Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unsure About Testing


bcgal00

Recommended Posts

bcgal00 Newbie

I didn't get a lot of information from my GP so thought I'd ask you guys. This site is a wealth of information. I'm getting celiac blood test but that will only show if I have celiac disease right?...not wheat intolerance? I have a requisition to pick 5 food products for allergy blood testing also. I noticed a difference in symptoms when I stopped eating wheat for 2 wks (reduction of stuffy nose, film at back of throat, itchy eyes, dull headache, bloating, stomach discomfort)so will pick wheat as one item to test for. If I pick foods that I eat a lot of I would go with egg whites, milk, rice and tomatoes. I was allergic to rice and tomatoes mildly when tested as a teenager but no testing since. I'm frustrated that I can only pick 5 foods and GP didn't give me a referral to an allergist. So, I may be looking at a naturopath who does skin testing to see if that gives me more information. My GP didn't want to send me to allergist for skin testing b/c she says it is not accurate. I'll have to pay for a naturopath so that will have to wait a bit until the money is available.

No matter what the testing shows, I will be cutting wheat out of my diet b/c I can feel and see the difference in how my body reacts to it. As to other possible food allergies, I would like to have that information so I can adjust my diet. I've spent the last couple of yrs losing 45 lbs and exercising regularly so have worked hard to become fit and healthy and want to feed my body as best I can and feel the best I can. I tell you, when I stopped wheat for a few days and then woke up with no film at back of throat and no nose stuffiness I couldn't believe it! It took another 3-4 days before I noticed that my knees and hands didn't have the slight ache they normally would have off and on.

As for family health, my DD and GD have diabetes, another DD has Graves disease, another GD is lactose intolerant and my daughter with diabetes also has celiac disease. I don't know if any of these things are hereditary but it certainly has made me think more about my own health and possible unknown diagnoses for myself.

So, any advice about testing? I always ate wheat, stopped for 2 wks but have been back on again for a few days. After another wk of eating wheat will that be enough for the celiac testing or should I wait longer? Does eating one serving of wheat a day enough while I do this or should I be eating more?

Thx for any advice or info you have. Much appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

1) See if your doc will give you the dx of celiac with the family hx and relief on the diet, prob. not, but wouldn't hurt to ask.

2) Yes, celiac has a genetic component.

3) Celiac and Type I DM have genes in common/both autoimmune diseases. Not so uncommon to see them in the same person.

4) Thyroid issues, again, autoimmune, not uncommon to see in celiacs.

5) Need to eat more than one serving of wheat a day, unless you are talking "Texas" size servings, lol. Your 2 weeks off may/may not alter your results,

6) You obviously have a problem with wheat, I wouldn't waste one of the five on it.

Good luck.

I didn't get a lot of information from my GP so thought I'd ask you guys. This site is a wealth of information. I'm getting celiac blood test but that will only show if I have celiac disease right?...not wheat intolerance? I have a requisition to pick 5 food products for allergy blood testing also. I noticed a difference in symptoms when I stopped eating wheat for 2 wks (reduction of stuffy nose, film at back of throat, itchy eyes, dull headache, bloating, stomach discomfort)so will pick wheat as one item to test for. If I pick foods that I eat a lot of I would go with egg whites, milk, rice and tomatoes. I was allergic to rice and tomatoes mildly when tested as a teenager but no testing since. I'm frustrated that I can only pick 5 foods and GP didn't give me a referral to an allergist. So, I may be looking at a naturopath who does skin testing to see if that gives me more information. My GP didn't want to send me to allergist for skin testing b/c she says it is not accurate. I'll have to pay for a naturopath so that will have to wait a bit until the money is available.

No matter what the testing shows, I will be cutting wheat out of my diet b/c I can feel and see the difference in how my body reacts to it. As to other possible food allergies, I would like to have that information so I can adjust my diet. I've spent the last couple of yrs losing 45 lbs and exercising regularly so have worked hard to become fit and healthy and want to feed my body as best I can and feel the best I can. I tell you, when I stopped wheat for a few days and then woke up with no film at back of throat and no nose stuffiness I couldn't believe it! It took another 3-4 days before I noticed that my knees and hands didn't have the slight ache they normally would have off and on.

As for family health, my DD and GD have diabetes, another DD has Graves disease, another GD is lactose intolerant and my daughter with diabetes also has celiac disease. I don't know if any of these things are hereditary but it certainly has made me think more about my own health and possible unknown diagnoses for myself.

So, any advice about testing? I always ate wheat, stopped for 2 wks but have been back on again for a few days. After another wk of eating wheat will that be enough for the celiac testing or should I wait longer? Does eating one serving of wheat a day enough while I do this or should I be eating more?

Thx for any advice or info you have. Much appreciated.

GFinDC Veteran

Here the is top 8 list. On the forum we often see people with soy, nightshades, dairy, corn, and egg intolerances.

Allergy testing is not the same as food intolerances though, so it may not help.

Celiacs react to the gluten in wheat, rye, barley, and sometimes oats.

Open Original Shared Link

  • Milk
  • Eggs
  • Peanuts
  • Tree nuts (such as almonds, cashews, walnuts)
  • Fish (such as bass, cod, flounder)
  • Shellfish (such as crab, lobster, shrimp)
  • Soy
  • Wheat

bcgal00 Newbie

Thx for the info. I'll be going for testing tomorrow. This will hopefully give me some answers and I may decide to delve further into this with a nutritionalist later, depending on how I feel over the next month or so after making more dietary changes.

Cara in Boston Enthusiast

An allergy test will not tell you if you have celiac disease or a gluten intolerance. You may want to ask for a Celiac panel at the same time as your allergy tests.

Cara

Mom-of-Two Contributor

I also wanted to add that if your own daughter HAS celiac, she got it from someone! :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,038
    • Most Online (within 30 mins)
      7,748

    Briannas01
    Newest Member
    Briannas01
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.