Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Happen To Anyone Else Here?


GFreeMO

Recommended Posts

GFreeMO Proficient

Every time I get glutened, I get intense intestinal cramps that feel like I ate cement and glass, bloating and gas for several days. A few days of D then it goes into C with floating stool.Then as the pain lessens, I get mucous, but not always in the stool. Often I will pass gas and pass mucous. OR I feel like I have to go but just pass gas and mucous. After the mucous stage I start feeling well again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Every time I get glutened, I get intense intestinal cramps that feel like I ate cement and glass, bloating and gas for several days. A few days of D then it goes into C with floating stool.Then as the pain lessens, I get mucous, but not always in the stool. Often I will pass gas and pass mucous. OR I feel like I have to go but just pass gas and mucous. After the mucous stage I start feeling well again.

Hi gluten-free. Yup, same thing. The cramps are quite severe, then the D and onto to C. I am prone to C so that doesn't surprise me. Have you been tested for Fat Malabsorbtion? The mucus your seeing may actually be fat. I have it and yes it can come out with or without stool. Can be small and mucus like or have a life of its own. May be something to look into.

Your reaction to gluten seems perfectly normal to me.

GFreeMO Proficient

Hi gluten-free. Yup, same thing. The cramps are quite severe, then the D and onto to C. I am prone to C so that doesn't surprise me. Have you been tested for Fat Malabsorbtion? The mucus your seeing may actually be fat. I have it and yes it can come out with or without stool. Can be small and mucus like or have a life of its own. May be something to look into.

Your reaction to gluten seems perfectly normal to me.

Thanks so much for answering my question. I do think it may be fat and not mucus because as soon as the pain subsides, the symptom stops as well. I think when I am absorbing my food, the fat malabsorbtion stops.

GFreeMO Proficient

Hi gluten-free. Yup, same thing. The cramps are quite severe, then the D and onto to C. I am prone to C so that doesn't surprise me. Have you been tested for Fat Malabsorbtion? The mucus your seeing may actually be fat. I have it and yes it can come out with or without stool. Can be small and mucus like or have a life of its own. May be something to look into.

Your reaction to gluten seems perfectly normal to me.

Does this happen to you only when glutened or does it come and go? I was glutened a week and half ago. It stopped for a few days but is now back. I can usually trace it back to gluten and or corn. I haven't had either I am sure of so I guess I am still healing from the last zap.

GF Lover Rising Star

Does this happen to you only when glutened or does it come and go? I was glutened a week and half ago. It stopped for a few days but is now back. I can usually trace it back to gluten and or corn. I haven't had either I am sure of so I guess I am still healing from the last zap.

It happens when glutened, too much caffeine or stimulants, severe anxiety, have had it with heat exhaustion also. These cases are not as severe as being glutened but follow the pattern.

GFreeMO Proficient

It happens when glutened, too much caffeine or stimulants, severe anxiety, have had it with heat exhaustion also. These cases are not as severe as being glutened but follow the pattern.

Same thing for me. It's usually the last symptom in a series of symptoms from being glutened. Same exact thing every time. Once it resolves, I am good to go...until.....the next glutening. :rolleyes:

GF Lover Rising Star

Same thing for me. It's usually the last symptom in a series of symptoms from being glutened. Same exact thing every time. Once it resolves, I am good to go...until.....the next glutening. :rolleyes:

Yup, that's basically how I know I've had gluten. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LeahBanicki Rookie

When I was first diagnosed gluten-free I would sing a song outloud when I would be tempted to eat gluten-filled foods.

Annie Lenox song - Feels just like I'm swallowing broken glass

Swallowing swallowing broken glass

It amuses me still. :)

Leah B

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,034
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.