Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's A "nogo" Week


BRCoats

Recommended Posts

BRCoats Enthusiast

Hey all,

I'm sure you've all experienced a "NoGo" week, meaning never having a bowel movement. In fact, it's actually been more like two weeks. But here's the trick. I can't have fiber, no fiber supplements, no magnesium supplements, and no vitamin C. All of the above cause major problems with my gastroparesis (paralyzed stomach). Oh, and I can't do prune juice....or any juice for the matter. Nothing acidic at all. So....my question is.....is there anything out there that I'm missing that would cause me to actually go to the bathroom??? I even tried a castor oil pack last night, and it just made me sick all today. So i'm about ready to give up!! :angry:

Please help if you have ANY ideas. I'm up for anything at this point. :(

~Brenda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mstrain Rookie

Wow - sorry to hear of your discomfort. I can't believe the things you cannot have! You said nothing acidic and no juice - would this include all fruits as well? Blueberries and raisins always seem to work wonders on my kids (grapes also) but are you even allowed these items? Wishing you well.

tarnalberry Community Regular
Hey all,

I'm sure you've all experienced a "NoGo" week, meaning never having a bowel movement. In fact, it's actually been more like two weeks. But here's the trick. I can't have fiber, no fiber supplements, no magnesium supplements, and no vitamin C. All of the above cause major problems with my gastroparesis (paralyzed stomach). Oh, and I can't do prune juice....or any juice for the matter. Nothing acidic at all. So....my question is.....is there anything out there that I'm missing that would cause me to actually go to the bathroom??? I even tried a castor oil pack last night, and it just made me sick all today. So i'm about ready to give up!!  :angry:

Please help if you have ANY ideas. I'm up for anything at this point.  :(

~Brenda

<{POST_SNAPBACK}>

Senna? Senekot (OTC brand) was recommended to me by my doctor, and it did indeed work. It's not a fiber supplement, but it helps get the bowels moving. You might also look into dandelion root (in a tea) or aloe, from what I understand of herbal lore. I've also found that exercise helps - something high impact, like running.

Jen H Contributor

Can you eat salad? That seems to work well for me. I've also heard that exercise can help with constipation. Hope you're feeling better soon.

Jen

Guest nini

apples seem to work for me...

BRCoats Enthusiast

Wow. Thanks for all the replies...but....can't do any of them. I've tried senna before and thought I was gonna die (won't go into detail). :) Can't do salad, grapes, raisins, aloe....I tell ya'....I've tried everything. :( This has been going on for three years. No joke. I had a short period of time where I was actually going too much...but that has ended, and now I'm back to this clogged mess. I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

Sorry for the rant. But thanks for the concern. I crave all those good for you foods something terrible. I'm sure the fact that I eat meat and cheese all the time doesn't help. But it's all that agrees with my stomach. I homeschool three kids, so I don't feel like I can "afford" to be down for a day.

Ok, done with my pity party. :D Thanks again. Keep the ideas coming if you have them!

~Brenda

nogluten- Newbie
Wow. Thanks for all the replies...but....can't do any of them. I've tried senna before and thought I was gonna die (won't go into detail).  :) Can't do salad, grapes, raisins, aloe....I tell ya'....I've tried everything.  :( This has been going on for three years. No joke. I had a short period of time where I was actually going too much...but that has ended, and now I'm back to this clogged mess. I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

Sorry for the rant. But thanks for the concern. I crave all those good for you foods something terrible. I'm sure the fact that I eat meat and cheese all the time doesn't help. But it's all that agrees with my stomach. I homeschool three kids, so I don't feel like I can "afford" to be down for a day.

Ok, done with my pity party.  :D Thanks again. Keep the ideas coming if you have them!

~Brenda

<{POST_SNAPBACK}>

When I can't go Coca Cola works. :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
Wow. Thanks for all the replies...but....can't do any of them. I've tried senna before and thought I was gonna die (won't go into detail).  :) Can't do salad, grapes, raisins, aloe....I tell ya'....I've tried everything.  :( This has been going on for three years. No joke. I had a short period of time where I was actually going too much...but that has ended, and now I'm back to this clogged mess. I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

Sorry for the rant. But thanks for the concern. I crave all those good for you foods something terrible. I'm sure the fact that I eat meat and cheese all the time doesn't help. But it's all that agrees with my stomach. I homeschool three kids, so I don't feel like I can "afford" to be down for a day.

Ok, done with my pity party.  :D Thanks again. Keep the ideas coming if you have them!

~Brenda

<{POST_SNAPBACK}>

Well, for me bananas, rice and cheese bind me something horrible. I can do citrucel, which you say you can't. How about dried apricots? Usually three in the morning for a few mornings works for me. When things are really bad there's always good ole Milk of mag. I have to be careful with that. One little sip and the next day I'm really loosened up, if you get my drift.

julie5914 Contributor

What's in that Fleet stuff that you drink? I'm not sure if you can have it but it works....maybe too well. If you take it at night, you will be up all night, and if you take it during the day, let's just say avoid being around people. It will clean you out though.

tarnalberry Community Regular
I do exercise some, but my energy and time levels are limited. I usually walk every day, probably a quarter to half of a mile, depending on how energetic I am. Plus, I do lots of housework.

<{POST_SNAPBACK}>

Just for reference, walking isn't high impact enough to "jar those nerves" in the intestinal system. (I'm talking jogging at least 5mph for at least 20 minutes, kind of thing.) I can understand if something that involves high impact is a problem with the energy restrictions, but walking is the "one tylenol" equivalent to treating a migraine that should be getting migraine medication. Sometimes, if it's all we have, though, it's what we have to work with. Sorry that those won't work though... That problem is NOT a comfortable one. :-(

skbird Contributor

Coffee works for me sometimes, doesn't have to be caffeinated. Also, you could look into those Fleet enemas - they are disposable and, well, at some point, ya gotta go, right? I'm sorry magnesium doesn't work for you, that is my secret weapon.

Lots of water. Very good because moisture in the gut is what you need to move things along. Is it you can't have fiber because of what fiber does (being tough to "stomach")?

I used to try aloe but found that every brand includes citric acid and I'm allergic to the mold that is used to make it.

Maybe you should look into the specific carbohydrate diet? That seems to cause initial diarrhea in people but then helps to heal their gut.

I hope someone has a good answer for you, sounds like a tough place to be!

Stephanie

BRCoats Enthusiast

Stephanie,

I've actually tried the SCD. The reason it didn't work, is that I am unable to get enough carbs from it. So my energy level went down to ZIP!!! I mean, I was unable to do ANYTHING. It was incredible. They rely on honey and fruit sugars for carbs, both of which make me sicker than a dog. :angry:

As for coffee....I haven't really tried it. Before celiac disease and gastroparesis, I couldn't drink it, because it makes my heart flutter - yes, even the decaf (I've had open heart surgery and have a pacemaker also). So I guess I haven't even figured on trying that. But....I haven't really tried it since the heart surgery.....so maybe I'll give it a try (a very diluted try!). :lol:

To answer your question, yes, I can't have the fiber because it's too hard to digest. My stomach just can't handle it. :(

tarnalberry,

Well...I could start jogging for five minutes a day and work up from there maybe. Worth a try, eh?

nogluten,

Coca cola won't do it. Doesn't even phase me in that way. :( Thanks for the suggestion anyway!! As for dried apricots, I doubt that would work. I haven't been able to eat any dried fruit, so I'm not sure they would be any different. And any laxative that I've tried works well enough, but I'm deathly ill afterwards. I even run a fever. I mentioned trying the castor oil pack the other night, and I've been sick with a fever since. Weird......I still don't know why that is!!

Thanks everybody. I really do appreciate the time you spend in replying. And again, if there's any more ideas....I'd love to hear them!! :D Like coffee....hadn't thought of that. :o

~Brenda

P.S. Cute picture, Stephanie. :lol:

tarnalberry Community Regular
Well...I could start jogging for five minutes a day and work up from there maybe. Worth a try, eh?

<{POST_SNAPBACK}>

That's a great idea! And you probably wouldn't have to work up for too long (maybe two weeks) to figure out if it will help you or not.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.