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Hi

iamrose

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iamrose Newbie
iamrose
Posted

Hello. I found this site from the Glutino site. Wanted to say 'hello'.

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bartfull Rising Star
bartfull
Posted

Hi Rose. I'm glad you found us! Do you have celiac or gluten intolerance? How long? Tell us a bit more about yourself, then dig in and read. This is the coolest site on the web, filled with some of the smartest, most supportive people you will find anywhere. Glad you could join us, and I hope you stick around.

GFinDC Veteran
GFinDC
Posted

Welcome Rose! Glad you joined us. We like to talk a lot but we can pause once in a while for a few seconds to say hello to new members I guess. So hello! :)

Just in case you are celiac are NCGI or wheat allergic or diabetic or autistic, or have Crohn's or just trying the gluten-free diet out, here are some threads with stuff to fill your brain:

FAQ Celiac com

https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

How bad is cheating?

  • 4 weeks later...
Trotski01 Newbie
Trotski01
Posted

Hi I am Helen,

I am new to this site too, only got diagnosed as coeliac 3 days ago.

jerseyangel Proficient
jerseyangel
Posted

Welcome Helen and Rose:). Glad you found us-- don't hesitate to let us know how we can help.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hello Helen and Rose! Welcome. There's tons of info here, so read around a bit. There's a search box near the top right of your screen if there's a topic you're especially interested in. Please ask any questions you may have. We allow venting if needed too. :D

  • 4 weeks later...
Gemme Rookie
Gemme
Posted

I am also new here , good, perfectplace for learning and making friends!

Good Luck

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luckyme2 Newbie
luckyme2
Posted

Hi everybody :) !

I'm new here,too. My name is Anete,and I'm from the other coast (Eastern Europe). I recognized this disease some 5 years ago,didn't understand what's going on with me. Doctors here avoid such thing as celiac. I started to avoid glutens and my health improved. I'm fighting secretly,because it's a shame here to have any disease. My relatives and "friends" still make bad jokes on this theme. Now my diet is much healthier because I make my meals myself (for my family,too). Hope I can help somebody with my experience.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hi everybody :) !

I'm new here,too. My name is Anete,and I'm from the other coast (Eastern Europe). I recognized this disease some 5 years ago,didn't understand what's going on with me. Doctors here avoid such thing as celiac. I started to avoid glutens and my health improved. I'm fighting secretly,because it's a shame here to have any disease. My relatives and "friends" still make bad jokes on this theme. Now my diet is much healthier because I make my meals myself (for my family,too). Hope I can help somebody with my experience.

Hello and welcome Anete. I'm so sorry you don't have the support of your friends and family..or medical people. I'm glad you figured this out for yourself though.

We're here for you! :D

GottaSki Mentor
GottaSki
Posted

Welcome Rose, Helen, Gemme and Anete!

Glad you all found this forum - it really is the best place to come to get information, gain support, ask questions are simply vent when needed.

Fantastic accomplishment Anete - sounds like you are very strong to have tackled living gluten-free without support from doctors, family or friends. I am sure your experience will help others that visit this site.

Best wishes and happy healing to you all :)

scaredblossom Rookie
scaredblossom
Posted

Hi all, fairly new here to. I haven't gotten a professional diagnosis, but with eliminating gluten I self diagnosed myself ;)

I have missed this site the last few months....lost it on my computer :huh: I'm back now though and look forward to actually getting to know some others out here that have the same issues and hear success stories...I'm much more positive these days!! Things are getting better everyday!!

SensitiveMe Rookie
SensitiveMe
Posted

Hi Rose, I am a Rose also. :)

I am fairly new here myself so Hi to others new...Helen, Anete, Gemme, scaredblossom. :)

GFinDC Veteran
GFinDC
Posted

Hi Rose, I am a Rose also. :)

I am fairly new here myself so Hi to others new...Helen, Anete, Gemme, scaredblossom. :)

Welcome to all the newbies! We have lots of room at the forum inn, so make yourselves at home.:D

Making-A-Change Newbie
Making-A-Change
Posted

Hello everyone. I am also new here. My name is Eddie. I am female lol. I also am self diagnosed right now. Maybe forever since my doc doesnt take this thing seriously at all. So here I am trying to get some good quality info under my belt to help me on this journey of becoming gluten free. :)

1desperateladysaved Proficient
1desperateladysaved
Posted

Hi to all, :)

Get better soon.

Not too many send flowers for Celiac, so here is my best.

* * *

*0* *0* *0*

! ! !

I am thinking some artist can do better, but those are the best flowers I got. I have much better ones in the garden, but I couldn't get them into the computer.

Diana

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  • Recent Activity

    1. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
    3. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to...
    4. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes...
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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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