Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Repeat Tests


1974girl

Recommended Posts

1974girl Enthusiast

My daughter went for her 6 month repeat. Question : if she has been glutened in the past 6 months, how long does it stay in the blood? Just can't imagine that somewhere in 6 months there hasn't been cc somehow. Gluten is everywhere. We still go on vacations and to grandparents houses ( both live out of town). She is a silent celiac so I don't know. But would one time say on may vacation show up on a blood test in july? Just preparing myself in case it is not good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

When my DS was knowingly glutened he was having bloodwork a few weeks later. I called the Dr. and she was not overly concerned by one know glutening.

HTH

1974girl Enthusiast

Thanks! Our doctor said she could tell that we were doing a good job by how concerned we were. She said that some parents literally don't take it seriously. She will ask "Have you been gluten free?" she said some parents will look at the 10 yr old and say "have you?". What???? Also some divorce situations mom does good and dad lets them eat whatever. (or vice versa). I am just amazed that every parent isn't as obsessed as I am.

StephanieL Enthusiast
She said that some parents literally don't take it seriously. She will ask "Have you been gluten free?" she said some parents will look at the 10 yr old and say "have you?". What????

Oh I hear you! My DS has life threatening food allergies including peanuts/tree nuts. One of the biggest worries is store bakery things cause they use nuts everywhere and most/all allergists tell PN allergic folks to stay far away! When I was at DS's school I asked the teacher if I could make cupcakes for graduation and what other kids allergies were so I could make them safe for all. One other PN allergic kids Mom was there so I walked over and asked if she would be okay with me making them. She said "That's fine but he'll just eat the store bought cake."

:blink:

Our GI Dr. said something about our DD when we were asking if we should test her. She said "It would make it easier for things like if you stop at McDonalds." and she stopped and said "You don't do McDonalds ever...do you." cause she knows how seriously we take things and how strict we are with keeping this kids safe (We deal with Celiac, peanut, tree nut, dairy, egg, blueberry and banana allergies so it's a longer list than most kids.)

Gemini Experienced

Thanks! Our doctor said she could tell that we were doing a good job by how concerned we were. She said that some parents literally don't take it seriously. She will ask "Have you been gluten free?" she said some parents will look at the 10 yr old and say "have you?". What???? Also some divorce situations mom does good and dad lets them eat whatever. (or vice versa). I am just amazed that every parent isn't as obsessed as I am.

You are not obsessed...you are being a good parent. The one thing that amazes me today is how often people let their kids tell them what they will eat. Whether a child likes gluten free or not, they have to comply and it's your job to make sure they do.

It may not pleasant in the beginning but someone has to be the grown-up! ;)

beachbirdie Contributor

Thanks! Our doctor said she could tell that we were doing a good job by how concerned we were. She said that some parents literally don't take it seriously. She will ask "Have you been gluten free?" she said some parents will look at the 10 yr old and say "have you?". What???? Also some divorce situations mom does good and dad lets them eat whatever. (or vice versa). I am just amazed that every parent isn't as obsessed as I am.

Obsessed? NO! You are simply being VIGILANT. You are simply taking this seriously because it IS serious, and doing a great job of it! :D

You are not obsessed...you are being a good parent. The one thing that amazes me today is how often people let their kids tell them what they will eat. Whether a child likes gluten free or not, they have to comply and it's your job to make sure they do.

It may not pleasant in the beginning but someone has to be the grown-up! ;)

I see this so often in the grocery store, even in parents who don't look like they are trying to manage special diets. There will be a mom with a couple of little kids in the cart, showing a 4-year old boxes of cereal, crackers, whatever, and choosing everything that meets with the kid's approval. I've seen kids have tantrums if the parent chooses without approval, and the parent gives in. Then I hear moms in the checkout line saying things like "well, we have to make sure they are happy[/i"! Makes me want to smack them. I want to say "no, it's YOUR job to teach them to deal with disappointment so they won't grow up thinking they will DIE if they can't have what they want".

Arrggh!

speechless-smiley-002.gif

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.