Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Little Wins That Other People Don't Get

Adalaide

Recommended Posts

Adalaide Mentor
Adalaide
Posted

So I was in the kitchen this morning with my husband. He was microwaving his last breakfast sandwich (yay!) and I was getting my morning cottage cheese, flax and fruit. I looked at him and said I should have started eating flax a long time ago and he asked why. I was like, I've never pooped so much like a normal human being in my life. I said this with a huge smile on my face, genuinely excited. He looked at me as if I'd just been the victim of an alien abduction. :lol: I had to come here and share because at least you guys will get it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

Hey, first time I went a whole week with normal poo I had a party. I get it!

RonSchon Explorer
RonSchon
Posted

I will look forward to that day. I was just diagnosed last week, after about 14 years of ever increasing symptoms. The toilet was a first warning sign for me. My wife (ex wife now, yes, it cost my marriage) would be so upset at how much time I spent in the bathroom.

Adalaide Mentor
Adalaide
Posted
  • Author

It gets better Ron! My GI symptoms improved greatly over the 6ish months since my dx but it wasn't until I added the flax that have truly felt normal in that department.

I'm so sorry that it ruined your marriage. It's a real jerk-detector and the people who have relationships that have endured are truly lucky. I hope you find at least some symptoms resolve quickly for you.

sharilee Rookie
sharilee
Posted

So I was in the kitchen this morning with my husband. He was microwaving his last breakfast sandwich (yay!) and I was getting my morning cottage cheese, flax and fruit. I looked at him and said I should have started eating flax a long time ago and he asked why. I was like, I've never pooped so much like a normal human being in my life. I said this with a huge smile on my face, genuinely excited. He looked at me as if I'd just been the victim of an alien abduction. :lol: I had to come here and share because at least you guys will get it.

The first time I had a normal bowel movement after being diagnosed with celiac I was so excited and even more excited when I went several days in a row without an attack. I wanted to throw a party.

sharilee Rookie
sharilee
Posted

I will look forward to that day. I was just diagnosed last week, after about 14 years of ever increasing symptoms. The toilet was a first warning sign for me. My wife (ex wife now, yes, it cost my marriage) would be so upset at how much time I spent in the bathroom.

It does get better with time. I have been gluten free since late February and it took about three months for things to start to return to normal. I still have problems but not every day like I was, now I will go several days with no problems. I am sorry it cost you your marriage, any type of illness can put a strain on marriage.

KMMO320 Contributor
KMMO320
Posted

I went gluten-free for 3 weeks and during that time I felt like a real, normal human being. When I went to the bathroom it was normal, and I wasnt sitting there in agonizing pain with gut wrenching cramps like I am used to.

I would come out of the bathroom with tears in my eyes. It felt like the greatest accomplishment to have a normal movement.

I am now back on gluten because my dr said she did not see any reason to go gluten-free...needless to say, I am switching docs but that also means keepin gluten in my system for a few more weeks in case of further testing.

I miss those "normal" days. It is amazing how quickly the cramping comes back :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skittles Enthusiast
Skittles
Posted

Ohh my God I can only imagine how you must feel! I have been gluten free for 2 months and am having a little bit better bowel movements but I cannot wait until I am actually regular, I told my friends we are having a big party! haha.. I haven't tried the flax yet though but I am going to get on it asap! :)

goblue2014 Newbie
goblue2014
Posted

7 months gluten free and I still don

IrishHeart Veteran
IrishHeart
Posted

Well, I am doing the happy dance for you. :lol: I will, in fact, stand up and applaud you right now...hold on....(sounds of IH clapping wildly)

I know you were not super crazy about the ground flax seed idea, but we told ya it would do the trick! That stuff is full of fiber and omega 3's. It's a win-win.

And for what it is worth, I knew where every bathroom was within a 150 mile radius of my home. I have had D or C since I was a babe.

I have had to resort to a lined wastebasket and the side of the road in the great outdoors on occasion. Just peachy. :rolleyes:

When very ill from the celiac, I went and went and went and then... did not. For days. Pain? OY!

Until now. Between the flax, the probiotics and being gluten-free and healing from the celiac damage, I am right as rain for the first time in my entire life.

So, whoohoo and thank the universe for little victories (that are really pretty big indeed!) :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748
    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.