Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Now Know What Glutened Feels Like


Lisa

Recommended Posts

Lisa Mentor

Hey all:

I have been (as best able) to be gluten free for about 4 weeks. WAS feeling better and stronger.

I added a new Revlon Lipstick, Progresso Cream of Mushroom Soup and a Chicken Salad tray at our local grill (which may have come out of a large pre-prepared jug).

Does anyone know of any "kooties" in the Lipstick, or Progresso Soup.

I made a crabmeat casserole with the soup, everything else was natural and used Hellmans Mayo.

I feel so weak, exausted, my eyelids feel like they have weights on them and I stare at the dishes in the sink, like they are going to jump into the dishwasher. I also have some dia.... and feel sharp (pin-like) pains in my small intestines, most likely from inflamation.

Is this was what "getting glutened" is like???? I recieved a B-12 injection today and will have more once a week for a month. Hope that that will bring my energy level back.

Thank goodness that I am able to stay at home and not have a full-time job. I just don't know how some of you do it.

Would welcome any inpute.

PS - Hurricane Ophelia was good to us. Not so good to those south of us.

Lisa B


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Canadian Karen Community Regular

Hi Lisa!

I am glad you "weathered the storm", so to speak....... and Ophelia was kind to you...... I hope the people south of you will recover quickly.

Yep, sounds like a gluten attack to me...... Just have to let it run its course......

Hugs.

Karen

ravenwoodglass Mentor

I added a new Revlon Lipstick, Progresso Cream of Mushroom Soup and a Chicken Salad tray at our local grill (which may have come out of a large pre-prepared jug).

I know for sure the soup was okay, I was so happy to find that out, so is thier split pea with ham and a few others, they mark the labels very well and I have never noticed any crosscontamination issues with Progresso soups. I would suspect the lipstick or the Chicken salad tray. Call the company about the lipstick or do a search under products. I would not touch a deli prepared anything, too much risk of cross-contamination and who knows what could have been in the jugged mix. It sounds like you got 'got' good, time will heal, hope you feel better soon. We all, I think, learn the hard way to call about everything till companies get smart and start labeling clearly.

frenchiemama Collaborator

You said that you made crab casserole, did you use real crab meat or did you use fake crab? The fake crab and lobster usually contains wheat (at least all the ones I've looked at....)

Lisa Mentor

Totally pure, handed picked crab from the beach ....(maybe the hand-picked?)

But most likely the chicked salad from the grill.

Saw on a gluten-free site that all Almay and Revlon lipsticks are gluten-free.

This is the pitts, I feel like I have "mono", like I had in college.

Thanks for the input....

Lisa B.

JoeB Apprentice

Lisa -

I had a lot of problems with grilled food, too. I only eat off my own grill now, and that was only after I completely cleaned the grates.

Lisa Mentor

Must be glutened, I can't even find the right keys to type a post.

Please excuse all the errors in typing my previous posts. Hands and brain are not on the same road.

Hey, someone tell celiac3270 that I finally found the search on the site, so I can not post redundent questions...( I'm so proud of myself that I can't stand it!!)...I'd put on one of those smiley faces.........but still working on that...as said before, "old dog, new tricks".. If you'll bare with me, I'll hang in there with YA'LL...

Thanks Karen, you always seem to be there for me, (as well as others)

Hope this will pass soon.

Lisa B.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Must be glutened, I can't even find the right keys to type a post.

Please excuse all the errors in typing my previous posts. Hands and brain are not on the same road.

Hey, someone tell celiac3270 that I finally found the search on the site, so I can not post redundent questions...( I'm so proud of myself that I can't stand it!!)...I'd put on one of those smiley faces.........but still working on that...as said before, "old dog, new tricks".. If you'll bare with me, I'll hang in there with YA'LL...

Thanks Karen, you always seem to be there for me, (as well as others)

Hope this will pass soon.

Lisa B.

Canadian Karen Community Regular

Lisa,

I hope you are feeling better real soon, I know for me it not only affects me physically when I get glutened, but also emotionally. I become what I can only describe as a cross between an emotional wreck :unsure: and an explosive monster!!! :angry:

The grill had to be contaminated. That's where I would put my money...... <_<

Also, as for always being there for you, hey, what are fellow celiacs for??? ;) Just think, sometime down the road you are going to be a pro at this and you will be the one supporting and encouraging the newbies!!! (You will be an absolute computer pro by then!!! ;) )

Hugs.

Karen

Billygoat Apprentice

Sorry you're not feeling well. I got glutened the other day from the McDonald's Grilled Chicken Caesar. It didn't dawn on me that picking out the croutons would contaminate me. :huh: One of these days I'll get this gluten-free diet down.

Be careful about drinks too. I unknowingly glutened myself with Tropicana Lemonade (2-litre) and IBC Black Cherry soda.

I'm amazed at how easily I gluten myself. You don't think about it being in drinks or cosmetics or that's not bread based. (At least I didn't.)

sb4480 Newbie

I'd be suspicious of the chiken itself as well. I once got glutened from chicken soup. I was so careful about the stock I used and the spices but still got terribly sick. I've heard that some companies inject their meat with a solution of "stuff" to plump it up and add weight. I think this is what did it to me. I know perdue is gluten-free but I don't think this was perdue. Anyway, that might be the case with your chicken salad.

I'm sorry you're not feeling well. I hope you get better soon.

Stephanie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.