Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi


iamrose

Recommended Posts

iamrose Newbie

Hello. I found this site from the Glutino site. Wanted to say 'hello'.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Hi Rose. I'm glad you found us! Do you have celiac or gluten intolerance? How long? Tell us a bit more about yourself, then dig in and read. This is the coolest site on the web, filled with some of the smartest, most supportive people you will find anywhere. Glad you could join us, and I hope you stick around.

GFinDC Veteran

Welcome Rose! Glad you joined us. We like to talk a lot but we can pause once in a while for a few seconds to say hello to new members I guess. So hello! :)

Just in case you are celiac are NCGI or wheat allergic or diabetic or autistic, or have Crohn's or just trying the gluten-free diet out, here are some threads with stuff to fill your brain:

FAQ Celiac com

https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

How bad is cheating?

  • 4 weeks later...
Trotski01 Newbie

Hi I am Helen,

I am new to this site too, only got diagnosed as coeliac 3 days ago.

jerseyangel Proficient

Welcome Helen and Rose:). Glad you found us-- don't hesitate to let us know how we can help.

Bubba's Mom Enthusiast

Hello Helen and Rose! Welcome. There's tons of info here, so read around a bit. There's a search box near the top right of your screen if there's a topic you're especially interested in. Please ask any questions you may have. We allow venting if needed too. :D

  • 4 weeks later...
Gemme Rookie

I am also new here , good, perfectplace for learning and making friends!

Good Luck


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luckyme2 Newbie

Hi everybody :) !

I'm new here,too. My name is Anete,and I'm from the other coast (Eastern Europe). I recognized this disease some 5 years ago,didn't understand what's going on with me. Doctors here avoid such thing as celiac. I started to avoid glutens and my health improved. I'm fighting secretly,because it's a shame here to have any disease. My relatives and "friends" still make bad jokes on this theme. Now my diet is much healthier because I make my meals myself (for my family,too). Hope I can help somebody with my experience.

Bubba's Mom Enthusiast

Hi everybody :) !

I'm new here,too. My name is Anete,and I'm from the other coast (Eastern Europe). I recognized this disease some 5 years ago,didn't understand what's going on with me. Doctors here avoid such thing as celiac. I started to avoid glutens and my health improved. I'm fighting secretly,because it's a shame here to have any disease. My relatives and "friends" still make bad jokes on this theme. Now my diet is much healthier because I make my meals myself (for my family,too). Hope I can help somebody with my experience.

Hello and welcome Anete. I'm so sorry you don't have the support of your friends and family..or medical people. I'm glad you figured this out for yourself though.

We're here for you! :D

GottaSki Mentor

Welcome Rose, Helen, Gemme and Anete!

Glad you all found this forum - it really is the best place to come to get information, gain support, ask questions are simply vent when needed.

Fantastic accomplishment Anete - sounds like you are very strong to have tackled living gluten-free without support from doctors, family or friends. I am sure your experience will help others that visit this site.

Best wishes and happy healing to you all :)

scaredblossom Rookie

Hi all, fairly new here to. I haven't gotten a professional diagnosis, but with eliminating gluten I self diagnosed myself ;)

I have missed this site the last few months....lost it on my computer :huh: I'm back now though and look forward to actually getting to know some others out here that have the same issues and hear success stories...I'm much more positive these days!! Things are getting better everyday!!

SensitiveMe Rookie

Hi Rose, I am a Rose also. :)

I am fairly new here myself so Hi to others new...Helen, Anete, Gemme, scaredblossom. :)

GFinDC Veteran

Hi Rose, I am a Rose also. :)

I am fairly new here myself so Hi to others new...Helen, Anete, Gemme, scaredblossom. :)

Welcome to all the newbies! We have lots of room at the forum inn, so make yourselves at home.:D

Making-A-Change Newbie

Hello everyone. I am also new here. My name is Eddie. I am female lol. I also am self diagnosed right now. Maybe forever since my doc doesnt take this thing seriously at all. So here I am trying to get some good quality info under my belt to help me on this journey of becoming gluten free. :)

1desperateladysaved Proficient

Hi to all, :)

Get better soon.

Not too many send flowers for Celiac, so here is my best.

* * *

*0* *0* *0*

! ! !

I am thinking some artist can do better, but those are the best flowers I got. I have much better ones in the garden, but I couldn't get them into the computer.

Diana

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.