Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Called After Hours


Lisa

Recommended Posts

Lisa Mentor

Hey Fellow celiac disease's (or rather guys with celiac disease, better?)

Just got a call from my new internist Dr. at 6:30 this evening. He saw his patients all day and he sits down and calls who he feels he needs too. Boy was I impressed. I certainly made a point of telling him that. As long as he stays here, he will be my Dr. for life.

Results: Anti-body test for Celiac was Neg. BUT....I told him that by the time they drew blood for testing, I was on (as best as I could) the gluten-free diet for about three weeks and he said that that would definately effect the results. Good news is that every thing else looked good....Liver, pancreas, gall blatter, bla, bla, bla...

So that is good. Yeah for me.

B-12 level was the ONLY thing that needed addressing. So he suggested B-12 shots once a week for a month, then once a month. Fatigue is a very real issue for me now.

gluten-free diet is working. Acid, mostly gone, am. poops sink, (after lunch sometimes not), but improving every day.

Just wanted to say that you all have taught me alot and would encourage any new members to read as much on the site that they can. It is VERY time consumming, but well worth it toward improving your health.

Yeah for me...now I just need to keep the pine trees off my house tomorrow night. Now that's the pits.

Thanks you all for your help Lisa B


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
Results:  Anti-body test for Celiac was Neg.  BUT....I told him that by the time they drew blood for testing, I was on (as best as I could) the gluten-free diet for about three weeks and he said that that would definately effect the results.  Good news is that every thing else looked good....Liver, pancreas, gall blatter, bla, bla, bla...

So that is good.  Yeah for me.

B-12 level was the ONLY thing that needed addressing.  So he suggested B-12 shots once a week for a month, then once a month.  Fatigue is a very real issue for me now.

gluten-free diet is working.  Acid, mostly gone, am. poops sink, (after lunch sometimes not), but improving every day.

<{POST_SNAPBACK}>

Congrats on the responsive doctor and the good (at least, readily dealt with) lab results! :-)

Lisa Mentor

Thanks I feel mentally stronger.

Canadian Karen Community Regular

Wow Lisa,

Sounds like you have a really dedicated doctor there. He's definitely a keeper!

Well, it sounds like everything is under control except for the B12. The shots should take care of that though.....

I really happy you got such great news......

Now make sure you take cover before Hurricane Ophelia hits!!!!

Hugs.

Karen

frenchiemama Collaborator

My doctor is like that too. She called me at like 7:30 pm to tell me that my results came back positive. She has been fantastic. She didn't really know much about celiac disease, but since my diagnosis she has been going way out of her way to learn about it, she even went to a seminar to learn more.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,610
    • Most Online (within 30 mins)
      7,748

    wonderproductions
    Newest Member
    wonderproductions
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • itsdunerie
      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.