Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Now Know What Glutened Feels Like

Lisa

By Lisa
in Coping with Celiac Disease

Recommended Posts

Lisa Mentor
Lisa
Posted

Hey all:

I have been (as best able) to be gluten free for about 4 weeks. WAS feeling better and stronger.

I added a new Revlon Lipstick, Progresso Cream of Mushroom Soup and a Chicken Salad tray at our local grill (which may have come out of a large pre-prepared jug).

Does anyone know of any "kooties" in the Lipstick, or Progresso Soup.

I made a crabmeat casserole with the soup, everything else was natural and used Hellmans Mayo.

I feel so weak, exausted, my eyelids feel like they have weights on them and I stare at the dishes in the sink, like they are going to jump into the dishwasher. I also have some dia.... and feel sharp (pin-like) pains in my small intestines, most likely from inflamation.

Is this was what "getting glutened" is like???? I recieved a B-12 injection today and will have more once a week for a month. Hope that that will bring my energy level back.

Thank goodness that I am able to stay at home and not have a full-time job. I just don't know how some of you do it.

Would welcome any inpute.

PS - Hurricane Ophelia was good to us. Not so good to those south of us.

Lisa B

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Karen Community Regular
Canadian Karen
Posted

Hi Lisa!

I am glad you "weathered the storm", so to speak....... and Ophelia was kind to you...... I hope the people south of you will recover quickly.

Yep, sounds like a gluten attack to me...... Just have to let it run its course......

Hugs.

Karen

ravenwoodglass Mentor
ravenwoodglass
Posted

I added a new Revlon Lipstick, Progresso Cream of Mushroom Soup and a Chicken Salad tray at our local grill (which may have come out of a large pre-prepared jug).

I know for sure the soup was okay, I was so happy to find that out, so is thier split pea with ham and a few others, they mark the labels very well and I have never noticed any crosscontamination issues with Progresso soups. I would suspect the lipstick or the Chicken salad tray. Call the company about the lipstick or do a search under products. I would not touch a deli prepared anything, too much risk of cross-contamination and who knows what could have been in the jugged mix. It sounds like you got 'got' good, time will heal, hope you feel better soon. We all, I think, learn the hard way to call about everything till companies get smart and start labeling clearly.

frenchiemama Collaborator
frenchiemama
Posted

You said that you made crab casserole, did you use real crab meat or did you use fake crab? The fake crab and lobster usually contains wheat (at least all the ones I've looked at....)

Lisa Mentor
Lisa
Posted
  • Author

Totally pure, handed picked crab from the beach ....(maybe the hand-picked?)

But most likely the chicked salad from the grill.

Saw on a gluten-free site that all Almay and Revlon lipsticks are gluten-free.

This is the pitts, I feel like I have "mono", like I had in college.

Thanks for the input....

Lisa B.

JoeB Apprentice
JoeB
Posted

Lisa -

I had a lot of problems with grilled food, too. I only eat off my own grill now, and that was only after I completely cleaned the grates.

Lisa Mentor
Lisa
Posted
  • Author

Must be glutened, I can't even find the right keys to type a post.

Please excuse all the errors in typing my previous posts. Hands and brain are not on the same road.

Hey, someone tell celiac3270 that I finally found the search on the site, so I can not post redundent questions...( I'm so proud of myself that I can't stand it!!)...I'd put on one of those smiley faces.........but still working on that...as said before, "old dog, new tricks".. If you'll bare with me, I'll hang in there with YA'LL...

Thanks Karen, you always seem to be there for me, (as well as others)

Hope this will pass soon.

Lisa B.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
  • Author

Must be glutened, I can't even find the right keys to type a post.

Please excuse all the errors in typing my previous posts. Hands and brain are not on the same road.

Hey, someone tell celiac3270 that I finally found the search on the site, so I can not post redundent questions...( I'm so proud of myself that I can't stand it!!)...I'd put on one of those smiley faces.........but still working on that...as said before, "old dog, new tricks".. If you'll bare with me, I'll hang in there with YA'LL...

Thanks Karen, you always seem to be there for me, (as well as others)

Hope this will pass soon.

Lisa B.

Canadian Karen Community Regular
Canadian Karen
Posted

Lisa,

I hope you are feeling better real soon, I know for me it not only affects me physically when I get glutened, but also emotionally. I become what I can only describe as a cross between an emotional wreck :unsure: and an explosive monster!!! :angry:

The grill had to be contaminated. That's where I would put my money...... <_<

Also, as for always being there for you, hey, what are fellow celiacs for??? ;) Just think, sometime down the road you are going to be a pro at this and you will be the one supporting and encouraging the newbies!!! (You will be an absolute computer pro by then!!! ;) )

Hugs.

Karen

Billygoat Apprentice
Billygoat
Posted

Sorry you're not feeling well. I got glutened the other day from the McDonald's Grilled Chicken Caesar. It didn't dawn on me that picking out the croutons would contaminate me. :huh: One of these days I'll get this gluten-free diet down.

Be careful about drinks too. I unknowingly glutened myself with Tropicana Lemonade (2-litre) and IBC Black Cherry soda.

I'm amazed at how easily I gluten myself. You don't think about it being in drinks or cosmetics or that's not bread based. (At least I didn't.)

sb4480 Newbie
sb4480
Posted

I'd be suspicious of the chiken itself as well. I once got glutened from chicken soup. I was so careful about the stock I used and the spices but still got terribly sick. I've heard that some companies inject their meat with a solution of "stuff" to plump it up and add weight. I think this is what did it to me. I know perdue is gluten-free but I don't think this was perdue. Anyway, that might be the case with your chicken salad.

I'm sorry you're not feeling well. I hope you get better soon.

Stephanie

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.