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Curious About What Vitamins Are You Deficient?

roxieb73

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roxieb73 Contributor
roxieb73
Posted

I just got some blood work back showing mild iron deficiency and SEVERE vitamin d deficiency. I was just wondering when or if you had vitamins labs drawn at the begining what everyone was deficient in. Here are my labs.....

VITAMIN D, 25 OH

TOTAL 9 ng/mL Low *Range* 30-100ng/ml

Therapy is based on measurement

of Total 25-OHD, with levels <20

ng/mL indicative of Vitamin D

deficiency while levels between 20

ng/mL and 30 ng/mL suggest

insufficiency. Optimal levels are

>/=30 ng/mL.

VITAMIN B12 553 pg/mL *Range* 200-1100 pg/ml

Optimal levels for women 800 pg/ml

Between 400-800 pg/ml daily vitamin recommended

FOLATE,

SERUM

12.5 ng/mL

Reference Range

Low:

<3.4

Borderline: 3.4-5.4

Normal:

>5.4

IRON AND TOTAL IRON BINDING CAPACITY

% SATURATION 13 %(calc) Low *Range* 15-50

Optimal %25-%35

IRON BINDING CAPACITY 427 mcg/dL *Range* 250-450 mcg/dL

Optimal <350

IRON, TOTAL 56 mcg/dL *Range* 40-175 mcg/dL

Optimal for women over 110

Below 80 multivitamin

MAGNESIUM 2.2 mg/dL 1.5-2.5 mg/dL

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MitziG Enthusiast
MitziG
Posted

For me, iron, vit E and Vit D- most of the population is D deficient due to the time we spend indoors. Celiac just makes it worse though.

christianmom247 Explorer
christianmom247
Posted

I also had low iron and Vit. D with everything else in the normal range. Blood calcium was ok but a scan showed osteopenia. Taking supplements for both in addition to a multivitamin.

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted

I haven't been diagnosed with Celiac(getting test done tomorrow) but I do have Hashimoto's ..my Vitamin D was really low 21 and my B12 is at 274 that's still in range but I believe that is still a low number

My labs showed that I was iron deficient but my iron level was ok...weird...

roxieb73 Contributor
roxieb73
Posted
  • Author

Seems Iron and Vit D are common or is it they are just more often tested??

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted

Seems Iron and Vit D are common or is it they are just more often tested??

I don't know...I've always had to request testing for iron and vitamins.

roxieb73 Contributor
roxieb73
Posted
  • Author

I haven't been diagnosed with Celiac(getting test done tomorrow) but I do have Hashimoto's ..my Vitamin D was really low 21 and my B12 is at 274 that's still in range but I believe that is still a low number

My labs showed that I was iron deficient but my iron level was ok...weird...

If you look at my labs above you will see optimal ranges and 274 IS low! My D is low too at 9! :( Funny I am also iron deficient but in the "normal" range. However normal is more than 40 but where they want you to be is 110! Big difference. My %saturation is %13 and low. All my levels continue to drop. I had them tested 2 months ago and my % saturation was %15. Tells me they are just not out of range YET. ;)

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christianmom247 Explorer
christianmom247
Posted

Seems Iron and Vit D are common or is it they are just more often tested??

I had the whole range of blood tests done: B12, B6, magnesium, copper, zinc, etc., and only the Iron and Vit. D were a problem.

beachbirdie Contributor
beachbirdie
Posted

Ferritin (iron storage) and Vitamin D. Low normal B12.

woodnewt Rookie
woodnewt
Posted

My B12 was around 120 when I was diagnosed with celiac and has since gone up to very normal levels (>500). I have to take daily D3 drops because my vit D does not go up even with sun exposure. It was <20 and it is >40 now. I have never had iron deficiency, though I know it's common with celiac.

heather806 Rookie
heather806
Posted

This is right up my alley...

Just got diagnosed yesterday but for years have had problems with calcium, magnesium, vitamin D, B vitamins and iron/ferritin. Have received many iron iv infusions and take daily mega-doses orally of the others. Low calcium landed me in the hospital years ago, and it appears that the cause was/is Celiac.

I can deal with the crazy low iron, low vit d etc, but when calcium gets too low it is really scary. (started as pins and needles over a couple of days but then had sudden tetany in hands and feet, couldn't move those muscles at all, heart palpitations etc, numbness in whole body). They kept me in the hospital for 5 or 6 days... I urge everyone to get their calcium checked.

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted

This is right up my alley...

Just got diagnosed yesterday but for years have had problems with calcium, magnesium, vitamin D, B vitamins and iron/ferritin. Have received many iron iv infusions and take daily mega-doses orally of the others. Low calcium landed me in the hospital years ago, and it appears that the cause was/is Celiac.

I can deal with the crazy low iron, low vit d etc, but when calcium gets too low it is really scary. (started as pins and needles over a couple of days but then had sudden tetany in hands and feet, couldn't move those muscles at all, heart palpitations etc, numbness in whole body). They kept me in the hospital for 5 or 6 days... I urge everyone to get their calcium checked.

wow that's scary!! I just checked my labs( I had a blood workup done a few months ago) my calcium is 8.9 and the range is 8-20 so I wonder if mine is considered really low, even though it's in range?? How low was your calcium?

heather806 Rookie
heather806
Posted

wow that's scary!! I just checked my labs( I had a blood workup done a few months ago) my calcium is 8.9 and the range is 8-20 so I wonder if mine is considered really low, even though it's in range?? How low was your calcium?

When I was admitted to the hospital it was a 5.3, considered "critically low." I worked my way up to the 8's and as long as I take 3000 mg a day (6 500mg tabs) it seems to stay in the 8's. It was 8.9 last friday, woot! You are okay. :)

Mom-of-Two Contributor
Mom-of-Two
Posted

I was a teeny bit low in iron and folate- my D level was 36, which is in normal range but still hoping to raise it up, my B12 was 357 which is normal, but also think that could be up quite a bit.

I started a good quality B complex for the folate and B vitamins, and an iron supplement, in addition to my vitamin D. I also take probiotics and digestive enzymes, and fish oil by Carlson's.

I take a magnesium complex but not regularly because I just forget.

roxieb73 Contributor
roxieb73
Posted
  • Author

Well all in all it seems iron and vitamin d are the main ones with b-12 ferritin and calcium to follow. I guess it all depends on where the damage is done.

PNW Rick Newbie
PNW Rick
Posted

Iron, B12, Folate, D, E, Calcium, Magnesium.

My Iron is inline now, so I quit taking an Iron Sup.

Taking a Fist Full of pills at each meal is getting old, but I am feeling better and starting to sleep better.

Here is my regime.

Morning.

2 Alive Max potency (Natures Way)

2 B Stress Complex (Twin Lab)

1 10K IU Vit D (Carlson)

2 Super E complex (Twin Lab)

Methyl B12 5000mcg (Jarrow Formulas)

5-MTHF Ultra Folate 800mcg(Kal)

1 Vita A 25K IU (Country Life)

Anti Viral

Anti Biotic

L-Glutamine 1K

Afternoon:

2 Alive Max potency (Natures Way)

1 B Stress Complex (Twin Lab)

1 10K IU Vit D (Carlson)

1 Vita A 25K IU (Country Life)

Omega Fish Oil 1250mg (Carlson Elite Omega3 Gems)

Anti Viral

Evening:

Anti Fungal every other night

Anti Viral

ProBiotic 85 Billion live & 31 strains (Garden of Life RAW)

Benadryl 50mg

Kirkland muscle relaxer

Just ordered a Cal/Mag/Zinc complex, Ester C, Carotenoid Complex, CoQ-10 mega gel, and the Enzymatic Therapy Fatigued to Fantastic Adrenal Support.

VitaCost is an awesome place to get Vites and Sups and all kinds of other stuff. Saved a ton of money, way over half of what I'd been spending shopping locally at the sup shopps.

roxieb73 Contributor
roxieb73
Posted
  • Author

Just ordered a Cal/Mag/Zinc complex, Ester C, Carotenoid Complex, CoQ-10 mega gel, and the Enzymatic Therapy Fatigued to Fantastic Adrenal Support.

I see this one for Adrenal support is it common for adrenal problems in Celiac? I just ask because I have had Adrenal problems for sometime now.

MoMof2Boyz Enthusiast
MoMof2Boyz
Posted

PNW Rick, where are you getting the MTHFR ultra folate? which MTHFR mutation do you have? just curious!

hannisa Rookie
hannisa
Posted

I was suffering with an irregular heartbeat, had blood tests for it, found I was low in calcium and vit D and from there ended up with the diagnosis of celiacs.

I had no idea low calcium could lead to heart irregularities; it sure was a relief when my heart got back to normal.

robertwilburn35 Newbie
robertwilburn35
Posted

That is wierd but one poss explanation is due to total iron, bound and free iron levels. total is obvious. bound is that iron that is calculated in form of rbc count, and free. so if you are low on free iron you are getting enough but your body is using it to make rbc which is why total may be normal. however if free is high then you are getting it in but body is missing something (folic acid, b12 ect) in its ability to use it.

robertwilburn35 Newbie
robertwilburn35
Posted

Hannisa, Calcium is nesesary for all muscle contractions so that is why with certain dysrythmias dr orders calcium channel blockers to slow or control Heart Rate.

  • 1 month later...
heather806 Rookie
heather806
Posted

Well all in all it seems iron and vitamin d are the main ones with b-12 ferritin and calcium to follow. I guess it all depends on where the damage is done.

I've been gluten-free for just under 2 months now and will be getting my vitamin levels checked at the end of this month -- curious to see if they've budged at all. If anyone here had vitamin issues, how long after going gluten free did you get them tested again and did they improve at all? I am continuing my Calcium/D/B-12/Mag doses but not receiving any iron infusions (I had started getting reactions to them anyhow and was "cut off").

This gluten-free stuff is not so bad! Eating out can be challenging and I have to plan more if we're going to be away from home but I've lost weight without effort and my tummy is flatter than ever. :)

  • 4 weeks later...
Kar1972 Newbie
Kar1972
Posted

Vitamin D here (41) but B vitamins were okay. That's all I got tested for.

squirmingitch Veteran
squirmingitch
Posted

My D was low at 25 with a range of 30 - 100. Iron okay.

GottaSki Mentor
GottaSki
Posted

At Dx I was low in B1 and B12 - extremely low in D, K, Zinc and Copper. Currently I am not deficient in any nutrients - took just over two years gluten-free plus supplementation to get to normal ranges.

For decades I had very low iron - it became normal when I stopped menstruating at 37. Anemia/iron supplementation was the only diagnosis I received from doctors for decades. I never had all of my nutrients tested until I met with a the Celiac Doc because of a positive tTG IgA at 43. I did have one extremely low D prior to Celiac Dx - but don't think it was ever run before that.

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      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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