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Right Upper Quadrant Pain

newceliac

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newceliac Enthusiast
newceliac
Posted

I haven't posted in a while...but I hope someone can you me some information. For about 3 days, I have been having right upper quadrant pain. It runs along the rib cage starting about 2 inches about belly button and down to bottom of rib cage on right side. The pain hurts underneath the rib cage also and seems to travel around to the back. It feel like something pressing on my ribs and almost feels like a burning pain at times. Intermitently when having this pain, I feel like I have lower abdomen cramping. I also randomly feel like there is muscle twitching in this area at lower rib cage. I don't really have nausea. The pain is similar to the gallbladder pain I had years ago, however my gallbladder has been removed. I went on a weekend vacation this past weekend in New Orleans. Although, I thoroughly discussed my gluten intolerance and they assured the food was gluten free, I know I am at their mercy when dining out. Could this pain be from possibly ingesting gluten? Has anyone ever experienced this pain? It is really starting to get on my nerves because I don't know what is causing it.

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Brenda Sue Newbie
Brenda Sue
Posted

Hi, this how my daughter was diagnosed with celiac disease. She had bad upper right quadrant pain so maybe you were glutened. Hope you feel better soon :)

CR5442 Contributor
CR5442
Posted

It could also be lack of CCK in the small intestine due to atrophy. This will prevent gallbladder contraction and opening of the sphincter of oddi. It is a functional problem I am having treated with acupuncture at the moment. It will fix when your gut is healed, till then it is a matter of trying to encourage this process without the CCK. I tried herbs but am sensitive to most of them - but they did work. Dandelion Root, Turmeric, Peppermint are all good for this. Try to lie back slightly leaning over to your left side after eating, preferably with a warm tea with a cholagogue/choleretic in it... any of the above. I used 2-3 drops of Peppermint EO for a while but it is high in salicylates, which I am also sensitive to. Let me know if you want more info. on this.

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    • heart390
      Why now?

      By heart390 · Posted

      THANKS again!!!
    • trents
      Why now?

      By trents · Posted

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    • heart390
      Why now?

      By heart390 · Posted

      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago.  The gluten will be my 4th autoimmune disease.  Thanks so much for all your input!!!
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      @ainsleydale1700, the additional test information you provided is very significant! Here is the important part: "This test detects IgG antibodies to tTG (tissue transglutaminase), and was performed because your IgA level is below normal. The immune response that occurs in celiac disease often leads to IgG antibodies against tTG." It looks to me that you may be a "seronegative" celiac. The frontline diagnostic tests for celiac disease are IGA tests, especially the tTG-IGA. However, another IGA test ("total IGA") was done to check you for IGA deficiency and you were found to be deficient. That means that the usual IGA tests done to diagnose celiac disease, such as the tTG-IGA, would not be reliable. That is why the IGG testing was done "reflexively" (which means in response to the results of a previous test, i.e., the total IGA test.). The IGG tests are not quite as reliable as the IGA tests for diagnosing celiac disease, meaning, there are more "other" possible causes for elevated IGG test scores. The IGG test did give a borderline positive result, however, so the physician ordered the endoscopy with biopsy to check for damage to the small bowel lining that would be caused by untreated (continuing to consume gluten) celiac disease. The biopsy showed no damage so the doc concluded you do not have celiac disease. However, the monkey wrench in the gears of the doc's conclusion is that he gave you permission to proceed with the gluten free diet which would have allowed for healing of the small bowel lining to commence. How long were you gluten free before the biopsy was taken? And how much damage to the small bowel lining was there to begin with? If the damage was minimal, it might have been fully healed by the time the biopsy was done. And the symptoms you describe involving vitamin and mineral deficiencies, tooth enamel loss, cessation of menses, neuropathy, constipation alternating with diarrhea . . . IMO all scream of celiac disease as opposed to NCGS.
    • trents
      Why now?

      By trents · Posted

      Yes, other health challenges and even severe prolonged emotional distress are thought to be potential triggers for the latent celiac genes. Let me encourage you to get tested for celiac disease as soon as possible so that you can get on with eliminating gluten from your diet, which itself will involve a considerable learning curve in order to become consistent at it. Even pills and meds can contain gluten because wheat starch can be used as a filler. It's important to know if you have celiac disease for two reasons. First, it damages the lining of the small bowel and, over time, wears down those billions of little fingers that make up the lining and produce a huge surface area for absorbing nutrients from the food we eat. The small bowel is essentially the place where all of our nutrition is absorbed. Long term undiagnosed/ignored celiac disease therefore results in nutritional deficiencies even when we are eating well. You don't need that with the other health issues you are dealing with.  Second, many or most people find it difficult to be consistent with the gluten free diet if they don't have a formal diagnosis of celiac disease. It is just too inconvenient and limiting and they begin to rationalize that, "Well, maybe my problems are due to something else." Human nature has a remarkable capacity to rationalize. It can be argued that you can cheat a little bit on the gluten free diet with NCGS because it only creates a little discomfort and distress but not damage. That doesn't work with celiac disease. So, I feel it is important to know which you are dealing with, especially in the case where you have not yet begun the gluten free diet and you are a good candidate for beginning testing. Many people make the mistake of experimenting with the gluten free diet before they get tested for celiac disease and then they have to go back on gluten for weeks or months, the so-called "gluten challenge", in order to achieve valid test results. By the way, autoimmune diseases tend to cluster. When you get one, it is very common to develop others in time. 
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