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Celiac And Cystic Fibrosis

hilaryw

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hilaryw Newbie
hilaryw
Posted

My daughter had the positive celiac panel and biopsy (blunted not flat) recently. she has had chronic constipation, distended belly, stomach pains, etc. No real growth issues. But I've heard that the symptoms of celiac mimic those of cystic fibrosis, now I'm worried she CF either also or instead of celiac. I'm going to do the sweat test next week. She's 4 and has had no upper respiratory issues (other than occassional cough/cold) but now has a wet, yucky cough that has gotten me totally freaked. Thx for any comments!

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e&j0304 Enthusiast
e&j0304
Posted

I don't really have an answer to your question, but my daughter's new doctor also mentioned CF and said that if Ella continued to have growth problems and wasn't continuing to get better with the gluten-free diet that we would test for CF.

She mentioned that Ella's stools seemed like those of a person with CF because they were very grainy and almost sand-like in consistency. That has since cleared up with the gluten-free diet.

Sorry I can't be of more help. It kind of freaked me out when she said CF too, but I really don't think Ella has any of the other characteristics of someone with CF so I'm trying not to worry about it!

KaitiUSA Enthusiast
KaitiUSA
Posted

I don't know much about Cystic Fibrosis but she obviously has Celiac from the biopsy results. Cystic Fibrosis would NOT have produced a positive biopsy for celiac. The symptoms were most likely from that and would go away once being gluten free for a while(each person is different and some take longer for symptoms to go away)

I am sure it probably is possible to have both but she does have Celiac so it would be in addition to and not instead of . Let us know the results of the sweat test

JacobsMom Contributor
JacobsMom
Posted

All I can tell you about this is when the docs were trying to figure out what was wrong with Jacob CF is one of the things they thought he had. He has always had respirtory problems so they just knew it was CF b/c alot of the Celiac symptons are just like CF. We went thru the sweat test and he didnt have it. I wouldnt worry about it b/c most likely it is just Celiac.

Good luck and keep us posted!!!

  • 2 weeks later...
hilaryw Newbie
hilaryw
Posted
  • Author

Thanks for responding. The CF test was NEGATIVE Yeah!! Glad I did it. And let me tell you, my daughter is doing so well on the diet!! It's been 1 month and we totally notice a difference. She wants to eat, for one thing, and has more energy, and his happier, etc. Less anxious. Belly is not distended. But still constipated. Anyway. Thanks again.

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      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
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