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Prescriptions

Glutenfree4her

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Glutenfree4her Rookie
Glutenfree4her
Posted

Daughter prescribed omeprazole 10 mg. called pharmacy to see if it had gluten in it and they said didn't look like it but I should call manufacturer. Whose responsible for that? I guess ultimately me just frustrating that they don't take time to be concerned.

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Roda Rising Star
Roda
Posted

My opinion it should be part of the service they provide at the pharmacy. I've had problems with chain pharmacys, but I do well at a private pharmacy where I live. In the event I can't use the private pharmacy, I still have to call myself and shop around. Sucks!

rosetapper23 Explorer
rosetapper23
Posted

Personally, I don't trust the pharmacies to check--I ALWAYS call the manufacturer directly because I know all the questions to ask.

Adalaide Mentor
Adalaide
Posted

I always ask for the name of the manufacturer so I can call myself. We need to be responsible for our own health. It sucks, but pharmacies seem to always be busy and we really just can't trust some harried person who doesn't even understand what gluten is to be responsible for knowing if something is gluten free. Usually when I ask for the number, they always ask why then look at the bottle and respond with something like "gluten is listed as an ingredient" or "it doesn't say there's wheat in it" or some other thing that makes us who know the in's and out's want to bang our heads on walls. There have been several instances where I have had to fill a prescription at an alternate pharmacy.

TiaMichi2 Apprentice
TiaMichi2
Posted

Daughter prescribed omeprazole 10 mg. called pharmacy to see if it had gluten in it and they said didn't look like it but I should call manufacturer. Whose responsible for that? I guess ultimately me just frustrating that they don't take time to be concerned.

I agree with you it should be the Pharmacy's responsability, but I do feel safer when I call the mfg. myself. Sometimes they can give me the number, sometimes is only a name, and I have to do the research myself :blink:

In the past 8 months I have had to do it like 3 times, since my Pharmacy keeps changing Manufacturers on one of my meds. At times I've had to call 5 or 6 places to get an actual person to get me the answers I am looking for, a royal pain in the you know what!!!!!

-Miriam

Gemini Experienced
Gemini
Posted

Personally, I don't trust the pharmacies to check--I ALWAYS call the manufacturer directly because I know all the questions to ask.

I totally agree with this! I trust no one to get this right, especially someone who doe not have celiac disease. Everyone is responsible for their own health, ultimately, so need to do their own homework. It's another good reason to only take meds you absolutely have to have and not ones doctors push on you for no good reason.

FernW Rookie
FernW
Posted

I got glutened once from a brand name medicine. My doctor gave me some samples. I called the mfg they said it was fine but also gave me a cya answer. I took it an got sick for my usual month. I had 2 pills tested and they both had over 50 ppm. Taking meds is always risky, I still call every single time, but I also hold my breath after I take the pill.

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  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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