Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did Celiac Come Back?

VydorScope

Recommended Posts

VydorScope Proficient
VydorScope
Posted
  • Author

Has he ever had any other GI testing done? Celiac was just the "tip of the iceburg" for my son.

Yes. The only issues ever confirmed by testing (poor kid has had tons, both blood and scopes) was acid reflux and celiac disease. All of that was done in the first round when he was extremely sick. Nothing like caring your child home from the hospital as he pukes barium on you btw. You should try it! :( Stuff memories are made of I guess :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 57
  • Created
  • Last Reply
Mom2J112903 Newbie
Mom2J112903
Posted

Yes. The only issues ever confirmed by testing (poor kid has had tons, both blood and scopes) was acid reflux and celiac disease. All of that was done in the first round when he was extremely sick. Nothing like caring your child home from the hospital as he pukes barium on you btw. You should try it! :( Stuff memories are made of I guess :lol:

I have done that numerous times. Also been "christned" with 12hr old formula too.

We have had numerous EGDs, two colonoscopies, two UGIs, one SBFT, one lower GI, one barrium enema and a swallow study. Also been under for tonsils, adenoids (different ages) and oral surgery.

So yeah, combine all of my son's GI problems with anesthesia and I have been puked on more than I care to admit. It was a nightly routine for DH and the little man to take showers while he was still getting fed thru the night. Boy did we have the cleanest kiddo around! :P

VydorScope Proficient
VydorScope
Posted
  • Author

I have done that numerous times. Also been "christned" with 12hr old formula too.

We have had numerous EGDs, two colonoscopies, two UGIs, one SBFT, one lower GI, one barrium enema and a swallow study. Also been under for tonsils, adenoids (different ages) and oral surgery.

So yeah, combine all of my son's GI problems with anesthesia and I have been puked on more than I care to admit. It was a nightly routine for DH and the little man to take showers while he was still getting fed thru the night. Boy did we have the cleanest kiddo around! :P

Yeah some how in all the classes we were in that talked about child care before my son was born they seemed to somehow skip the sections on this stuff. Also it really would have been good to mention that stomach acid puked on to your shirt will bleach it out. Real surival skills, IMO.

:lol:;)

VydorScope Proficient
VydorScope
Posted
  • Author

Losing ground... not sure why. There was one possible point which his food might have gotten contaminated, so we are holding on that. If he starts turning around again and getting better then we can mark it off to that, but otherwise... have to wonder if we are on the right path or not now.

So today Tim is saying he is better again. Other then the place mate thing the one thing I have to suspect is the pasta. It is "Tinkyada Vegetable Spirals" which he has had twice and both times complained of stomach pains/etc after. Might be coincidence, i know they are a very well respected company on this forum, but it is a common factor here. It was cooked in brand new pot, and we used a brand new colander and a brand new serving spoon. He only likes butter on it, and we used his Earth Balance palm oil based butter.

Again could be a coincidence... just reaching here really. He really likes them, and has asked for them a few times now so I would hate for them to be the issue.

GFinDC Veteran
GFinDC
Posted

He dumped his gluten-free gummies out on to a place mat and it was not till he was already eating that I realized he was using one we had not gotten to in our degluten the house project quite yet. I do not know if it had gluten on it, but it is possible.

That could do it I suppose. I got sick from using a toaster after I first went gluten-free that hadn't been changed out. It doesn't take much.

jerseyangel Proficient
jerseyangel
Posted

Hi V, might he be sensitive to the veggie powders they use? Does he do ok with carrot, tomato and spinach?

Tinkyada is really safe as far as gluten cross contamination goes, as they are a completely dedicated facility.

That said, there could be something in that particular variety that doesn't sit well with him. Just throwing this out there but sometimes tomato products contain sulphates. Is he generally ok with tomato?

Sesara Rookie
Sesara
Posted

So today Tim is saying he is better again. Other then the place mate thing the one thing I have to suspect is the pasta. It is "Tinkyada Vegetable Spirals" which he has had twice and both times complained of stomach pains/etc after. Might be coincidence, i know they are a very well respected company on this forum, but it is a common factor here. It was cooked in brand new pot, and we used a brand new colander and a brand new serving spoon. He only likes butter on it, and we used his Earth Balance palm oil based butter.

Again could be a coincidence... just reaching here really. He really likes them, and has asked for them a few times now so I would hate for them to be the issue.

Remember that in Celiac's, there is a much higher likelihood of developing other food allergies/sensitivities as well, unfortunately. Sometimes it is temporary while the gut is healing, an effect of your overstimulated immune system, and sometimes it is a permanent sensitivity. I would look at the overall ingredient list and see if there are any other top allergens found in the pasta, and I would also see if that appears in any other foods that your son might be sensitive to.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mom2J112903 Newbie
Mom2J112903
Posted

Yes, stomach acid does allll sorts of lovely things to clothing <_< And in our case burns nostrils when you smell it :o

I would be looking at the other ingrediants in the pasta. It has been too long for me to remember the ingrediants in it, although that was our FAVORITE brand of pasta to buy and eat. Veggies here are BAD, BAD, BAD for my son. That is what hurts the most about him not being able to eat. He LOVED the stupid things! Spinach and feta cheese was one of his favorite snacks. Now don't get me wrong he loved his hot-dogs, fish sticks and pizza but he LOVED spinach! I know, strange munchkin child I have :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,348
    • Most Online (within 30 mins)
      7,748
    jimiiiii
    Newest Member
    jimiiiii
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.