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Genetic Testing Portland Oregon

Benedime

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Benedime Newbie
Benedime
Posted

Hi everyone I just recently went gluten free and it has changed my life I am convinced I have celiacs diseases because I have 20 plus symptoms that have all gone away since being gluten free. My blood test came back negative and my doctor said it may have been because I couldn't eat enough gluten. Then she suggested doing the biopsy of the small intestine but said I would have to eat extreme amounts of gluten for six weeks!! There is just no way I would be so sick.i have heard about the genetic testing and I think that is the best and most accurate way I just dont know where to get it. I'm in the Portland Oregon area and didn't know if someone could direct me to the right place. I mainly want to know because of the tax deductible they now have for people with celiacs disease. Thanks so much do reading :)

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frieze Community Regular
frieze
Posted

Hi everyone I just recently went gluten free and it has changed my life I am convinced I have celiacs diseases because I have 20 plus symptoms that have all gone away since being gluten free. My blood test came back negative and my doctor said it may have been because I couldn't eat enough gluten. Then she suggested doing the biopsy of the small intestine but said I would have to eat extreme amounts of gluten for six weeks!! There is just no way I would be so sick.i have heard about the genetic testing and I think that is the best and most accurate way I just dont know where to get it. I'm in the Portland Oregon area and didn't know if someone could direct me to the right place. I mainly want to know because of the tax deductible they now have for people with celiacs disease. Thanks so much do reading :)

the genetic testing will not give you a diagnosis. Not everyone with the genes developes celiac.

Benedime Newbie
Benedime
Posted
  • Author

the genetic testing will not give you a diagnosis. Not everyone with the genes developes celiac.

I understand that but I have been researching a lot on what the best and most accurate test would be and so far the blood work and biopsy are not that accurate. I hear the genetic testing is way accurate and if you have as many symptoms as I do that have gone away with a gluten free diet and the test shows you have it in your genes then you have a way more significant chance of having Celiacs. I also thought if the genetic test shows it in the genes then I would be a lot closer to getting diagnosed without trying to kill myself for six months eating gluten and getting a biopsy that will more then likely not be accurate. again if anyone knows of a place to get genetic testing in the Portland area or online that would be fantastic thanks so much for all the great info.

kareng Grand Master
kareng
Posted

Open Original Shared Link

"Who can order the gene test? Does

it have to go to a special laboratory?

How much does it cost?

Genetic testing is available through most doctors. At-home test kits are also available from Kimball Genetics and Prometheus Laboratories. Pricing for the test varies: at- home kits cost approximately $400; when done through a blood draw the test can cost as much as $2,000. More and more insurance companies are covering the cost for the test, especially if the individual be- ing tested has a risk factor for the disease."

MitziG Enthusiast
MitziG
Posted

Genetic testing can only say if you have celiac genes. It will get you no closer to a dx.

As for the tax deduction- well that is a joke. There are several threads here about it.

As I found out after saving a years worth of receipts for me and my 2 celiac kids, + having several thousand in medical bills- it wasn't enough to qualify for itemizing medical expenses. (Our family of 4 had over $8000 in med expenses, including gluten-free food) we would have needed 13000.00 to qualify. Which is ok, cuz it turns out you can only deduct the difference between reg and gluten-free food, and you have to provide PROOF of the cost of every comparable reg food item. And...apparently, claiming the deduction pretty much guarantees you an audit.

So if that is your motivation- forget about it.

As for gene testing...even if it identifies celiac genes...you may not have celiac. Or, it may say you DON'T have the genes, but you cud still have celiac. They just identify the most ccommon genes associated with it is all.

And, the reality is, you may not have celiac. Most on this board do not. But as many as 1 in 14 people are gluten intolerant, to varying degrees. The symptoms are identical to celiac. The difference is that the only test for gluten intolerance is that if you eat gluten, you react negatively to it. When you stop eeating it, you get better.

I get that you want the "validity" of a celiac dx- most here do. The reality however, is that few get it.

What matters is that you take charge of your health. If gluten makes you sick- please stop eating it. You don't need a doctors permission to be well.

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      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
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