Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Unsure About Testing


bcgal00

Recommended Posts

bcgal00 Newbie

I didn't get a lot of information from my GP so thought I'd ask you guys. This site is a wealth of information. I'm getting celiac blood test but that will only show if I have celiac disease right?...not wheat intolerance? I have a requisition to pick 5 food products for allergy blood testing also. I noticed a difference in symptoms when I stopped eating wheat for 2 wks (reduction of stuffy nose, film at back of throat, itchy eyes, dull headache, bloating, stomach discomfort)so will pick wheat as one item to test for. If I pick foods that I eat a lot of I would go with egg whites, milk, rice and tomatoes. I was allergic to rice and tomatoes mildly when tested as a teenager but no testing since. I'm frustrated that I can only pick 5 foods and GP didn't give me a referral to an allergist. So, I may be looking at a naturopath who does skin testing to see if that gives me more information. My GP didn't want to send me to allergist for skin testing b/c she says it is not accurate. I'll have to pay for a naturopath so that will have to wait a bit until the money is available.

No matter what the testing shows, I will be cutting wheat out of my diet b/c I can feel and see the difference in how my body reacts to it. As to other possible food allergies, I would like to have that information so I can adjust my diet. I've spent the last couple of yrs losing 45 lbs and exercising regularly so have worked hard to become fit and healthy and want to feed my body as best I can and feel the best I can. I tell you, when I stopped wheat for a few days and then woke up with no film at back of throat and no nose stuffiness I couldn't believe it! It took another 3-4 days before I noticed that my knees and hands didn't have the slight ache they normally would have off and on.

As for family health, my DD and GD have diabetes, another DD has Graves disease, another GD is lactose intolerant and my daughter with diabetes also has celiac disease. I don't know if any of these things are hereditary but it certainly has made me think more about my own health and possible unknown diagnoses for myself.

So, any advice about testing? I always ate wheat, stopped for 2 wks but have been back on again for a few days. After another wk of eating wheat will that be enough for the celiac testing or should I wait longer? Does eating one serving of wheat a day enough while I do this or should I be eating more?

Thx for any advice or info you have. Much appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

1) See if your doc will give you the dx of celiac with the family hx and relief on the diet, prob. not, but wouldn't hurt to ask.

2) Yes, celiac has a genetic component.

3) Celiac and Type I DM have genes in common/both autoimmune diseases. Not so uncommon to see them in the same person.

4) Thyroid issues, again, autoimmune, not uncommon to see in celiacs.

5) Need to eat more than one serving of wheat a day, unless you are talking "Texas" size servings, lol. Your 2 weeks off may/may not alter your results,

6) You obviously have a problem with wheat, I wouldn't waste one of the five on it.

Good luck.

I didn't get a lot of information from my GP so thought I'd ask you guys. This site is a wealth of information. I'm getting celiac blood test but that will only show if I have celiac disease right?...not wheat intolerance? I have a requisition to pick 5 food products for allergy blood testing also. I noticed a difference in symptoms when I stopped eating wheat for 2 wks (reduction of stuffy nose, film at back of throat, itchy eyes, dull headache, bloating, stomach discomfort)so will pick wheat as one item to test for. If I pick foods that I eat a lot of I would go with egg whites, milk, rice and tomatoes. I was allergic to rice and tomatoes mildly when tested as a teenager but no testing since. I'm frustrated that I can only pick 5 foods and GP didn't give me a referral to an allergist. So, I may be looking at a naturopath who does skin testing to see if that gives me more information. My GP didn't want to send me to allergist for skin testing b/c she says it is not accurate. I'll have to pay for a naturopath so that will have to wait a bit until the money is available.

No matter what the testing shows, I will be cutting wheat out of my diet b/c I can feel and see the difference in how my body reacts to it. As to other possible food allergies, I would like to have that information so I can adjust my diet. I've spent the last couple of yrs losing 45 lbs and exercising regularly so have worked hard to become fit and healthy and want to feed my body as best I can and feel the best I can. I tell you, when I stopped wheat for a few days and then woke up with no film at back of throat and no nose stuffiness I couldn't believe it! It took another 3-4 days before I noticed that my knees and hands didn't have the slight ache they normally would have off and on.

As for family health, my DD and GD have diabetes, another DD has Graves disease, another GD is lactose intolerant and my daughter with diabetes also has celiac disease. I don't know if any of these things are hereditary but it certainly has made me think more about my own health and possible unknown diagnoses for myself.

So, any advice about testing? I always ate wheat, stopped for 2 wks but have been back on again for a few days. After another wk of eating wheat will that be enough for the celiac testing or should I wait longer? Does eating one serving of wheat a day enough while I do this or should I be eating more?

Thx for any advice or info you have. Much appreciated.

GFinDC Veteran

Here the is top 8 list. On the forum we often see people with soy, nightshades, dairy, corn, and egg intolerances.

Allergy testing is not the same as food intolerances though, so it may not help.

Celiacs react to the gluten in wheat, rye, barley, and sometimes oats.

Open Original Shared Link

  • Milk
  • Eggs
  • Peanuts
  • Tree nuts (such as almonds, cashews, walnuts)
  • Fish (such as bass, cod, flounder)
  • Shellfish (such as crab, lobster, shrimp)
  • Soy
  • Wheat

bcgal00 Newbie

Thx for the info. I'll be going for testing tomorrow. This will hopefully give me some answers and I may decide to delve further into this with a nutritionalist later, depending on how I feel over the next month or so after making more dietary changes.

Cara in Boston Enthusiast

An allergy test will not tell you if you have celiac disease or a gluten intolerance. You may want to ask for a Celiac panel at the same time as your allergy tests.

Cara

Mom-of-Two Contributor

I also wanted to add that if your own daughter HAS celiac, she got it from someone! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748

    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.