roxieb73
Posted
  • Author

Well you didn't get a full celiac panel if they only checked endomysial antibodies. They should also do ttg IGA,, ttg IGG, total IGA and Deamidated Gluten Peptides. I would go back to the doctor and insist on the full panel- one test, albeit a specific one, is not enough to rule out Celiac.

I will do it than k you Mitzi! I won't have to argue with him. He already thinks we got a false negative. My doctor is pretty convinced Celiac is what my problem is.

Sieben Rookie
Sieben
Posted

Are false negatives that common on the endomysial IGA test?

beachbirdie Contributor
beachbirdie
Posted

ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER

Does it mean they found the antibody even if the test is negative? If so how can a test be negative if the antibody is present? I was under the impression the only place you see this is with Celiac. Ughhh

The test is negative. When it says "reflex to titer" it means they will perform dilutions to find out how strongly positive it is, if they find antibodies. If it is negative (they don't find antibodies), they will not perform the dilutions.

They did not do complete testing. You should have the complete panel mentioned by others. Many people with celiac, those who are not sero-negative, will only test positive on one of the tests. Though anti-EMA is supposed to be one of the best indicators of tissue damage, that can be negative in people with celiac. Hope that makes sense!

The negative EMA test doesn't rule out celiac. Thankfully your doc is on board and will test further.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


roxieb73 Contributor
roxieb73
Posted
  • Author

The test is negative. When it says "reflex to titer" it means they will perform dilutions to find out how strongly positive it is, if they find antibodies. If it is negative (they don't find antibodies), they will not perform the dilutions.

They did not do complete testing. You should have the complete panel mentioned by others. Many people with celiac, those who are not sero-negative, will only test positive on one of the tests. Though anti-EMA is supposed to be one of the best indicators of tissue damage, that can be negative in people with celiac. Hope that makes sense!

The negative EMA test doesn't rule out celiac. Thankfully your doc is on board and will test further.

Now it makes sense thank you! I have already had blood drawn for HLA typing and if they come back positive then will have a biposy and repeat antibody tests. I am currently eating gluten in preparation for that. If it is negative then all this testing will come to an end.

ravenwoodglass Mentor
ravenwoodglass
Posted

Now it makes sense thank you! I have already had blood drawn for HLA typing and if they come back positive then will have a biposy and repeat antibody tests. I am currently eating gluten in preparation for that. If it is negative then all this testing will come to an end.

Once all your testing is done do try the diet no matter what the gene and other tests show. Gene tests are only a small part of the picture as folks can have the associated genes and not have celiac and people can have celiac and not have one of the two most commonly associated genes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748
    Wilson1984
    Newest Member
    Wilson1984
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.