Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Having Reactions Like Gluten In The Morning And Miday And Don't Know Where To Turn.


mommyto2kids

Recommended Posts

mommyto2kids Collaborator

Today I ate a protein shake and gluten-free o's. As soon as I had to go to the store with my kids, I had to go again. I had to go again at the store, barely making it. At first I feel nautious and then I have to poop. I just took 2 imodium. I haven't had gluten. I just don't know. I had an Amys tv dinner last night and cottage cheese. I also had some coconut died. Should I try to find a diatitian to help me? I'm not sure it would be covered by our insurance. I just hate feeling anxiety like I'm going to get sick in the car. It is the worst. Should I try a certain diet, Palio or I have no idea. I'd love ideas of what to aliminate. The protein shake was soy and diary. Do some people have more trouble with soy than diary? I also ate a big salad yesterday. Was that too much? I would love your thoughts. Thanks so much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

There are folks that do react to Amy's because of CC issues. If your new to the diet you should be going with more whole foods and less processed.

Soy and dairy are also things that some of us have issues with.

You may want to go with more whole foods and keep a symptom and food log. Reactions can be delayed so it is helpful in seeing a pattern.

I hope you feel better soon.

mommyto2kids Collaborator

No I've been on the diet for a year. Most of the time I'm ok. This last week I've had some symptoms and today was pretty bad. I also had a gluten-free donut last night. Sometimes I react to them, such a bummer because they are so good. I will try to start writing things down. But who could help me with it from there?

dilettantesteph Collaborator

I figured it out by keeping a food diary. I kept track of not only what I ate, but what brands they were. Some celiacs are sensitive to lower levels of gluten than others. Some of us have problems with cc from shared facilities and some of us don't. Some of us have other food intolerances. A food/symptom journal was invaluable for me. I wish you the best with figuring it all out. We are all different, though there are some commonalities and finding people who react like you do can be very helpful. It can also be helpful to keep track of amounts eaten, cc is additive.

Juliebove Rising Star

My first thought would be the Amy's. But... You could also have a food allergy or intolerance. I am intolerant to several foods. Just a slight amount of egg or dairy will give me symptoms like you describe. Before you do anything else, you might want to keep a food diary. Just buy yourself a cheap notebook and write down everything that you eat. Then if you have a reaction, write that down and the time as well. My reactions are much delayed. So they often occur about 16 hours after I eat the offending food.

tom Contributor

No I've been on the diet for a year. Most of the time I'm ok. This last week I've had some symptoms and today was pretty bad. I also had a gluten-free donut last night. Sometimes I react to them, such a bummer because they are so good. I will try to start writing things down. But who could help me with it from there?

I too found out a lot w/ a food/symptom diary. It helps to be eating more simply, or you may only narrow down the issue to "one or more ingreds in this 3 inch list".

So, gluten-free for a year and mostly ok is a pretty good scenario for the diary to be helpful.

Was that the 1st time you tried the protein shake or that particular type of Amy's dinner?

Btw, if you use a smartphone, it's pretty handy for the diary when wondering what happened last time Product/Food X was eaten. Cntl-F search "food x" and Bam, I'm reading it.

Also, if this week is the worst of a whole gluten-free year, did a neighbor just get a hay delivery? Or if you have a pet, made a change in petfood? Or something else change besides ingestibles? Worth thinking about if this week worst in a yr.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,039
    • Most Online (within 30 mins)
      7,748

    Briannas01
    Newest Member
    Briannas01
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.