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Gluten Free Girls

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Gluten Free Girls Apprentice

Myself, and our two daughters have Celiac Disease. Our girls are 13 and 7. We're one year into this wild ride and we have yet to meet anyone else with this disease. I want to start a support group of sorts, so that my girls can meet other kids with Celiac Disease and I would love to meet other parents as well. We joined the Atlanta ROCK group but we've found that they don't have frequent events. Are we the only Celiacs in the Atlanta area? We would love to meet some Celiac folks like us!


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MitziG Enthusiast

Well, I am in Iowa, mot GA, but I know my 13 yo daughter would love a celiac pen pal! Myself and my 8 yo son are also celiacs, so there is definitely common understanding! Poor hubby is gluten free by default!

KatieL1321 Rookie

I am a pretty new Celiac. I was diagnoised 8 months ago. I would love to have someone to talk to I am alittle older than your daughters I am 15 years old but I still think it would be fun to have someone to talk to :)

Katie

MaryJones2 Enthusiast

Check out the Atlanta Gluten Free Dining Club (I think that's the name) on meetup.com - they have monthly events and lots of information on where to find local products, restaurants, doctors, and gluten free events. There is also the Metro Atlanta Celiacs group which maintains lists of gluten-free friendly restaurants and knowledgeable celiac doctors among other things. They also have events as well.

melaniesilvers Rookie

We live about 45 min north of Atlanta. My son is four (not close to the ages you have) but I would love to find out where you eat and what you buy. There is also a 7 yr old girl that lives close to us that was diagnosed in April.

shauniscrazy Explorer

I am a pretty new Celiac. I was diagnoised 8 months ago. I would love to have someone to talk to I am alittle older than your daughters I am 15 years old but I still think it would be fun to have someone to talk to :)

Katie

I dont know if i am a Celiac yet or not but i am allergic to gluten and i would like to have someone to talk to so i can learn more i am 16 and live in TN.

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      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
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    • trents
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